@barb-larue7gmail-com Hi Barb, thanks for reaching out.
I think I'm about 80 to 90% better. Still got a little shake in both hands and some involuntary finger movements in both hands though @glenb had mentioned it took a while for his hands to get better i.e. one of the last things. Makes sense if there are nerve issues that the extremities would be the last to get better I guess.
Feeling pretty good though, sometimes have a little regression and then gets better. Sometimes feels like 2 steps forward and then 1 step back.
I'm about 4 months from my second shot that caused all the problems. The first 5 or 6 weeks were the worst for me and a real shock to my system. Reading posts on this forum showed me that some folk have it way worse than me. A lot of variables at play and I had 7 months between shots which may have helped reduce severity, tough to know for sure.
Started running again so that's progress 🙂
I hope you're on the road to recovery too!
Andy
Hi Andy, glad to know you're so close to 100% recovery. May I know what were your symptoms and when had you taken your 1st shot and how long have you been feeling better?
May help us.
@andy2022 I'm so glad to hear this!!
I'm happy for you and it gives me and no doubt others hope for recovery
Thank you for responding 😊
Hi Dee. You can see my activity to see a more extensive report but basically the following:
- Internal tremor/vibrations/shakes
- Muscle twitching all over (prevents good sleep)
- Muscle fatigue
- Joint pain especially hands/finger/wrists etc
- Headaches
- Tinnitus / head pressure
Still get occasional muscle twitching at night when going to sleep and slight shake in hands and fingers still. Occasional headaches and tinnitus and joint pain but much less than it was. At this rate it will likely be another couple of months to fully recover I feel but I can easily deal with current symptoms. Fear of the unknown is always the worst part. Supplements help but time is the biggest factor I feel.
Vaccines were J&J March 2021 (mild symptoms only) and Pfizer November 2021. I do wonder if I had J&J booster instead of Pfizer whether I'd have been fine, but alas we can't go back in time unfortunately :).
I hope you and all the other people dealing with these symptoms get better soon!
Andy
Hi Dee. You can see my activity to see a more extensive report but basically the following:
- Internal tremor/vibrations/shakes
- Muscle twitching all over (prevents good sleep)
- Muscle fatigue
- Joint pain especially hands/finger/wrists etc
- Headaches
- Tinnitus / head pressure
Still get occasional muscle twitching at night when going to sleep and slight shake in hands and fingers still. Occasional headaches and tinnitus and joint pain but much less than it was. At this rate it will likely be another couple of months to fully recover I feel but I can easily deal with current symptoms. Fear of the unknown is always the worst part. Supplements help but time is the biggest factor I feel.
Vaccines were J&J March 2021 (mild symptoms only) and Pfizer November 2021. I do wonder if I had J&J booster instead of Pfizer whether I'd have been fine, but alas we can't go back in time unfortunately :).
I hope you and all the other people dealing with these symptoms get better soon!
Andy
Wow you give me hope! I deeply hope ww don't face any issues in the future coz of this one mistake of getting jabbed and that we completely get cured from every tiny mess this substance has created in our bodies.
The fact that I don't feel like before makes me sad. As you said we can't go back in time but still feels so helpless most of the times. In my case, I never wver wanted to take it come what may and I kept saying, if I take this I will probably die. Then one fine day a stupid ass scared the shit out of me and pushed me into changing my mind and I out of complete fear took it. I was so blank I completely forgot all my feeling about it and how I'd said ot won't suit me. And the day I took all of this began. So deep down there's a lot of regret and feel stuoid for getting so scared by such a random person. I had no clue of these side effects at all.
Your symptoms are somewhat identical to mine so I can hope it'll get better. Some of mine are scarier too like a messed uo heart rate and chest pains etc.
I've just asked for 2 things either complete recovery or death. Don't let me swing in between and live a unhappy life for the rest of my life from the Almighty.
@medee Try and stay positive Dee, as hard as it can be sometimes. The body is amazing at fixing itself but nerve related issues can take a long time unfortunately. I hope you start seeing some progress soon as that's half the battle as it gives confidence that your body is healing.
Andy
@medee I hear you! I never take vaccines unless I have to, and this seemed like the right thing to do. I have never had a flu or pneumonia shot and always strove to eat well, Exercise, and sleep well. I have been pretty healthy all my life.
This has turned my life into an ongoing nightmare, as it has for you and so many. 😞
I had no idea I would end up with my life destroyed.
Please don't give up hope, although trust me, I understand the despair.
Let's embrace the idea that our bodies are amazingly well equipped for healing, especially with assistance at times when they're overwhelmed.
I'm seeing a holistic/ functional doctor who believes he can help the body fight back with a strengthened immune system.
I hope and pray you and all of us suffering will get better soon.
Please keep us posted!
I found this thread looking for hope and hope it what ive found. I dont know if anyone will see this thread as no one has commented in it in so long.
Im 45 years old, gym fit and healthy and took my Pfizer booster in Sept 2023 as I volunteer with disabled adults.
3 days letter I developed chills and the most awful fatigue that confined me to bed for 4 days. Never in my life have I been that ill. I did about 6 covid tests a day, all negative.
I decided mind over matter and got out of bed, with dizziness, brain fog, dropping words, feeling fuzzy headed and like I could black out at any moment and got back on it at the gym.
I could lift my usual weights but felt 'out of body'.
I carried on as normal with the dizzy, brain fog for 6 weeks until one afternoon at home I got so dizzy I must have had a panic attack and went to Accident & Emergency.
They did blood tests, CT scans, all came back clear. No signs of clotting disorders, infections, I was sent home with no advice. "Long covid" they kept saying. No amount of me telling them I tested negative the entire duration. "Maybe its ME then or post viral fatigue" - no amount of me saying I HAD NO FLU LIKE SYMPTOMS , this started 3 days after the vaccination helped.
I spoke to my GP who immediately said "it's the vaccine" and suggested I see a Neurologist. She completed a yellow form to report the vaccine side effects for me. I could have cried that someone was listening at last.
I paid privately for MRI and MRV scans. All clear.
I have paid for a complete set of bloods to be done this week which I envisage will come back all clear.
The slightest exertion today means I will be exhausted and dizzy tomorrow - so I can see why this could be mistaken for ME I guess.
My GP said to me that if this is indeed vaccine related, there is no support available in the UK - she can help me with painkillers and anti depressants whilst I sit it out and wait. Ive said no for now - im having weekly B12 injections, magnesium and vitamin D supplements and start Hypoxi (altitude air breathing therapy to stimulate mitochondrial repair) tomorrow. Ive been encouraged to hear from so many of you that there is light at the end of the tunnel and im determined to reach it.
Sorry that this isn't a recovery in full story, this is a recovery in progress story. Inspired by so many of you who've shared your stories.
Anymore tips welcome.
Thanks x
@neil78 Hi Neil, sorry to hear your story, but glad you're on the mend. I've been living with these COVID vaccine side effects since June 2021 (basically after my first vaccine). I didn't realise it was the vaccine either initially - only when two separate doctors (one private, the other the Head of ENT at my local NHS hospital) mentioned a possible link in the following months. The medical community does now recognise that there is a link: https://eurjmedres.biomedcentral.com/articles/10.1186/s40001-023-00992-0#:~:text=COVID%2D19%20vaccination%20also%20affects,syndrome%20(GBS)%2C%20small%20fiber
The NHS can't really do anything, so I've tried various alternative things - and they have helped. To be honest, my progress has been slow; I tell people that it's a bit like a snail crawling up a mountain. But it is going in the right direction, and I'm recovering from what was a very bad reaction (including total left side hearing loss and terrible vertigo). I'm much improved now. The main things that have benefited me, and that I'm continuing to work on are:
- eating differently: I thought I was pretty healthy before, almost vegetarian, yoga every day etc, but I started seeing a nutritionist and she's made me eat a lot more meat, fish and seafood and that's made a big difference. She also prescribed a bunch of vitamins and supplements, which I've found helpful - it looks like you have these all covered.
- reducing stress: very hard because I've been thrown into a lot of stressful situations these past few years, which have set me back, but I'm trying to set boundaries.
- acupuncture: I've found this really helpful, particularly for stress, headaches and hearing recovery. My Chinese doctor also got rid of 80% of my initial dizziness in the first 3 months. She's very good and I find her acupuncture very relaxing, but I recognise that the idea of needles isn't everyone's cup of tea.
- increasing my bifidobacteria: From various COVID vaccine side-effect research, it seems that one finding is that sufferers have poor bifidobacteria in their guts. So I've worked on that. I've tried various commercial probiotics, but I find that natural food ones work better. Amongst other things, I make my own kefir. Recently I started experimenting by eating a tiny bit of kefir grain every day (or at least when I remember). It sounds weird, but when I googled "best probiotics" and looked at the ingredients, one of the top ones (Garden of Life) actually states that it contains dried kefir grains, so I figured why not! After about a week, I felt more energetic, so I definitely think it's working.
I hope this is helpful. Give yourself a few months - with a bit of luck you should feel a lot better.
I'm happy to share my experience of recovery after vaccination against Covid-19. After getting the vaccine, I experienced some side effects such as fatigue, headache, and mild fever. However, after a few days all the symptoms disappeared and I felt much better.
In most cases, side effects are temporary and disappear within a few days.