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The mystery of my symptoms 🤔

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Sonia
(@soniacn)
Eminent Member
Joined: 10 months ago
Posts: 27
 

@audreyjp

 

Hi Audrey!

 

So, the dentist doesn't think that my jaw is the cause of my dizziness but he does think that clenching my jaw is making it worse.  He is making me a sort of retainer to keep in my mouth at night.

Yes, 72 sessions is a lot and will cost me about $3,000 for the year of treatment.

During the first week of January I'll be meeting with a new optometrist who specializes in visually related dizziness.  She is actually on Veda's directory of healthcare providers!  I'm hoping she can prescribe some kind of lens that will help!

 

So, what does your osteo do during the session?  Is it like chiropractor work?

 

Best,

Sonia


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Audrey
(@audreyjp)
Eminent Member
Joined: 11 months ago
Posts: 29
Topic starter  

@soniacn Hi ☺️

So, your dentist doesn’t think that you have an occlusion problem ? 
You know, I’m not a doc but I learned a lot about the jaw and just a problem of clenched a jaw during the night can produce dizziness during the day. I hope you’re retainer will help you ☺️

 

Can you keep me in touch about your appointment in January with the optometrist ? I didn’t know that lens exists for the dizziness !

 

Osteo is like a chiro. I mean, they see the body in a different way but I saw a chiro and an osteo so I can see the difference, and I see none 😅 During my session, the osteo made some pression with his hands and fingers on my cervicales, jaw and shoulders to  try to relax the muscles and put things back in place.

You were talking about your neck, do you mean that you have a loss of cervical lordosis too ? Or more a reverse of lordosis ? 

I just wanted to tell you that during my ultrasound of the neck few weeks ago, the doc came on my thyroid and said that my thyroid was lazy. My ENT who is ask me to do a blood test and an ultrasound of the thyroid. During the ultrasound I did last week, they found 5 nodules on my thyroid. Including 2 which appear suspect. I therefore have to do a fine needle aspiration of the 2 suspect nodules in order to check if the nodules are benign or if it’s cancerous (knowing that 1 is classified by the radiologist at the highest level of suspicion). I did the fine-needle aspiration of the most suspicious nodule yesterday (on the internet everyone says it's not painful. But whaaaaat? I had great pain 😅). I have the result within 1 week or a bit more but I remain positive. In 95% of cases, the nodules are benign!

Audrey


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Sonia
(@soniacn)
Eminent Member
Joined: 10 months ago
Posts: 27
 

@audreyjp

 

Hi Audrey,

I'm sending you positive vibes about your thyroid test!!  I know you'll be fine, but please let me know when you get the results ❤️ 

Yes, my cervical lordosis is completely off!  The curve isn't there.... it goes straight across!  So, the chiropractor uses all of those crazy machines to realign the cervical spine.  

Here's the link to the optometrist who I will be seeing.  In this one page she explains the eyes, dizziness AND this special prism lens!  It's very interesting.  I really think you should take the information to a doctor near you and maybe this could help you as well!!!

Be in touch!!

Sonia


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Sonia
(@soniacn)
Eminent Member
Joined: 10 months ago
Posts: 27

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Audrey
(@audreyjp)
Eminent Member
Joined: 11 months ago
Posts: 29
Topic starter  

@soniacn Thank you for your support ! ☺️🥰 I’ll let you know the result of my exam yes. 

Thank you too for your share ! I knew about the prism of the glasses but on the lens is wow, lncredible 😅 I hope so much that this time, you’re gonna find your diagnosis. When is your appointment ? 
I went to an orthoptist to heal my Problem of convergence you know, and everything is ok now (binocular vision, convergence etc) - even if I still feeling dizzy. I think that If I had a problem and needed to wear a prism, he would told me. No ? 
I made the test on the link that you sent to me. I’ll see the result ☺️ 

Audrey (and really cool that you come from NY 😁)

 


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Sonia
(@soniacn)
Eminent Member
Joined: 10 months ago
Posts: 27
 

@audreyjp

 

Hi Audrey,

To be honest, I had completed the vision therapy program as well, and things were "fixed", for a short time.  I still felt dizzy even after I completed the vision therapy, and when I went back to check it again, it seemed that my eyes had gotten bad again.  I also have the convergence problem!

 

So, I heard that if your eyes are still causing a problem for your vestibular system (maybe causing vestibular migraine) then you might need corrective lenses with the prism.  My appointment is January 4!  It's expensive but I hope it's worth it!!

 

Sonia


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Audrey
(@audreyjp)
Eminent Member
Joined: 11 months ago
Posts: 29
Topic starter  

@soniacn

Hi ☺️☺️

According to my osteo and dentist, my convergence problem comes from the muscle of my jaw (because of my problem of occlusion). So I’m gonna do the treatment which was proposed by my dentist and I’ll see if I have result after few months. If I’ll still feel dizzy, I’ll try to find an optometrist who can see if I’m suffering from a « chronic » binocular disorder. 

I can’t wait to hear your news about your appointment in January  ☺️ Did you do the test on the link that you sent to me ? To know if you can have a binocular disorder. My score is 25/75. 

Audrey 


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Audrey
(@audreyjp)
Eminent Member
Joined: 11 months ago
Posts: 29
Topic starter  

28/75*


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Sonia
(@soniacn)
Eminent Member
Joined: 10 months ago
Posts: 27
 

@audreyjp

 

Yes, I did the quiz online and they called me right away haha.  I don't remember the score but it was something in the 60's/75.  I'll definitely let you know how it goes.

 

That's so crazy that your jaw is causing such a problem but I'm so glad that you're closer to finding a "treatment", whatever that may be!  I feel hopeful for you!!!

 

Sonia


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Audrey
(@audreyjp)
Eminent Member
Joined: 11 months ago
Posts: 29
Topic starter  
  1. @soniacn

Oh thank you, you’re so kind ! I’m sure you’re on the good way to find what you have too. 

Outch your score is really high ! It definitely can be your eyes the problem ! As you think since the beginning. Can I ask what is the price of your appointment in January ? I suppose that it’s gonna be a check up. 
Just because I’m curious and I like to have different point of view, I asked the neurovisual center of NY if my dizziness can comes from my jaw and they say no. I asked too if they know a neurovisual optometrist in France and they said that there is none. But I made my research and I found some. (I’m gonna take an appointment to do a checkup when all of my thyroid stuff will be done).
I’m still thinking that everything comes from my jaw. It’s so logical : the main problem of my jaw is on the left side and all of my symptoms are on the left side, as you know. And I have a confirmation from different doctors that my jaw can be the problem of everything. 

It’s really complicated for us to find a diagnosis because when I’m looking well, soooooo many problem/diseases can give us all of our symptoms (Neurological, eyes, ear, cervical, thyroid, vitamins etc etc etc).

But you’re on the good way, that’s for sure ! I’m feeling that you’re gonna find out the mystery of your symptoms  really really soon 😊

Audrey 

This post was modified 9 months ago 2 times by Audrey

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Audrey
(@audreyjp)
Eminent Member
Joined: 11 months ago
Posts: 29
Topic starter  

I forgot ! During your session for your convergence, did you do this exercise : at a distance of at least 5 meters, you look at a light point (as in the picture) and the optometrist passes in front of one eye a kind of rules with different prisms?


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Sonia
(@soniacn)
Eminent Member
Joined: 10 months ago
Posts: 27
 

@audreyjp

 

Hi Audrey,

 

Yes, another optometrist did that prism test and she prescribed a certain prism lens.  BUT I didn't get the glasses yet since I'm waiting to go to the neurovisual center of NY first.  The visit will be two hours and will cost $500, but I've been told that insurance will reimburse some of that (hopefully!).  

 

You will get your thyroid results back next week right??

 

I also read that for us women, our hormones and period cycles can greatly affect our dizziness.  Veda has an article about which days of our cycles cause our hormones to be at the highest levels.  I'd like to try and see if I notice more symptoms at that time.  Also, for me I notice much more dizziness right before a big change in weather!  Have you noticed that at all?

 

-Sonia (and cool that you're from France!!)


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Audrey
(@audreyjp)
Eminent Member
Joined: 11 months ago
Posts: 29
Topic starter  

@soniacn Hi ☺️

Oh ok, so if the optometrist prescribed you a prism, it confirmed that your problem comes from your eyes. I suppose. 
During my sessions with the optometrist, he made me some exercises with the light and the prism rules. At the beginning, my left eye was squinting rapidly. But in the end, my eye only squinted at the last prism. My optometrist told me it was very good because a "normal" person usually squints at the last prism (or not at all, it depends). At the last session he also did different exercises to see if the convergence was good and it was. When I came the first time, he told me that my convergence problem was really slight and that a few sessions would be enough. I made 10.

I have my results for my thyroid, well for the first nodule, next week normally yes. But because of the  covid, results can be delayed. I return there Tuesday to do the fine needle aspiration of my second suspect nodule. I will ask them if they have the results of the first nodule and if they sent it to my ENT. If so, then I will send her an email. It is "stressful" (although I remain very optimistic) that the results are sent to the doctor, and not to us.

Hmmm I admit that I never really paid attention If the dizziness was more present during a change of climate. But I know the atmospheric pressure plays a big part in it. I have read that people with vestibular migraine were very sensitive to atmospheric pressure. Even people who don't have one. For example, my mother often has a headache when the air pressure is low. Same for me and my sister.
And it doesn't surprise me that some people experience more dizziness during their cycle. It seems to be a premenstrual symptom for some people.

It's stupid but I thought that in US, medical care was not reimbursed.


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Audrey
(@audreyjp)
Eminent Member
Joined: 11 months ago
Posts: 29
Topic starter  

However, I noticed something. When I am at my boyfriend's apartment (I live with him), I feel dizzy all day. We live in a very small apartment of 30m2 (there are no bedrooms. Just a large room). The apartment is therefore small for two and there is no light. But when I go to my parents' house, or to someone else's, I’m feeling sooooo less dizzy. I think that psychologically, being in my boyfriend's small apartment makes me dizzy. The problem of brightness plays a big role I think too


Mr. Antonio Da Conceicao Nascimento Jr. PT
(@antoniocn_juniorhotmail-com)
New Member Professional Member
Joined: 8 months ago
Posts: 1
 

@audreyjp

Hi,

Boa tarde. Quando vi seu depoimento aqui lembrei-me da minha filha. Ela tem 5 anos e desde os 2 anos de idade percebemos algumas alterações comportamentais. Daria para escrever um livro, mas tentarei ser sucinto.. Depois de muitas consultas com diversos profissionais diferentes, tivemos uma resposta da Neuropediatra. Diagnóstico de Síndrome do Processamento Sensorial. Trata-se de uma desorganização do Sistema Nervoso, na qual, toda informação que chega por todas as vias sensoriais do nosso corpo (proprioceptiva, visual, auditiva, vestibular), não é processada de forma correta pelo cérebro e isso acarretava em muito choro, irritação, tontura, dor e sofrimento por parte da criança. Isso é muito evidente em crianças com diagnóstico de AUTISMO, no entanto, qualquer pessoa pode apresentar essa síndrome.

Após o diagnóstico libertador, passei a ficar mais atento às reações comportamentais da minha filha. Percebi também que lugares muito fechados e brinquedos em parques de diversão que tenham muita informação (altura, variação de cores, alta velocidade) causa repulsa nela.

Resumindo, estudo regularmente sobre o assunto e percebo que existem muitos adultos que desorganização sensorial que não foi tratada na infância a podem sofrer com determinadas situações desafiadores para o seu cérebro. Não existe uma "cura", mesmo porque não se trata de uma "doença". É uma condição neurológica que pode ser tratada. 

Espero ter ajudado e desejo sucesso na caminhada de vocês.

 


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