Karen Alexander

Find your new normal, and make the best of it!
Secondary Endolymphatic Hydrops (SEH)

In November 2014, I was waiting for a red light to change when I was rear-ended by a vehicle traveling at a high rate of speed. There was minimal damage to both vehicles, so I drove home.  After dinner, I was watching television, and I felt strange; nauseous with a headache. I was having a hard time following the program, so I thought I was still shooken up from the accident.  I decided to go upstair to read, and when I read the same sentence 5 times, and could not understand it, I knew there was a problem.  My husband took me to Urgent Care, where they diagnosed me with a concussion.  


Three weeks later, I was still sleeping 15-18 hours a day, so my husband was worried.  I made an appointment for my Primary Care Physician, and he sent me to a specialist.  The specialist then sent me to cranial therapy, speech therapy and neuropsych testing.  Eventually they also added occupational therapy and physical therapy. During speech therapy, the therapist noticed I was having a difficult time hearing low range sounds, such as my phone vibrating. I also noticed I was unable to hear my oldest son speaking, if he was on the side where my ear sustained the most damage.  After preliminary testing from my speech therapist, and a test from an audiologist, I was sent to an ENT doctor. She was unsure why I was continuing to have dizzy spells, and problems scanning shelves, etc.  She referred me to the Michigan Ear Institute.   I completed another round of audiology tests, and the initial diagnosis was Post Traumatic Secondary Endolymphatic Hydrops.  He perscribed a low sodium diet, and a water pill.  There was further VNG testing which ruled out other causes of the imbalance and dizziness.  It took 7 months to be diagnosed, and many of the symptoms of my vestibular disorder I thought were from the concussion.  I have symptoms from mildly annoying to debilitating every day and I am still trying to figure out my triggers.  So far they are: stress, sodium, focusing, too much caffeine, too little caffeine, getting upset, and lack of sleep.    

What matters to you? 


Help VEDA improve our services by participating in our Community Survey. 

Take Survey No, thanks