Hi , anyone here with vision issues?
@medee I wish someone could explain why her symptoms are so much worse at night while we sleep. I’m guessing it’s the autonomic nervous system I just don’t understand why it would worsen at night.
The immune system may be more active at night.
"Researchers have found that during nightly sleep, certain components of the immune system rev up. For example, there is an increased production of cytokines associated with inflammation." (from sleepfoundation.org)
If you are unable to sleep, take 1/8th teaspoon of baking soda in a glass of water. This has helped calm the inflammation in my gut at night (where much of the immune system operates).
Update: My allergy medication called Xyzal is helping me. I sort of discovered this by accident.
Last year, of course I tried allergy medications but none of them really made a difference.
This year, Xyzal is making a difference. It could be that I switched to name brand. It could also be that I am taking it almost everyday this year and last year I was not.
New Dr. Been video:
"Second Follow-up Patient Interview - Neurological Issues After Vaccination"
"Today we will interview Shaun Barcavage. He is an amazing healthcare professional. He has been struggling with neurological issues since his vaccination. Shaun has graciously agreed to share his journey with us."
Among the comments to this video someone said:
“Blessed I was born in India … where ayurvedic medicine cure my injury soon.”
Couldn't you contact this man?
I believe that most comments are posted by good people, who are interested in the content in the video and have a lot of information about the theme, so many are credible.
It is the 56th comment (omitting responses to comments).
Something interesting, I do not know if it has been mentioned on the forum:
https://store.drjockers.com/products/immune-injury-support-pack
It is not advertising, obviously, I think it is interesting what remedies are proposed and they can be found also at other manufacturers, if they seem useful to be tried.
@mike411 I take omega3 but maybe I’ll up them, and I take a probiotic and enzymes each day. Thank you for your reply. I’ve heard some strange side effects that people are having lately. Some people have lost their hair, so sad. I’m not on any other websites so I only hear what people suffer on here. Take care.
@50yofemale Sorry for the late response, Maybe it is my brain fog, but i find in hard to navigate this VEDA forum. I cannot tell if I am getting better slowly, or just getting use to it slowly. But still not remidies. Best wishes to you
New Dr. Been video:
"Second Follow-up Patient Interview - Neurological Issues After Vaccination"
"Today we will interview Shaun Barcavage. He is an amazing healthcare professional. He has been struggling with neurological issues since his vaccination. Shaun has graciously agreed to share his journey with us."
Among the comments to this video someone said:
“Blessed I was born in India … where ayurvedic medicine cure my injury soon.”
Couldn't you contact this man?
I believe that most comments are posted by good people, who are interested in the content in the video and have a lot of information about the theme, so many are credible.
It is the 56th comment (omitting responses to comments).
The video above might be useful for you too because it discusses the React19.org non-profit organization and website that shares information for those with vaccine injuries.
Maybe you could request that they add a page for India to their international page:
New Dr. Been video:
"Second Follow-up Patient Interview - Neurological Issues After Vaccination"
"Today we will interview Shaun Barcavage. He is an amazing healthcare professional. He has been struggling with neurological issues since his vaccination. Shaun has graciously agreed to share his journey with us."
Among the comments to this video someone said:
“Blessed I was born in India … where ayurvedic medicine cure my injury soon.”
Couldn't you contact this man?
I believe that most comments are posted by good people, who are interested in the content in the video and have a lot of information about the theme, so many are credible.
It is the 56th comment (omitting responses to comments).
I tried Ayurveda for 2 months. Saw no improvement. Maybe it doesn't work for vax injuries.
@medee I wish someone could explain why her symptoms are so much worse at night while we sleep. I’m guessing it’s the autonomic nervous system I just don’t understand why it would worsen at night.
The immune system may be more active at night.
"Researchers have found that during nightly sleep, certain components of the immune system rev up. For example, there is an increased production of cytokines associated with inflammation." (from sleepfoundation.org)
So how do I fix this? It used to get cold with chsst tightness during Jan-Mar and now it has started to turn hot with tightness.
I did 10 HBOTs, felt better for just 2 weeks or so and it again started turning cold and then moved to hot.
It really scary. Also I can't breathe and get bad palps
Interesting that hyperbaric oxygen therapy seemed to help, even if it was temporary. Some people may have more than 10 sessions - do not know what the risk-benefit analysis would be.
Based on this, it could be that symptoms are linked to lower than usual oxygen levels. This may happen to some people with long covid also. May be hard to do deep breathing exercises, if that would help at all.
@carym23 had a suggestion below to try to buy a pulse oximeter online to get a rough measure of your oxygen levels at different times. Maybe you could then take this information to a cardiologist or other doctor.
It seems the best thing might be to try to find a cardiologist or other doctor who will take the symptoms seriously and accept that you do not want to take further medication for this, since medication seemed to make it worse in the past. If there is not a good doctor in your area, maybe through telemedicine?
I'd be tempted to contact a functional medicine doctor like Dr. Galland, who may have worked with some patients with vaccine injuries, and ask his advice or ask his office who to contact for advice:
https://drgalland.com/contact/
Also, if symptoms at night are linked to higher levels of inflammatory cytokines at night, then lifestyle methods to decrease inflammation should be relevant: an anti-inflammatory diet and maybe some anti-inflammatory and/or other supplements (maybe magnesium, b vitamin complex?). Not sure if intermittent fasting has helped some people. Can't really give medical advice, but maybe a functional medicine doctor could advise?
@medee It's just a thought because you mentioned chest tightness which can come from respiratory system. You can easily purchase a pulse oximeter at a pharmacy or Amazon. they are easy to use and give you a reading of your blood oxygenation and heart rate.
He replied saying he can't take new patients until October.
UPDATE:
My friend who had serious nerve tremors and muscle spasms just completed his fifth month of IVIG. He is almost his old self again.
The theory is that the IVIG is clearing out antibodies that his body made to fight the spike protein. These antibodies were attacking his own body (autoimmune) and the IVIG is clearing those antibodies out so nothing is attacking him anymore.
UPDATE:
My friend who had serious nerve tremors and muscle spasms just completed his fifth month of IVIG. He is almost his old self again.
The theory is that the IVIG is clearing out antibodies that his body made to fight the spike protein. These antibodies were attacking his own body (autoimmune) and the IVIG is clearing those antibodies out so nothing is attacking him anymore.
Interesting. I've heard more mixed things on IVIG vs. plasmapheresis or INUSpheresis, due to in part to its potential to include others covid/spike antibodies, which may have negative effects in some long covid/post vax patients. The guy that started REACT19 (post vax) had bad results (increased POTS symptoms) with IVIG but lately has had good response to 5 round plasmapheresis over 10 day period
Do you know where this was done? Was treatment approved based on POTS or another already defined medical necessity? Long covid/post vax seems tougher in US to get qualified for IVIG or any other Apheresis treatments. Why I'm keeping backup plans for INUSpheresis in Germany or Switzerland for end of year if my BP issues are not improving by Fall time.
UPDATE:
My friend who had serious nerve tremors and muscle spasms just completed his fifth month of IVIG. He is almost his old self again.
The theory is that the IVIG is clearing out antibodies that his body made to fight the spike protein. These antibodies were attacking his own body (autoimmune) and the IVIG is clearing those antibodies out so nothing is attacking him anymore.
Interesting. I've heard more mixed things on IVIG vs. plasmapheresis or INUSpheresis, due to in part to its potential to include others covid/spike antibodies, which may have negative effects in some long covid/post vax patients. The guy that started REACT19 (post vax) had bad results (increased POTS symptoms) with IVIG but lately has had good response to 5 round plasmapheresis over 10 day period
Do you know where this was done? Was treatment approved based on POTS or another already defined medical necessity? Long covid/post vax seems tougher in US to get qualified for IVIG or any other Apheresis treatments. Why I'm keeping backup plans for INUSpheresis in Germany or Switzerland for end of year if my BP issues are not improving by Fall time.
He had to fight to get the treatment. Is based on a marker for an autoimmune problem: FGFR3.
As with everything else, some things work for some and the same things do not work for others.
