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The mystery of my symptoms 🤔

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(@audreyjp)
Active Member
Joined: 3 years ago
Posts: 28
Topic starter  

@soniacn 

hello Sonia!

Great, I hope the glasses will help you. As well as electro  acupuncture. Do you already see a little improvement or is it too early?

I'm fine thank you ☺️ I received the results for my thyroid. No cancer !! I am relieved. But my  nodule on the right is still suspect. It will have to be examined again in a few months and I will have to take a drug which causes the thyroid to produce less hormones and because of this, the nodule does not grow (a nodule "feeds" on thyroid hormones to grow). If it grows, it is possible that the nodule becomes malignant. So if I understood correctly, I was diagnosed in time ☺️ The drug is the one given to all people who have thyroid problems. It's going to lower my heart rate. Maybe this will help me with dizziness (because my heart often beats hard and fast without any explanation - but it can be from the thyroid). I hope it won't amplify the dizziness anyway 😅

Audrey 


   
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(@soniacn)
Active Member
Joined: 3 years ago
Posts: 27
 

@audreyjp

 

Hi Audrey,

I'm so glad that your thyroid is being thoroughly checked!  That's so important.  But I'm glad that so far your results are showing that there is no cancer!  That's great!!!

I'm actually seeing a new ENT next week, and I will have my thyroid checked by an endocrinologist the week after that.  The electro-acupuncture has helped with the headaches, but I am also doing sessions with the chiropractor two times a week, so that might be helping with the headaches as well.

I got the new glasses!  I actually just started wearing them last night.  They still feel a bit "weird" to wear, like my eyes need to adjust to them.  But I heard that's how it is with the prism.  I just hope they help!!!

 

Sonia


   
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(@audreyjp)
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Joined: 3 years ago
Posts: 28
Topic starter  

@soniacn

Hi Sonia ☺️

I hope you’re well. So sorry I totally forgot to reply 😭😭

Thank you for your kindness ☺️ I started my medicine for my thyroid. I’m really really tired. But I don’t know if it’s because of this medicine or something else ☺️ I‘ll see the result of my blood analysis that I have to do 1 month after the first take of my medicin. 

Sooo what about your thyroid and your appointment with your new ENT ? And what about your glasses ? Does it help you ? 

For my jaw, I have some exercices to do and it helps me relieve muscle tension. And I’m doing exercises to replace my jaw and my tongue naturally (because my jaw is basically too tight - without my teeth touching - and my tongue at rest is not on the palate, it is placed against the teeth, which is not good)


   
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 smca
(@stuart)
New Member
Joined: 2 years ago
Posts: 2
 

@audreyjp ...have been reading your symptoms and conversation back and forth...I have had cerebellum tumors, with radiation necrosis to cerebellum, gives me visual disturbances and balance problems...but the brain can rewire itself, and if oxygen to the brain is the problem, hyperbaric chamber helps heaps, it costs, but getting over these problems you will do almost anything....I did it and it helped me heaps, also did vestibular physiotherapy (takes a while)...not a doctor, but docs will not even recomend this treatment that helps...good luck you two, hope you get rid of the dizziness, its a curse. note also if your balance is off (inner ear) your vision will compensate (mine did) does not work well in poorly lit rooms, not at all in the dark....


   
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Sea-ing
(@sea-ing)
Active Member
Joined: 2 years ago
Posts: 11
 

@Audrey @Sonia

Reading through your exchange I saw so much of my own experience. I've been diagnosed with chronic vestibular neuritis starting with a sudden hearing loss. I also have strabismus which is uncorrectable at this point and which I believe is impacting my brain's ability to compensate. Have the prism glasses helped? 


   
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 Dee
(@medee)
Very Active Member
Joined: 2 years ago
Posts: 650
 
Posted by: @stuart

@audreyjp ...have been reading your symptoms and conversation back and forth...I have had cerebellum tumors, with radiation necrosis to cerebellum, gives me visual disturbances and balance problems...but the brain can rewire itself, and if oxygen to the brain is the problem, hyperbaric chamber helps heaps, it costs, but getting over these problems you will do almost anything....I did it and it helped me heaps, also did vestibular physiotherapy (takes a while)...not a doctor, but docs will not even recomend this treatment that helps...good luck you two, hope you get rid of the dizziness, its a curse. note also if your balance is off (inner ear) your vision will compensate (mine did) does not work well in poorly lit rooms, not at all in the dark....

Stuart, how are you now? How many sessions of HBOT did you do? Are you well now?


   
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(@stuartmcalpine)
Active Member
Joined: 2 years ago
Posts: 5
 

@medee Hi thanks for your reply...have done about 20hrs one week plus another 20 hrs (this was probably a year ago now)....The spining world has gone for me, my vision fixed up (to start 2 years ago,every time I moved my head the world spun,I was ready to end it) but I still always feel unbalanced (drunk) never goes away...my docs did a craniotomy took a sample and said it was radiation necrosis (2 yrs ago,but I dont believe it is as my symptoms were a direct correlation with immunotherapy giving me massive headaches (and I think id be dead by now) (which turned into my spinning world) my oncologist ignored it and gave me opiates (and just keep telling me I was supposed to be dead by now )...I am getting better,I can think now (before I could not hold one thought)..but still unbalanced,and no memory and find it hard to do things in correct order (spacial relational things are confusing now,use to be really easy for me)...I have and am still doing vestibular excercises...mine was melanoma head and chest,which is gone for now...yes walking in the dark is very not good.....how do you know yours was radiation necrosis?...how often have you done hbot in the latter stages,how did it help?......thanks again for texting,starting to think no one else has had  the necrosis diagnosis and lived.....  


   
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(@audreyjp)
Active Member
Joined: 3 years ago
Posts: 28
Topic starter  

@danielb Hi ! Sorry for my last reply, I didn’t see your answer. What type of exercises are you doing with the physio ? Thank you 


   
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(@heatherlberlin)
New Member
Joined: 2 years ago
Posts: 2
 
Posted by: @iwas

Hi Audrey,
I feel so sad about the situations that you are passing through. I can understand the difficulties that you are facing now as my sister had a similar situation with some of these symptoms a couple of years ago. She consulted many doctors but could not find a super solution for the problem. Then https://www.erinmillshealth.com/services/chiropractic-services /" target="true">visited a chiropractor who is a friend of our father, and started treatment under him. There was a pretty big difference in her health and continues the chiropractic. She is healthy now. But she continues the chiropractic care as it could improve the quality of life. So I would recommend that it will be better to consult a chiropractor and he could start appropriate treatment for all your health issues.

Hey, I also have a similar experience in my mother's case; she also has these symptoms and is troubled with them. During that time, my friend suggested this chiropractic treatment for my mother. At first, I didn't believe it, but it worked; after a few sections, I could see considerable changes in my mother's health.


   
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 Dex
(@dexteroakley)
Active Member
Joined: 1 year ago
Posts: 5
 

@sea-ing Vestibular neuritis is a condition that distracts all our functioning systems of the body. I can't even imagine the time when I went through it. Vertigo was my main problem, and I also suffered from nausea and fatigue. The physical therapy treatments help me recover from my problems like poor vision, vertigo and postural stability. But I dont have any idea about the prism glass, better some other member may know about this.


   
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(@betty1)
New Member
Joined: 1 year ago
Posts: 1
 

Hi, I am new member and live in the UK. Here is my story. Approx 18 months ago i woke up one day unable to stand. Diagnosed with acute vertigo and could not stand or walk for one week. I was on Betahistine meds for the vertigo and encouraged by doctor to walk. I was off work for 3 months and shortly after the Vertigo started something happened to my eyes and i had double vision in one eye. Over the last 18 months i have seen countless physicians , ENT, NeuroOpthalmologist, Vestibular Physiotherapist for rehab, and im sure my optician must hate me the amount of times i have asked him to change my Prism in my glasses from 1.0 to none to 0.5 and currently 1.0 Diopter again.

I am currently off work again with debilitating dizzyness, vision problems especially with laptop and lack of spatial awareness. I am currently taking Cinnarizine as of today and hope this is effective. 

i believe all this is due to inner ear problem with my left ear and i cannot describe the effect it is having on my life. I am worried about work and feel like i have been bobbing between different people and no one person has ever said this is the issue and this is how we fix it.

my right eye feels like its crossing over into the field of vision of my left eye. This happened while i was out walking in the early days after the vertigo. I have been told that this is vertical heterophoria and i was born with this and up until the VN my brain compensated for this creating one vision to look at. However following the VN my brain is being used to stay upright and balance and thereofre cannot stretch to compensating for my eyes too. Sp essentially my ear problem with the vestibular nerve is causing massive problems with my eyes.

if anyone has any advice please help, Many thanks in advance

 

 


   
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 VN
(@rashmi)
New Member
Joined: 1 year ago
Posts: 1
 

@betty1 Hi Betty - my symptoms were simillar to yours, my first vertigo attack happened on june 15 2022, I had severe vision problems, fortunately 2 days later I had an appointment with a physiotherapist that proved more helpful than any of the doctors and specialists. I stopped all meds after 2 days since they just worsened the situation. Its not an eye problem. I bounced around from one specialist to another but thankfully the physio was going on in parallel.

What has worked for me is meditation and breathing exercises, as well as 2-3 time a week physiotherapy(PT) to retrain my brain to balance. First 2 weeks was all about correcting the eyes (which used to jump just like you described), those have reduced significantly since. 

Reducing stress (work, people at home that might cause aggravation etc) also helped. There was direct correlation this.

I still have imbalance, visual and cognitive issues that I am working with my PT, Peggy Kirk.

She is a true miracle worker!

hope this helps.


   
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mattpobrien4
(@mattpobrien4)
New Member
Joined: 2 years ago
Posts: 4
 

Thank you for sharing your experience and the strategies that have worked for you in managing your symptoms. It's great to hear that you found a physiotherapist who was able to provide effective treatment and that you have found relief through meditation, breathing exercises, and stress reduction.

It's also important to note that every individual's experience with vertigo can be different, and what works for one person may not work for another. However, your experience may be helpful for others who are experiencing similar symptoms and are looking for ways to manage them.


   
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