Hello,
My 22 year old son is having severe visual issues but no vertigo or balance problems whatsoever. He has been diagnosed with vestibular neuritis but it has been 8 months and although his vision has improved, it still is not back to normal. Has anyone here had only visual issues? He also does have ear fullness and "popping" constantly. We live in Rochester NY, he has been treated by a neuro ophthalmologist who says his actual eyes are healthy but that it is a vestibular issue, an ENT who disagrees with the VN diagnosis because there are no balance issues, and neurologist who sees his nystagmus and says it is vestibular. He tried vestibular therapy for 3 months with no improvement but had significant visual improvement with a 6 day course of prednisone. He also experiences the sudden return and worsening of all his symptoms when he gets sick, he was out of work for 10 days this last time when he got food poisoning. All immune system tests for MS, etc are negative - in fact all his blood work, imaging, etc are normal!?
I am so sorry to hear what your son has gone through, it sounds like he has been through a lot. As a vestibular patient myself I can certainly empathize with him. The first thing I can tell you is these disorders are very difficult to diagnose, he should continue to reach out to healthcare professionals until they can agree to a diagnosis. Then he could definitely get better guided treatment for his condition. You can learn a lot more about his condition by going to vestibular.org to educate yourself as you prepare to move forward. If your son needs support we have support groups that are online he could attend to help him better cope here is a list:
https://vestibular.org/article/coping-support/support-groups/
I hope your son can find some help real soon!
David…