Vesties’ Village

Notifications
Clear all

should I avoid things that increase symptoms?

3 Posts
3 Users
0 Reactions
1,234 Views
(@stephclogs)
Active Member
Joined: 2 years ago
Posts: 2
Topic starter  

I am undiagnosed so I don't know if anyone can answer this, but -

Some things (like physical exertion) increase my symptoms of lightheadedness and head pressure. I love to dance but it makes me feel worse for a while, from an hour to a couple of days afterward. My question is, am I causing my condition to continue or worsen by doing activities that increase my symptoms? Or, is it like 'exposure therapy' where doing these things might actually improve my overall long-term condition?

Thanks for any thoughts! I still have a over a month before I can see a specialist so I'm kinda making things up until then. 🙂 I have been doing physical therapy exercises for 16 months but they don't seem to have any effect any more.


   
Quote
(@john1644)
New Member
Joined: 1 year ago
Posts: 2
 

My problem started 2005.  I was losing my  balance.  It took me 12 years and many doctors to get the correct

diagnoses.  The first 2 diagnoses  and doctors were wrong.  Finally found a competent doctor in 2017.  He did a complete

examination and in March 2017 he told me I had Bilateral Vestibular Loss.  He sent me to physical therapy which was a waste of time.

Between 2006 and 2022 I  had many physical therapy sessions which were  also useless.  I learned there is no cure or treatment

for Bilaterial Vesibular  Loss.  I sit most of the day to avoid falls.  I transport to appointments using an electric scooter furnished

me by the Veterans Administration.   

There are trials being conducted at Johns Hopkins Medical Center called Multiple Channels Trials.  I think these trials have be

ongoing for the past 10 years or so.  They have a few people now walking in the program.  However, I beleve  I will be long dead

before the device is prefected for wide useage......  Anyone having balance problems consider 'Vestibular' as a possible cause.

I've learned doctor's are not well versed on 'Vestibular'.   That's my situition for the past 18 years......

This post was modified 1 year ago 2 times by John S. Bryant

   
ReplyQuote
(@libbyboyd)
Active Member
Joined: 1 year ago
Posts: 40
 

Although I am not a medical specialist, I can assume that your situation may be related to the body's individual response to physical activity. In some cases, increased symptoms may be temporary and may be due to your body adapting to the stress. However, if you notice that even after a long time of exercise there is no improvement, it may be worth discussing it with a medical professional to find out the reason and find the best solution.


   
ReplyQuote