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Possible vestibular hyperacusis; looking for a diagnosis  

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Mindy Kahn
New Member
Joined: 4 weeks ago
Posts: 1
31/10/2020 8:34 am  

Anyone else living with a vestibular disorder?

This topic was modified 3 weeks ago by Cynthia Ryan
This topic was modified 7 hours ago by Cynthia Ryan

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David Morrill
Moderator
Joined: 3 months ago
Posts: 4
04/11/2020 3:01 pm  

Hi Mindy,

      I am also living with a vestibular Disorder, is there anything specific you would like help with or are you just looking to share information. Let me know if I can help or answer some of your questions.

 

David 


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Nicola
New Member
Joined: 2 weeks ago
Posts: 2
12/11/2020 7:00 am  

Hi David

I have the following symptoms when in busy bustling areas and/or noisy (not volume but too many sounds or people talking).

nausea (have thrown up)

dizziness

tight feeling in my chest

diarrhea

anxiety

I had an OH meeting through work and she thinks I have vestibular hyperacusis but I don't think this can be diagnosed?  I need a diagnosis to help me move (I rent from a housing association) to a quieter place.

I work full time but now work from home mostly, so that does help.


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David Morrill
Moderator
Joined: 3 months ago
Posts: 4
12/11/2020 9:35 am  

@nicolaking

Hi Nicola,

Those symptoms you have described all are constant with patients with a vestibular disorder. There are two very important steps that I always tell people with vestibular disorders. One continue to seek a correct diagnosis and two educate yourself as much as you can. Both of these tasks are talked about at vestibular.org. In the meantime try and find coping methods to help navigate your day. VeDA has support groups in person and online if you need further support. Keep pushing forward and let us know if you need anything.

David

 

 

 

 


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Chas de Geofroy
New Member
Joined: 2 weeks ago
Posts: 2
12/11/2020 12:36 pm  

@wolf1476


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Chas de Geofroy
New Member
Joined: 2 weeks ago
Posts: 2
12/11/2020 1:01 pm  

Hi,

    I have been dealing with Menuires disease for around twenty years my father had it as well before he passed away he was falling a lot something I have been dealing with within the last 6 years. I have been a surfer since I was 13 and that has become more and more difficult to try and do. A couple of years ago I fell while surfing over a reef in Costa Rica after a bout of rapid onset vertigo and broke my hand. I have had some other close calls I almost cracked my head open on the steel bucket on my tractor after becoming dizzy.

   There are so many triggers that set off my vertigo allergies tend to set it off flying in planes driving in the Mountains the changes in elevations, visual patterns, stress more than I care to mention. Brain fog is a real problem with Menuires days when I am dealing with an attack I have a lot of trouble getting organized. I do feel fortunate that my situation is not any worse than it is some people have this disease so bad they stay in bed for days occasionally I get a severe attack and stay in bed for days it's not a fun thing to deal with if I can help anyone I hope I can. Chas.


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Cynthia Ryan
VeDA Staff
Joined: 10 months ago
Posts: 19
25/11/2020 6:42 pm  

@nicolaking

There are tests that can determine if you have hyperacusis - see this article.

As David mentioned, your symptoms are common among vestibular patients, but may also be due to another cause. Have you consulted with a vestibular healthcare specialist? You can use VeDA's vestibular provider directory to find one near you. You might also start by going through VeDA's new patient toolkit. Learning more about the different causes of dizziness can help prepare you to talk to your doctor and get the answers you need. Feel free to contact VeDA directly at [email protected] for one-on-one help and additional resources.

This post was modified 7 hours ago by Cynthia Ryan

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