Patient Spotlights

The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

My Meniere’s Journey

My symptoms started before 9/2017. One I used to get car sick as a kid. I used to get sick on rides at the fair. I used to have migraines with vertigo and vomiting as

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Navigating the Dizziness: Vestibular Chronicles

I was 20 years old when my entire life changed. I had just been in a serious car accident and within a few months my symptoms started to affect me. I was working late shifts

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Bilateral Vestibular Loss likely caused by genetics

My current symptoms: I lack balance and coordination and often feel a disconnect between my head and my surroundings, even when sitting still. My vision is very unstable while moving; my eyes do not focus

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A learning experience with a silver lining.

I am excited to meet you and be a part of the VeDA family. Vestibular migraine has impacted my life in several ways. My life before vestibular migraine was full of public speaking, writing for

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Our Family’s Meniere’s Story

This is the story of how our journey with vestibular disorders (Meniere's and Vestibular Migraines) began. It is my husband who has the diagnosis but we are in this together. Here is the story: Let

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Life threw a curveball my way, but I am better for it today

I am a proud migraine patient. My migraine story goes back several generations. But I didn't realize this until I was struck seemingly out of nowhere with chronic dizziness after a long distance family drive

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Just starting this journey…

Hey everyone. I was just recently was released from my 2nd hospital stay. I am currently undiagnosed, but the doctors and neurologists think I have some sort of vestibular balance issue. All my tests (CT,

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Vestibular migraine

I had surgery this week and I wanted to give an update on how it affected my vestibular symptoms.Afterwards I had no dizziness, vertigo and no VM symptoms. Before my surgery I ate very healthy

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Change comes unsolicited and I have to roll with it.

My journey started at age 27 in 1986. I had an emergency medical procedure following a miscarriage. When I got home to my 3 year old daughter and husband the migraines started. My first diagnosis

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A journey that was and is never ending

This is a long story of a journey into a world of the unknown, which I am still very much on, and one that nobody ever expects to experience. It’s Jan 22, 2023, and we

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Finding Support After Hearing Loss

I was born with a 55% hearing loss in my right ear. I was always told I needed to take care of the hearing in my left ear. I found that a little humorous because

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My service dog, Bear

I am a 69 yr old widow. I stared many years ago loosing my balance here and there. As an equestrian all my life I was called Calamity Jane by my riding friends. I was

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