@nresearcher that's wonderful news! He said this is curable, we just have to be patient. Does this mean curable with treatment or curable without treatment as well?
@nresearcher here is a German article link that mentions the Marburg post vax treatment. It's in German so need to run it thru Google translate or another web translator -
They apparently are booked rest of this year with 800+ patients signed up. From another forum, a German that knows people who have went said they are being given statin (rosuvastatin 10mg), blood pressure med regardless of their BP (candesartan 4mg), vitamin D, and low histamine diet. The guy said he's signed up to go next month to clinic so following to learn any more details.
Thank you for posting this article. Found this part of interest:
"Patients who suspect they are affected by post-vac syndrome can contact the interdisciplinary long-COVID outpatient clinic at the University Hospital Giessen and Marburg (UKGM). Four to six patients are examined every day, another 800 are waiting for an appointment, reports Prof. Dr. Bernhard Schieffer, Director of Cardiology at the University Hospital Marburg. With regard to the post-marketing report by BioNTech/Pfizer, he assumes that around 25,000 people will be affected throughout Germany. He is convinced that the vaccine unmasks an infectious, immunological or genetic predisposition of the immune system and acts as a trigger for some of the most severe symptoms: "The vaccination triggers something that was already latent. We want to understand why the immune system in these people has 'turned the wrong way' – an extremely exciting interdisciplinary field of research."
According to his team, autoantibodies play a crucial role in post-Vac syndrome. It is therefore a matter of first identifying the autoantibodies and recording which organ functions are disturbed. Some autoantibody groups are associated with muscle weakness, others with cerebral symptoms or problems of circulatory regulation.
Particular attention is paid to autoantibodies against the ACE2 receptor (ACE2), to which the spike protein of the coronavirus docks. This protein can either enter the body through an infection or be replicated in the body using the mRNA vaccine. "Depending on how the blood pressure-activating enzyme is preactivated, each body reacts with other immunological processes," explains Prof. Schieffer.
With a view to patients like Elisabeth Schneider, he emphasizes: "These people are really sick." The mere fact that he and his team acknowledge the disease value of the symptoms provides relief to those affected. After all, most of them have already completed an odyssey of six to eight months before they find their way to the UKGM outpatient clinic.
As the first therapy, the administration of cholesterol and blood pressure lowering drugs, vitamin D plus a special diet has proven itself. "The control loop via the ACE2 receptor is thus broken, the inflammation and the associated endotheliitis decrease," reports the cardiologist. He wants to encourage his patients: "Post-Vac is curable, even if you have to be patient.""
For those with high blood pressure post-vaccine, I wonder if the diet they recommend includes factors found to lower blood pressure (reducing caffeine, salt, sugar, saturated fat...; increasing omega-3 fat (salmon...), green leafy (and other) vegetables, legumes, other foods high in magnesium, potassium, etc...). Would be interesting to find out more details about their program and how they came up with the plan.
If dietary and other lifestyle measures could support recovery, maybe in addition to some over-the-counter/common supplements and/or medications, maybe that could avoid the need for a stronger medication such as Maraviroc, although Dr. Patterson does seem to think it is quite safe.
There appear to be several plausible theories behind vaccine reactions at this point. Hope Dr. Schieffer and Dr. Patterson publish some results soon so those with vaccine reactions could maybe show the published studies to their doctors.
What over the counter supplements and or medications are those ? And diet ?
I'm sorry again I haven't been on for a while; electronic use was a big trigger for me. I'm ten months in, double Pfizer (June 26, 2021) and I'm starting to make a decent recovery. I thought this day would never come because everyday new symptoms would show up and I thought I'd be a goner soon and then one day I woke up and started to have more good days than bad. Eventually, you learn your triggers and avoid them so your body can heal. Where do I start... I eventually stopped everything. It was hard to tell what was helping and what wasn't. I had almost every symptom mentioned on here, except the hearing and vision issues. I'm not going to list them all because the list is so long. I will mention that I was perfectly healthly before this all happened; no medications. I had just had both my annual medical and aviation medical and both were stellar. I will start with saying I had very bad luck with the vitamins and medicine. Turns out Glutathione contains sulpha. I'm slightly allergic to sulpha medication. My doctor and neurologists didn't pick up on that when I told them I was taking it. If you have any sulphite sensitivity, glutathione will make things way worse. Unfortunatley, Queracitin (sp?) made me dizzy as well; a listed possible side effect. I tried DOA, hard to say if it helped. 5-HTP worked for a while and them stopped working. Prednisone was a disaster; only because it can swell your head and that was my biggest issue. Prednisone added to the swelling. I couldn't recall simple words and my short term memory was practically non-existent. When I went off this, things improved. Tried a weaker steroid first but did nothing. Vitamin B12 made me way worse too; not sure why, but probably something to due with the histamine connection. The antihistamine Claritin (H1 blocker) helped me a lot for a few months. Those with the digestive issues may need the H2 blocker antihistamines. After that, it made me feel bad. I tried all several other Vitamins and minerals too. I suspect it's because like one guy said in a previous post "Just when I think I've saw everything that is going to happen to me something else shows up". So it seems what works for me varied depending on the symptoms at the time. I did several tests, blood work, urine. EEG, MRIs. They keep insisting that everything was normal for my age. The MRI did show some damage in the white matter, but don't panic, white matter damage heals just like a bruise. They said my symptoms were caused by "old age", "weight", "stress", imagination and whatever else they could think of... The same response for my sudden allergic reactions to a dozen foods, blue veins everywhere, sudden menopause, "neuropathy", "auto-immune disease", elevated levels of bloodwork stats... etc. They said this was all normal... LOL... apparently within minutes I just coincidently got all of these conditions and just have to lead a healthier life. Ignore what they say, you know the real cause just move on. You aren't going to win; as the doctors can't say anything. Here's some hope... I had such bad cognitive issues it was awful. I thought my brain was damaged forever, but my photographic memory is back. I do not speed read anymore because it will induce some swelling, but I am able to return to reading books at a normal rate. Brain about 90 percent. Dizziness, headaches, chronic fatigue, arms like flippers, twitching, "zaps" to my appendages, vibrations, heart going crazy, anxiety all gone. Crazy dreams at night still there but only bad when I swell. I had to limit the cell phone to 15 min temporaily, but that's back to an hour. There is still some pain between ears and temple, but I sleep on my hand so the sides of my head and base of my skull don't get compressed. I also use a memory foam pillow. The swelling in my neck, base of skull, around ears and temple were all swollen lymph nodes pressing on my brain. FYI... lymph nodes are everywhere in your body. They clean out the waste in your body. They swell for multiple reasons, infection, auto-immune. I did some reading in scientific journals about the m-RNA vaccines hijacking the lymphatic system for more efficient delivery, but it's hard to know what's real on-line right now. My neck, up until about a month ago looked like Jabba the Hut, it's way better now. My left leg still tingles and burns, but only when I've been excessive in my triggers. Low Histamine Diet really helped. I don't touch alcohol, caffeine, MSG or aspartame. As well, sugar is really a killer; it is death for inflamation issues. The electronics were my downfall. I mean really, in todays world they are hard to avoid. My worst were spinning or fast moving screens, big screen tv, video conferencing, any thing that made me multitask. I'm not a gamer, but that would sink me if I tried. Ironically, movies in theatres were not as bad. Just squint if a fast scene comes up to avoid the rapid stream of info to the brain. Strong emotion such as anger, forceful crying and ironically a lot of laughing, like in a social scene, have a big effect. If you feel strong emotion, stop, take a lot of deep breaths, slow your breathing and it will stop the release of histamine. Unfortunately, this condition is not something you can exercise your way out of. It generally makes it worse, at least for me. Again the histamine release with aerobic exercise. Light walking and biking did really help though. I know dragging yourself out of bed or at the end of your work day, when you fell horrible it not ideal, but it does help. I suspect sunlight will help, as well as the fresh air. I couldn't take off more than a few weeks a couple of days at a time, so I feel your pain if you still have to work. I'm a single Mom and some days were brutal. If you can, take a long chunk of sick time; it will help. If you can't, explain to your employer that you have to slow down. No one turns on their video when they talk to me. If the computer is starting up, I do not look at the spinning circle as it it a big trigger. I extract myself from multi-tasking as much as possible. Some days, the really blue veins in my feet, hands and neck scare me. I suspect it may be capillary damage. I suspect again the nanoparticle lipid carrier for the spike protein may be responsible; as my reading talked about having the ability to travel through capillaries, due to their small size. Again, not sure if this is real info but the journal looked legit. That would explain the white matter damage in my brain and the blue lines all through my body. Again, I think the head is healing and hopefully my body. The induced menopause if also over for the people who are worried about fertility. Everything if back to normal. If some of you are having the urine symptoms, its protein and shedding of your bladder cells. That will stop too. If I've missed addressing some symptoms, I'm sorry its sometimes hard to keep track of them all. I have another doctors visit scheduled next month (it takes a couple of months to get an in person appointment) to check out my stats to see if they improved. Unfortunately, our province is running out of blood sample vials... I know, you've got to be kidding... I wish I was... They are limiting tests, but if I get results, I will post them. I will finish with, don't give up hope. I thought I'd be well at the three month mark, then the six month mark. Everybody is different in their recovery. Sometimes just when you think it's all done it comes back; but it feels different this time. I'm certain Im on my way now as the good days are far outnumbering the bad. Take Care.
Thanks for the in-depth post. And thanks for the tip about sulphite sensitivity I've become sensitive to it in the last few years. It's so hard to avoid in food stuffs I had no idea it could be in medication and vitamins too!
Hi David,
I am new here, how are you now, is the vertigo gone for you.
My mom 68, is having exactly the same issues like you mentioned.
She started having dizziness and high BP after getting booster shot covishield in Jan30th 2022 , she is in India. She went to Cardiologist,neuologist all tests came negative.
She takes BP and dizziness medicines in the morning and night but nothing seems to work, now her BP is like 139/80 but still have lot of dizziness.
We are so worried about her condition. She was a very active person and now after the covid booster her life has changed.
Can you please share the medication name you took for dizziness?
Any information will be helpful.
Thanks,
Riya
Hi Everyone
I am new here, how are you all feeling now
My mom 68, is having exactly the same issues like you all mentioned.
She started having dizziness and high BP after getting booster shot covishield in Jan30th 2022 , she is in India. She went to Cardiologist,neuologist all tests came negative.
She takes BP and dizziness medicines in the morning and night but nothing seems to work, now her BP is like 139/80 but still have lot of dizziness.
We are so worried about her condition. She was a very active person and now after the covid booster her life has changed.
Can you please share the medication name you took for dizziness?
Any information will be helpful.
Thanks,
Riya
@nresearcher here is a German article link that mentions the Marburg post vax treatment. It's in German so need to run it thru Google translate or another web translator -
They apparently are booked rest of this year with 800+ patients signed up. From another forum, a German that knows people who have went said they are being given statin (rosuvastatin 10mg), blood pressure med regardless of their BP (candesartan 4mg), vitamin D, and low histamine diet. The guy said he's signed up to go next month to clinic so following to learn any more details.
Thank you for posting this article. Found this part of interest:
"Patients who suspect they are affected by post-vac syndrome can contact the interdisciplinary long-COVID outpatient clinic at the University Hospital Giessen and Marburg (UKGM). Four to six patients are examined every day, another 800 are waiting for an appointment, reports Prof. Dr. Bernhard Schieffer, Director of Cardiology at the University Hospital Marburg. With regard to the post-marketing report by BioNTech/Pfizer, he assumes that around 25,000 people will be affected throughout Germany. He is convinced that the vaccine unmasks an infectious, immunological or genetic predisposition of the immune system and acts as a trigger for some of the most severe symptoms: "The vaccination triggers something that was already latent. We want to understand why the immune system in these people has 'turned the wrong way' – an extremely exciting interdisciplinary field of research."
According to his team, autoantibodies play a crucial role in post-Vac syndrome. It is therefore a matter of first identifying the autoantibodies and recording which organ functions are disturbed. Some autoantibody groups are associated with muscle weakness, others with cerebral symptoms or problems of circulatory regulation.
Particular attention is paid to autoantibodies against the ACE2 receptor (ACE2), to which the spike protein of the coronavirus docks. This protein can either enter the body through an infection or be replicated in the body using the mRNA vaccine. "Depending on how the blood pressure-activating enzyme is preactivated, each body reacts with other immunological processes," explains Prof. Schieffer.
With a view to patients like Elisabeth Schneider, he emphasizes: "These people are really sick." The mere fact that he and his team acknowledge the disease value of the symptoms provides relief to those affected. After all, most of them have already completed an odyssey of six to eight months before they find their way to the UKGM outpatient clinic.
As the first therapy, the administration of cholesterol and blood pressure lowering drugs, vitamin D plus a special diet has proven itself. "The control loop via the ACE2 receptor is thus broken, the inflammation and the associated endotheliitis decrease," reports the cardiologist. He wants to encourage his patients: "Post-Vac is curable, even if you have to be patient.""
For those with high blood pressure post-vaccine, I wonder if the diet they recommend includes factors found to lower blood pressure (reducing caffeine, salt, sugar, saturated fat...; increasing omega-3 fat (salmon...), green leafy (and other) vegetables, legumes, other foods high in magnesium, potassium, etc...). Would be interesting to find out more details about their program and how they came up with the plan.
If dietary and other lifestyle measures could support recovery, maybe in addition to some over-the-counter/common supplements and/or medications, maybe that could avoid the need for a stronger medication such as Maraviroc, although Dr. Patterson does seem to think it is quite safe.
There appear to be several plausible theories behind vaccine reactions at this point. Hope Dr. Schieffer and Dr. Patterson publish some results soon so those with vaccine reactions could maybe show the published studies to their doctors.
What over the counter supplements and or medications are those ? And diet ?
On the German forum a topic is dedicated to the clinic in Marburg, very informative:
After watching the Patterson video, does anyone have an explanation for why so many people have symptoms that go away for weeks at a time and then reappear? I’ve had many good weeks the past few months, but I always seem to have a relapse at some point.
I personally notice my symptoms reappear when my immune system ramps up such as when I get a cold, eat rubbish foods, menstruate etc then the symptoms calm down again.
Hi
6 months after my first and only Pfizer vaccine, I’m still in hell. I did get better for about 2 months and thought it was 90% gone - only got the dizziness etc for a day or so and then it went away which was COMPLETELY MANAGEABLE after 100% of the time feeling terrible. But six weeks ago it returned and I’m so depressed and sad and scared, terrified that I will be like this forever (it is hard for me to write those words).
My symptoms are:
1 minute after the vaccine, mildly dizzy but didn’t care as I thought it’d go away after a few hours or days. No it got worse. Dizzy - not in a way that I fall over or need to hold things to walk but when moving my head or bending over. My eyes are just weird all the time like my eye balls are straining. I get ultraviolet blue spots popping into my vision. Looking up is not nice. I have mild earache occasionally, the fullness feeling and NEVER ENDING awful high pitched ringing in my ears. Had hearing test and all was normal. Get frequent migraines.
Prior to Pfizer:
30 years of severe migraines. I took Maxalt wafers to stop them.
I was trying out beta blockers very small dose in the hope of fixing the migraines. It had been making me temporarily dizzy for an hour after each pill which was a normal side effect. I was taking Endep 10 mg a night to also try to prevent migraines.
Never had tinnitus ever. Never had dizziness.What makes it worse: using the iPad and anxiety.
What helps: well I did think when I got better for six weeks that it was 7km walking + meditation every day but then it came back so now nothing makes it better. Tried Ibroprufen, prescription antihistamine, prednisone. Did nothing. Tried every alternative everything. These helped the anxiety but not really anything else.
I now take no pharmaceutical meds at all. So gave up on beta blockers and Endep and antihitamines. I still take the Maxalt when I get a migraine or I vomit every 15 mins for two days - so no choice there.
Please please has anyone found out what this is? Has anyone found a way to recover? I have read this forum for hours and only see people in the same boat as me, no positive outcomes. No steps to take to recovery.
I get the purple/blue dots in my vision too. Wish I knew what caused them.
@lookingforanswers I did. Please look through my previous posts. I suffered hell with insomnia for a good 7-8 months, first 4 months were the worst! At 13 months, I am back to normal, at least with my sleep. I know of others that have had their sleep come back after months. So hang in there! I only started seeing very small improvement around the 5 month mark. I mean very slow!
Are there any long haul headache sufferers on here? I’m 6 months in and all I have left are these awful pressure/tension headaches along with neck stiffness.
I’ve had a couple of 2 weeks breaks from them, but they’re pretty much constant. Some days it’s like there’s a baseline headache that gets worse then eases off again. Other days I feel very little. I’m currently on amitriptyline, but it only seems to work some days. CT booked for end of March as all avenues have been exhausted trying to find the root of the problem. Dr was reluctant as I don’t have any other worrying symptoms.
It would reassure me to hear from other long term headache suffers?
I've been having lots of headaches and neck aches. I did have a headache that lasted two months. Since then I have headaches several times a week and on and off during the day but often not bad enough to require pain relief.
Have you tried taking a low dose of aspirin?
Hi Kit, i remember u have eye issues. Arw they resolved now?
Do u have double vision, and vision that become dim and clear again on and off?
My eye issues are not resolved. Some eye issues went away such as the pain, after image, blind spots but I'm left with occasional bright purple/blue orbs of light and vision snow. I get double vision sometimes but not always.
@riya I am sorry to hear about your Mom, we hear a lot about dizziness after receiving these shots. I personally did not have a reaction from the shot, however many others have reported they have. My advice would be to revisit your doctors and press them more for an accurate diagnosis, also you can learn a lot more about this and many other topics by continuing to follow this forum or going to vestibular.org
Hoping your mom will find some much needed answers soon!