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5 years of dizziness


Macfi
(@floramac)
New Member
Joined: 3 weeks ago
Posts: 1
Topic starter  

Hello,

I started having dizziness approx 5 years ago. I also started getting intermittent bouts of nausea.

I was treated for BPV with the Epley manoeuvre and then when the nausea became regular, labyrinthitis.

 Neither treatment helped. I had regular blood tests and an MRI on neck and head.

The dizziness stayed and the nausea eased with some bad days.

Finally in 2019, my GP referred me to a geriatrician. He put me on low BP tablets - made me worse. Vertigo meds, made me worse. Checked 're the pituitary gland and did the tilt table test. At the last call we discussed vestibular disorder specialist (I have had tinnitus in left ear for 12 years and get some ear aches), ( I saw an ent specialist when I was diagnosed with labrynthitis who said all was ok.) . Now I have received a referral for an echocardiogram! No discussion just the referral.

The nausea has returned with a vengeance and every day the dizziness, fug, off balance is there all day ( worse when moving around). Some days I just don't know where to turn. My GP referred me as she had no ideas.

I try to stay positive but I really feel I can't go on like this.

I am now considering going private but what kind of specialist should I see.

I will be so grateful for Any thoughts or opinions.

 

Thank you

Fiona

 


Quote
Karen R. Mizrach
(@krmizrachgmail-com)
Eminent Member Patient Forum Moderator
Joined: 1 year ago
Posts: 49
 

Hi Fiona

 

I'm so sorry you are going through this. It's a difficult journey trying to find answers. Even once you get a diagnosis, the treatments can vary depending on your individual response, the doctor and your resources. It's a puzzle of a disorder. But, there is hope! Have you tried seeing a neurologist? One who specializes in balance disorders is preferable. Also, I had a lot of success with Vestibular Therapy (with a physical therapist). Slowly you will begin to find answers and support. Keep looking. My physical therapists turned out to be my best support system and provided so much education. 

 

Meanwhile be kind to yourself and patient as you explore options. It will be more manageable once you feel more in control. Keep us updated. 

 

Karen


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vicki
(@vicki)
Active Member
Joined: 12 months ago
Posts: 5
 

Hi Fiona,

 

First let me say I am so sorry for what you are going through however you've come to the right place as far as people understanding your story.  I have been dealing with vestibular issues now for 14 years and the journey is long with many obstacles in the way but you can survive all this craziness.  I am assuming your nausea is because of the constant "movement" or dizziness and it is indeed very real.  Finding a good neurologist which specializes in vestibular or balance disorders would be the best if possible depending on where you live.  There are medications to help alleviate those dizzy feelings but sometimes it's a trial and error approach to see which works best for you.  There is also medications to counteract the nausea feelings you have and you should ask for them.  The frustration level you are feeling is strong and understandable as unfortunately most of us have had to search over time and providers to find the one person who seemed to be able to help us.  Don't give up on this journey.  Do as much research, asking that you feel you can handle and in between those times be good to yourself and don't beat yourself up.  Patience is extremely hard to have when it seems like everything is falling apart but you will find the provider that will be able to direct you best.  Please stay in touch.

 

Vicki


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Kathleen
(@kblitz)
New Member
Joined: 1 week ago
Posts: 2
 
Posted by: @floramac

Hello,

I started having dizziness approx 5 years ago. I also started getting intermittent bouts of nausea.

I was treated for BPV with the Epley manoeuvre and then when the nausea became regular, labyrinthitis.

 Neither treatment helped. I had regular blood tests and an MRI on neck and head.

The dizziness stayed and the nausea eased with some bad days.

Finally in 2019, my GP referred me to a geriatrician. He put me on low BP tablets - made me worse. Vertigo meds, made me worse. Checked 're the pituitary gland and did the tilt table test. At the last call we discussed vestibular disorder specialist (I have had tinnitus in left ear for 12 years and get some ear aches), ( I saw an ent specialist when I was diagnosed with labrynthitis who said all was ok.) . Now I have received a referral for an echocardiogram! No discussion just the referral.

The nausea has returned with a vengeance and every day the dizziness, fug, off balance is there all day ( worse when moving around). Some days I just don't know where to turn. My GP referred me as she had no ideas.

I try to stay positive but I really feel I can't go on like this.

I am now considering going private but what kind of specialist should I see.

I will be so grateful for Any thoughts or opinions.

 

Thank you

Fiona

 

 


ReplyQuote
Kathleen
(@kblitz)
New Member
Joined: 1 week ago
Posts: 2
 

Hi Fiona,

I can sympathize with you. I have had this problem for 2.5 years. I was beginning to think I was going crazy and maybe needed mental health.

Do you have neck pain also? When I had neck pain, shoulder pain, and pain in the occipital area, my dizziness and nausea were worse. 

It also got worse when I talked to people and nodded my head up and down or sideways... Which was a lot!

I went to several GPs, an ENT, eye doctors and finally went to a chiropractor(he didn't crack my neck, but used a stimulator tool). I was never a big believer of chiropractors, but after one visit, I felt better.. For a couple of days anyway. I continued to visit him for several weeks, had a couple of neck and shoulder massages, and went to Physical therapy (4 weeks)for neck exercises and vestibular exercises. I now do my neck & eye exercises twice a day and feel a whole lot better. Not perfect, but I will keep doing my exercises and hopefully soon, I can get back to normal. 

I would like to thank VEDA for as I was searching the web for my symptoms, they were the ones who lead me in the right direction. 

Hope this helps!

K


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