Ambassador Toolkit
Thank you for joining the VeDA Ambassdor Board and raising awareness about vestibular disorders in our local and online communities! Here are some tools that you can use to set goals and share information. Questions?
Links to External Resources
VeDA provides links to other websites that may be useful for vestibular patients and professionals as a courtesy. If you know of a resource you think would be useful to add, email us at [email protected].
- Government
- Patient Advocacy Organizations
- Professional Associations
- Professional Certifying Boards and Resources
- Professional Journals
- Disability Resources
- Bloggers
- Social Media
- Books
- Other
Government
- National Inst. on Deafness and Other Communication Disorders
- National Institutes of Health
- National Library of Medicine
- Medline Plus – Dizziness & Vertigo
- PubMed
- National Temporal Bone, Hearing, & Balance Pathology Resource Registry (temporal bone donations for research)
- Social Security Online
- Medicare
Patient advocacy organizations
- Acoustic Neuroma Association
- American Autoimmune-Related Diseases Association
- American Tinnitus Association
- Association of Migraine Disorders
- BC Balance & Dizziness Disorders Society (British Columbia)
- British Tinnitus Association
- Canadian Hearing Society
- Global Autoimmine Institute
- Hyperacusis Network
- Hyperacusis Research
- Invisible Disabilities Association
- Landsforeningen for Vestibulaere Skydommer
- Mal de Debarquement Balance Disorder Foundation
- Ménière’s Society in Denmark
- Ménière’s Society in Germany
- Ménière’s U.K.
- Patient Advocate Foundation – helps chronically ill patients navigate health insurance to access care
- Patient Services, Inc. (PSI) – helps chronically ill patients with premiums & copayments
- SCDS (Superior Semicircular Canal Dehiscence) Society
- The Royal National Inst. for Deaf People (United Kingdom)
- La Asociación Síndrome de Ménière España, ASMES
- Quinism Foundation
Professional Associations
- American Academy of Audiology
- American Academy of Otolaryngology—Head & Neck Surgery
- American Laryngological Association
- American Neurotology Society
- American Osteopathic College of Otolaryngology
- American Physical Therapy Assoc. Neurology Section Vestibular Special Interest Group
- American Physical Therapy Association (APTA) of Maryland
- Association for Research in Otolaryngology
- Association of Chartered Physiotherapists Interested in Vestibular Rehabilitation (ACPIVR)
- British Association of Audiovestibular Physicians
- Canadian Academy of Audiology
- Society of Otorhinolaryngology—Head-Neck Nurses
- Society of Physician’s Assistants in Otorhinolaryngology – Head and Neck Surgery
- Australian Society of Otolaryngology – Head and Neck Surgery
- European Laryngological Society
- International Federation of Oto-Rhino-Laryngological Societies
- Prosper Menieres Society
- College of Optomotrists in Vision Development (COVD)
- Neuro-Optometric Rehabilitation Association (NORA)
Professional Certifying Boards and Resources
- American Board of Otolaryngology
- American Board of Medical Specialties
- American Board of Neurological Surgery
- American Board of Ophthalmology
- American Board of Physical Medicine and Rehabilitation
- American Board of Psychiatry and Neurology
- American Medical Association
- Federation of State Medical Boards
Professional Journals
- PubMed (search engine for research publications)
- Journal of Vestibular Research
- Journal of Neurologic Physical Therapy
- Neurology
- American Journal of Otolaryngology
- Diagnosis – The Society for the Improvement of Diagnosis in Medicine
- JAMA Neurology
Disability Resources
- Disability.gov
- Social Security Administration – Main Website
- Social Security Administration – Benefits for People with Disabilities
- Social Security Disability Benefits Calculator
- Social Security Administration – FAQ: How to Apply for Social Security Benefits
- Computer Accessibility – Microsoft, Apple
- Dogs for the Deaf
- Service Dog Project
- Financial assistance for service dogs (article)
- Everyonesinvited (accessibility consulting for events)
- Bestcolleges.com (explains your legal rights as a student with disabilities)
- GoodCall: Accessibility Guide to Paying for College for Students with a Disability
- Home Remodeling for People with Disabilities (with links to federal resources). See also, Fully Accessible Guide to Smart Home Tech for the Disabled and Elderly
- Using the Internet for Seniors – A Beginner’s Guide (also helpful for vestibular patients)
- Senior Planner – free assistance to seniors and their families regarding elder care and housing options
- Coupon Chief – a guide to discounts for people with Disabilities
- Chronically Capable connects the chronically ill with meaningful remote work and flexible employers
Patient Blogs & Vlogs
- The Dizzy Traveler, with Arthur Wooten
- My So Called Dizzy Life
- Meniere’s Journey
- Mind Over Meniere’s
- Rewiring Tinnitus – offers fee-based coaching services
- Living With…by vestibular patient, Rupal Rajani
- Mummy Seeing Double – Welcome to My Dizzy World
- Dizzy Yoga
- Children’s Vestibular Disorders Association
- The Dizzy Cook
- True Kaylaisms
- Bliss Out – offers fee-based wellness coaching and holistic nutrition consultations
- No Fear, No Dizziness – offers fee-based coaching services
- Viking Wanderer – How I recovered from vestibular migraine
- The Wobbly Writer
- Through the FibroFog
- New Life Sparrow (PPPD)
- Life Without Land Legs (MdDS)
Social Media
Books
Here is a list of books that members of the vestibular community may find useful. It is by no means comprehensive, and we encourage you to visit your local or online book retailer for a more publications.
Other
- XpertDox: a resource for finding doctors for rare or serious conditions
- The Mighty: Read stories about people living with a vestibular disorder.
- A Comprehensive Guide to Hearing Loss