As a child, I didn’t know what to call the visual distortions and got labeled psychotic. For years, I was given drugs for that. They didn’t help, which only confirmed my craziness.
That was in the 1960’s and 70’s. In the 80’s and 90’s, they figured I had some neurological problem and that partial seizures must be what was wrong, so I took anti-convulsants.
In the early 2000’s, I moved to a small town, and the lack of sensory stimulation allowed me to work and pass for normal until, for reasons I don’t understand, I wasn’t OK at all. Maybe it was stress or old age or a worn-out cervical fusion, but I fell and ended up in the local clinic. First, they said it was BPPV, but it didn’t get better, so they did an MRI and sent me to a neurologist.
Neurology has come a long way in the last 70 years. I was told I have central vertigo probably since childhood, oculomotor nerve palsy also since childhood, and vestibular migraines. I was given verapamil and told to go to VRT (vestibular rehabilitation therapy). That has helped some.
I’m starting to accept how things are now and am learning to go slowly and do my best with whatever I’ve got left. Somehow I found this site and realized I’m not alone. That’s huge.