Vesties’ Village

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Hello, I am 61 years old and I am nearing the second year of PPPD (or vestibular migraine, the ENT isn't sure and thinks maybe I have both).

I'm not sure what started this exactly, but I had two neurosurgical procedures in December of 2020 and January of 2021 to treat pulsatile tinnitus caused by a large dural arteriovenous fistula (DAVF)--an abnormal direct connection between arteries and veins in the lining of my brain. Pulsatile tinnitus (PT) is where you can hear your pulse in your ear, and the ENT could hear it in my ear as well. I had  dizziness that started in July 2020 with the PT, and after those neurosurgical procedures, even though the PT went away, the dizziness was worse. I keep wondering if my brain perceived all this as a trauma and reacted in some way with VM or PPPD.

The ENT put me on low-dose amitriptyline to treat the migraines, but it didn't do much and i started gaining a lot of weight, so I went off it. At that point, I foolishly decided I would just try to live with it and ignore it as much as possible, but a few months ago I realized that strategy wasn't working. I sit a lot because I don't feel very unbalanced when sitting in a chair, but I feel it when I am standing up and moving around. Gratefully, I can still work at a computer (so I can still work) and I can drive. It's when I am standing, moving around, or walking that I am dizzy. I kept telling myself "it's not that bad, just ignore it" but it was really limiting my life (along with my decision to do whatever I can to avoid any potential exposure to the COVID virus). I had started going for walks last winter, to try to manage this better, until I got an infected toe that wouldn't heal--it took three rounds of antibiotics, and it is still just starting to clear up. That felt like the last straw. 

So, a few months ago I started going through some anger and bitterness about this, and hit a low point. The "brain fog" is as frustrating as the unsteadiness/dizziness. At any rate, I discovered the "Life Rebalanced" videos this weekend and they are really helpful, and I wanted to thank whoever put those together.  

This topic was modified 2 years ago 2 times by SherriSLC