@lookingforanswers gut is still no good think something like MCAS , or something, my neuropathy seems to be a little more noticed?...think my mild symptoms are getting worse ?
Anyone have success with Dr. Pattersons protocol?
Here is reported a positive experience with the dr. Bruce Patterson’s protocol:
https://www.youtube.com/watch?v=g5zxVB7gRSc
I watched several videos of this girl, they are very informative, she had the opportunity to perform many types of laboratory tests and other medical investigations, tried different treatments and shares her experience.
She's one of several I follow across Reddit and YouTube that are seeing good results with the protocol, maravoric, in particular. There seems to be 3 groups with maravoric: about 50% it works for, some more than others and some relapse afterwards and have to go back on another round. Maybe another 20% that have adverse reactions to the med (e.g. chest/heart pressure, etc) so they end up stopping entirely before seeing if it will work. And maybe 30% that just never see any results at all. Interestingly, in her case, she had some issues and had to back down on dosage for awhile, which is great for persistence to see it through. Given low batting average for other treatments, I'm looking forward to giving it a try this summer if I don't continue to see progress with statin and aspirin alone for symptoms and cytokine levels (plan to retest in June)
I had in the very beginning (5 days post vacination to some weeks).
Yes i had a brain scan because of dizziness and headache, i did go to ENT doctor and the stupid said "oh this it's not from vaccine..." after months he called me and said "oh.. probably it's from the vaccine because im having another people here with same symptoms..." But the exams (brain scan) came back normal, without any changes.
Im having Tinn. All outer symtoms subsided, except Tinn. Yes despite all things im feeling better.
And you? Still having Symptoms? How long you got your last dose? How much doses you got? IDK if was a bad luck or luck but the same time i had all this sh*t happening with me at 1st Jab, this help me to simply do not get any another Jab after.
I had in the very beginning (5 days post vacination to some weeks).
Yes i had a brain scan because of dizziness and headache, i did go to ENT doctor and the stupid said "oh this it's not from vaccine..." after months he called me and said "oh.. probably it's from the vaccine because im having another people here with same symptoms..." But the exams (brain scan) came back normal, without any changes.
Im having Tinn. All outer symtoms subsided, except Tinn. Yes despite all things im feeling better.
And you? Still having Symptoms? How long you got your last dose? How much doses you got? IDK if was a bad luck or luck but the same time i had all this sh*t happening with me at 1st Jab, this help me to simply do not get any another Jab after.
I see. Yeah, I'm still in a bad state. The medicines I took initially has messed me up big time, seems like I won't get better ever.
My heart turns cold/hot with weird chest tightness and heart rate is odd from 6 months now. Can feel pulsations all over my body. I have tinnitus too.
Hypnic jerks are extremely high. Also have uncontrollable body movements when awake. Nerve pain and muscle tremors still continue along with weird head/brain pain. Losing both weight and hair. And yeah, patience too.💔
I took my only dose of AZ back in Oct last year. Started getting symptoms the same day. Was still better until November. Made a mistake by visiting a Neurologist and taking the tablet prescribed. Since then I've been downhill. Seems like I invited my death by visiting him and taking that tablet.
Post that heart rate went off, all symptoms got worse, got a hot of new symptoms. Don't see a way out of this.
@medee gabapentin (Neurontin)?
I don't know which comment of mine you've replied to..... but gaba was one of the tablets prescribed to me initially which has affected me. Side effect - uncontrollable body movements. I took this tablet for 1 day in October and started getting the side effect. From the next day, took half of it for maybe nwxt 3-4 days and then left it but the side effect hasn't left my body. Infact has gooten worse.
Later in Nov, I endedup visiting a Neurologist who gave me Amitone 10 mg which caused heart palps within 2 hrs of taking it just by 1 tablet. I never ever took the tablet again but the damage was done. I'm since then struggling for my life. Heart issues still remain and have got some weird heart issues too. Plus all my symptoms got worse and new kept popping up since.
Everyday seems like my last!
@carym23 what were your symptoms I haven't posted in awhile. I had horrible dizziness vertigo balance issues chest pains and that in turn gave me anxiety and panic attacks.. they were extreme for 6 months then they started to break a little these last 2-3 months nothing has helped. I'm still not myself or ok.. all meds I've tried failed my doctors say it's anxiety I know it's not and have tried putting me on pills which made me have worse side effects... really at a stand still still can't work can only drive sometimes.. like my doctors say this is my new reality and even if it was the vaccine what can they do... 9 months later here I am still searching for help at 2am .. it's ridiculous
@buhofromepn has the dizziness gone away? Mine almost did after 6 months it was all day everyday 24/7 now it comes and goes someday I feel ok someday I do not I'm going on my 9th month.. still can't work sucks
I had in the very beginning (5 days post vacination to some weeks).
Yes i had a brain scan because of dizziness and headache, i did go to ENT doctor and the stupid said "oh this it's not from vaccine..." after months he called me and said "oh.. probably it's from the vaccine because im having another people here with same symptoms..." But the exams (brain scan) came back normal, without any changes.
Im having Tinn. All outer symtoms subsided, except Tinn. Yes despite all things im feeling better.
And you? Still having Symptoms? How long you got your last dose? How much doses you got? IDK if was a bad luck or luck but the same time i had all this sh*t happening with me at 1st Jab, this help me to simply do not get any another Jab after.
When did you have your jabs?
I am having the same symptoms, plus several others. I finally had some Drs admit that they've been seeing other patients with similar symptoms post vaccine, but of course cannot prove causation.
@carym23 what were your symptoms I haven't posted in awhile. I had horrible dizziness vertigo balance issues chest pains and that in turn gave me anxiety and panic attacks.. they were extreme for 6 months then they started to break a little these last 2-3 months nothing has helped. I'm still not myself or ok.. all meds I've tried failed my doctors say it's anxiety I know it's not and have tried putting me on pills which made me have worse side effects... really at a stand still still can't work can only drive sometimes.. like my doctors say this is my new reality and even if it was the vaccine what can they do... 9 months later here I am still searching for help at 2am .. it's ridiculous
Hello. Early on I had dizziness/unsteadiness. It never felt like the room was spinning just like I was walking on a conveyor belt or on a boat. My space perception was also off which made me feel unsteady. I also had headaches, pressure in my head and fatigue. I constantly felt lots of pressure around my eyes and as if my head weighed more than it should. The pressure around my eyes worsened when I looked down at a 30 degree angle (cooking, checking kids HW, walking dog, reading. typing, etc.). The fatigue was debilitating. Minimal exercise put me down for hours at a time. My heart rate would go up to the 130s-140s just walking to my kitchen. As time went by these symptoms diminished and I got new ones like pins and needles on my scalp, face, left arm, left leg, and back, vibrations on my head, vibrations on my face and chest area. I also had some sporadic involuntary contractions (twitches).
My symptoms improved significantly by 10 months. I was still symptomatic but it was minimal in comparison to what I had gone thorough. I was definitely almost fully functional. I received my one and only Pfizer vax on 4/29/21 and I now feel I'm near 100%. Hang in there. It sounds like you have improved and relapsed which is what we all go through so it sounds like you are following the crazy pattern. New symptoms popping up added to my anxiety but coming on here and seeing others had those symptoms and they too subsided gave me confidence the new symptoms would also go away.
I'll never forgive those people responsible for purposely ignoring us and leaving us to struggle on our own after their strong push to vaccinate. Their inhumanity is unforgivable.
Stay strong.
cary