I'll be brief.
I reluctantly got the first Phizer shot in June 2020. Second dose in May 2021. Since then; even now 15 months later; he is a list of things happening to me.
-Left and right arm numbness/tingles.
-Chest pains.
-Stomach pains. Gas. Bloating.
-Wake up frequently with lower back pain unlike anything I've ever felt before. Very stiff feeling. Hurts to move.
-Dry,sore ichy throat.
-Desperate urination/increased frequency.
-Stiff neck/shoulders.
-Headaches/Body aches that feel very simular to covid.
-Diverticulitis
-Constantly tired/irregular sleep
-Depression
-Blurred vision
-Difficulty focusing/remembering
P.s. I got covid a 2nd time even after double vaccinated. I DID NOT get the booster shot, though my doctor Is still pushing for it.
Anyone else with 2 vaccinations having simular issues?
Yes I have similar issues but after the one single shot I got in july 2021. Stomach problems, back and neck pains, headaches, brain fog etc.
My friends and colleagues think it's all in my head, and if I don't think about it it will go away haha.
I am on a 2 month treatment plan and have the infusions once a week. They provided all the infusions for this duration with very clear instructions on how to administer them followed by the organopeptide injections. I do them in a private clinical setting with a registered nurse so they can monitor my vitals through out. I’ve had no side effects and felt generally well afterwards.
Have you had any infusions at all? The Dr. suggested that this is a more effective way of absorption than a pill form especially for glutathione. Perhaps you could discuss with your Dr. the idea of having vit c, b complex, glutathione and amino acids as an IV?
I’ve had one episode of the burning sensation in my stomach and it was quite mild. Sadly my tingling and sharp pains continue here and there and I can’t say that I’ve seen an improvement in my SFN but thankfully they are not too bothersome, perhaps they take a little longer to heal/regenerate…
Hi. It was a very expensive treatment overall but for me well worth it. The clinic broke down all the costs and I had a choice of what to pay for including medications. I’m just glad to have targeted treatment and medications, it’s a huge relief vs seeing Dr’s who didn’t know what was going on with me.
@jwills1 How much does this treatment plan cost ? From Canada, is this available to everyone? How would one go about getting this treatment ? And how long of a process is it ?
Hi there, the treatment is available to anyone aslong as you can travel to the clinic. All you need to do is contact the clinic through their website and you’ll be assisted by a patient coordinator.
For my treatment, there was a waitlist of 8 weeks due to a cancellation, you might expect a waitlist of several months. The INUSpherese treatment alone cost €3500 per session and you are recommended to have 2 sessions at 2 hours each. This cost excludes any prescription medications and accommodation. I found the prescription meds to cost the same as your normal pharmacy and there were options for accommodation suggested by the clinic which were reasonably priced however I chose to book through Airbnb.
Alternatively, BIOLOGICUM in Germany offer the same treatment a lot cheaper (perhaps around €2500 per session, please don’t quote me). They run the same tests and diagnostics and have a good Dr. spearheading the treatment however I do not know much else about their clinic and patient experience or whether they offer the same additional treatments (irartherm, colon cleansing, hyperthermia, etc) as the Alpstein clinic.
It was a very expensive experience overall but I was willing to sell my arm for some relief and after trying many different supplements amidst continuous relapses and worsening of my symptoms, it has been the only effective treatment for me. I expect my inflammatory markers, toxic load, oxidative stress, etc to have all reduced by atleast 50%.
@pfizerinjured Apologies, I've been offline for a couple weeks post vacation as I deal with backlog at work. I'm a huge believer in statins and low dose aspirin. The mechanisms of action are very sound and they've done a world of good for me and others. That said, I would be cautious in a case such as yours with underlying symptoms of dizziness and muscle weakness. The odds of having a muscle related side effects is super low and taking COQ10 can help further protect against that. I'd be more cautious on the dizziness. This is not a common side effect of any statin but it can happen. It's more likely to happen with statins, like atorvastatin, that cross the blood brain barrier. Others like pravastatin and rosuvastatin are highly unlikely to have that side effect since they never enter the brain to begin with. That said, statins that cross into brain can have better effects with post V because they take that benefit everywhere and work against spike everywhere. It's very clear spike does cross into and tend to stay in the brain causing problems so it makes sense to take the fight there.
When I started atorvastatin 20mg, I had 3 days of pretty strong dizziness and nausea and then 2 more days of milder effects before my body adjusted. I knew the side effects were likely short term so just muscled thru them. Typically with side effects like nausea and dizziness, if they do happen they only last up to ~1wk as the body adjusts. Muscle weakness if it happens (rare), is opposite. Doesn't start right away but comes on gradually with time. Of course, when you stop the med, the side effects will go away fairly quickly.
You have a few options with statin:
1) try atorvastatin and work to minimize side effects impact: start on weekend or when you have down time just in case. Take the statin at night and with some food so you are sleeping when it's at peak effect. Take COQ10 early in the day to protect against any potential muscle issues; early in day because it uncommonly can cause some mild insomnia in some if taken too late in day. If there is any nausea or dizziness, see if you can manage for a few days to see if they fade away. Worst case, discontinue. Also, you could consider starting with a very low dose. Adjust to that, and then go up on dose the next week. Backup could be to switch to approach #2 below if still having issues.
2) go with a statin like pravastatin that does not cross into brain. That should avoid any dizziness issues. Still have to keep an eye out for muscle issues but the COQ10 again can help protect against that. Of course, this statin won't directly bring benefit to brain but it still does help with most of the body, working against spike carrying monocytes and lowering overall cytokine inflammation.
Either way, it's a good discussion to have with your doctor and have their support if possible.
I've been on atorvastatin now for 3.5 months. Helped get rid of all my skin and neurological issues in first couple months on it. Since I tolerate well, planning to stick with it for now until I finally get testing to make sure all spike protein is gone.
How do you test specifically for a protein spike?
@reloader1 hi! I have the same issue as you, I even have a formal POTS diagnosys confirmed by TILT table test, after getting the moderna mRNA vaccine. Could you please tell me what steroid did you take? I'll research the topic on steroids further. Thanks!
I have to admit I am truly saddened by the severe drop-off of activity on this forum. It was once a treasure trove of information, insights, and experiences from so many people suffering numerous adverse side effects from the Covid vaccines. My symptoms seemed to have subsided after 3-4 months, but have spiked again and it's been another 4 months and I don't see any level of improvement. While my biggest symptom/issue is tinnitus, I also have a constant mild (but still aggravating) headache, tight and sore shoulder and neck muscles, a slight dizziness feeling, and a brain fog/racing brain that is unnerving.
I don't know if I'm just suffering from severe anxiety and depression coming out of the pandemic into a world that des not mirror what it was before Covid, or if it's truly related to the vaccine. If it is anxiety/depression, I'm totally uncomfortable taking any kind of medicine (SSRI's can cause/worsen tinnitus, which I do not need). I wish that folks who have had success / recovery would come back on here to tell their stories to give us hope. I truly don't want to live the rest of my life feeling like this. I feel like a different person than I was just over a year ago.
I have to admit I am truly saddened by the severe drop-off of activity on this forum. It was once a treasure trove of information, insights, and experiences from so many people suffering numerous adverse side effects from the Covid vaccines. My symptoms seemed to have subsided after 3-4 months, but have spiked again and it's been another 4 months and I don't see any level of improvement. While my biggest symptom/issue is tinnitus, I also have a constant mild (but still aggravating) headache, tight and sore shoulder and neck muscles, a slight dizziness feeling, and a brain fog/racing brain that is unnerving.
I don't know if I'm just suffering from severe anxiety and depression coming out of the pandemic into a world that des not mirror what it was before Covid, or if it's truly related to the vaccine. If it is anxiety/depression, I'm totally uncomfortable taking any kind of medicine (SSRI's can cause/worsen tinnitus, which I do not need). I wish that folks who have had success / recovery would come back on here to tell their stories to give us hope. I truly don't want to live the rest of my life feeling like this. I feel like a different person than I was just over a year ago.
you are right but that is one the reasons that the activity is less now. I guess everyone here tried all recommended drugs,supplements, treatments and there is nothing left to try, there is nothing left to write.
after 15 months, I guess I am getting used to living with this thing. I still use 24 or 32 mg prednisolone everyday (16 mg morning 8 or 16 mg night)and If I try to decrease the dosage I immediately get worse.
I also started to use tramadol(ultram) and it changed my life. It is an opioid and it is the only pain killer that worked for my bone pain and pins/needles and heat attacks. I no longer feel constant pain but some brief attacks thanks to tramadol. but it is a pain to get prescription because for some reason the doctors are so reluctant to prescribe(they think I might get addicted to it). as long as it stops the pain who cares if I get addicted to it!! apparently my doctors do!!. theyt dont care about my pain, they dont care about how I struggle everyday but they do care if I get addicted to a painkiller....I dont know what to say. So if you have bone pain and pin/needle type neuropaty you should try tramadol. I tried gabapentin , cymbalta, and several other painkillers before tramadol but they had like 0 effect. and the good thing is it has no side effects for me. cymbalta had so many side effects but no real effect at all.
I also tried 10 day continous prolonged water fasting. I was planning to go at least 15 days but unfortunatly I had to stop becauase I lost 8 kilos in 10 days (55 kilos) . I was already underweight to begin with so I had to stop. I realized that I can go easily for 20 days or more. So now I am trying to gain weight and then I will try for a longer period. I felt a lot better after fasting but it was not a cure. many sources about prolonged fasting state that for serious diseases like cancer, autoimmune diseases fasting period should be longer than 30 days and close to 40. I dont know if I can do 30 but I will retry as soon as I am over 75 kilos. (I am 65 kilos now so 10 more kilos left). As your body starts to starve, logically it starts to eat unused/unimportant cells, so the longer the fasting period, the more spike proteins should be removed.
I am still thinking about getting apheresis but my conclusion is that it just gives some temporary relief (at most like 2/3 months for some and no change at all for some) and then everything comes back. so I am not sure if is worth it.
I am lucky Tinnutus and dizziness not come back yet, I still remember the horrible days with nonstop tinnutus. I am still not sure how I get rid of it but perhaps it was the blood cupping done at the back of my ears. They actually let the dirty blood full of with toxins jammed between the cells behind your ear out of your body. so I guess it was how I get rid of tinnutus. it is also called hacamat. I know the procedure seems a little painful but I felt no pain and I was relieved. Now I do hacamat once per month on my back and legs to remove the dirty blood full of with spike proteins, I am pretty sure it helps a lot.
so most of the time my life is very close to normal but I am very worried about my dependence on cortisone. I dont have any short term cortisone side effects, but I am worried about long term side effects of it like osteoperosis/osteonecrosis. I dont really care about tramadol since it seems to have no side effects other than addiction. I am very lucky it worked on me.
I have to admit I am truly saddened by the severe drop-off of activity on this forum. It was once a treasure trove of information, insights, and experiences from so many people suffering numerous adverse side effects from the Covid vaccines. My symptoms seemed to have subsided after 3-4 months, but have spiked again and it's been another 4 months and I don't see any level of improvement. While my biggest symptom/issue is tinnitus, I also have a constant mild (but still aggravating) headache, tight and sore shoulder and neck muscles, a slight dizziness feeling, and a brain fog/racing brain that is unnerving.
I don't know if I'm just suffering from severe anxiety and depression coming out of the pandemic into a world that des not mirror what it was before Covid, or if it's truly related to the vaccine. If it is anxiety/depression, I'm totally uncomfortable taking any kind of medicine (SSRI's can cause/worsen tinnitus, which I do not need). I wish that folks who have had success / recovery would come back on here to tell their stories to give us hope. I truly don't want to live the rest of my life feeling like this. I feel like a different person than I was just over a year ago.
you are right but that is one the reasons that the activity is less now. I guess everyone here tried all recommended drugs,supplements, treatments and there is nothing left to try, there is nothing left to write.
after 15 months, I guess I am getting used to living with this thing. I still use 24 or 32 mg prednisolone everyday (16 mg morning 8 or 16 mg night)and If I try to decrease the dosage I immediately get worse.
I also started to use tramadol(ultram) and it changed my life. It is an opioid and it is the only pain killer that worked for my bone pain and pins/needles and heat attacks. I no longer feel constant pain but some brief attacks thanks to tramadol. but it is a pain to get prescription because for some reason the doctors are so reluctant to prescribe(they think I might get addicted to it). as long as it stops the pain who cares if I get addicted to it!! apparently my doctors do!!. theyt dont care about my pain, they dont care about how I struggle everyday but they do care if I get addicted to a painkiller....I dont know what to say. So if you have bone pain and pin/needle type neuropaty you should try tramadol. I tried gabapentin , cymbalta, and several other painkillers before tramadol but they had like 0 effect. and the good thing is it has no side effects for me. cymbalta had so many side effects but no real effect at all.
I also tried 10 day continous prolonged water fasting. I was planning to go at least 15 days but unfortunatly I had to stop becauase I lost 8 kilos in 10 days (55 kilos) . I was already underweight to begin with so I had to stop. I realized that I can go easily for 20 days or more. So now I am trying to gain weight and then I will try for a longer period. I felt a lot better after fasting but it was not a cure. many sources about prolonged fasting state that for serious diseases like cancer, autoimmune diseases fasting period should be longer than 30 days and close to 40. I dont know if I can do 30 but I will retry as soon as I am over 75 kilos. (I am 65 kilos now so 10 more kilos left). As your body starts to starve, logically it starts to eat unused/unimportant cells, so the longer the fasting period, the more spike proteins should be removed.
I am still thinking about getting apheresis but my conclusion is that it just gives some temporary relief (at most like 2/3 months for some and no change at all for some) and then everything comes back. so I am not sure if is worth it.
I am lucky Tinnutus and dizziness not come back yet, I still remember the horrible days with nonstop tinnutus. I am still not sure how I get rid of it but perhaps it was the blood cupping done at the back of my ears. They actually let the dirty blood full of with toxins jammed between the cells behind your ear out of your body. so I guess it was how I get rid of tinnutus. it is also called hacamat. I know the procedure seems a little painful but I felt no pain and I was relieved. Now I do hacamat once per month on my back and legs to remove the dirty blood full of with spike proteins, I am pretty sure it helps a lot.
so most of the time my life is very close to normal but I am very worried about my dependence on cortisone. I dont have any short term cortisone side effects, but I am worried about long term side effects of it like osteoperosis/osteonecrosis. I dont really care about tramadol since it seems to have no side effects other than addiction. I am very lucky it worked on me.
Thanks for the detailed reply. Glad to hear that you feel close to normal most of the time. Also very glad to hear that your tinnitus resolved. That gives me hope. I'll have to look into the blood cupping you mention. Were there any other things (supplements, etc.) that you think may have helped your tinnitus, or do you think it was just a matter of time while the inflammation reduced? I know a lot of people on here have mentioned that they started to get better and then had a relapse (or two). I guess that could be what I'm going through, but it's been 3+ months so it gets concerning that it could be permanent the longer it goes on. Anyway, thanks again for replying and sharing your experiences. I hope you continue to get better and back to normal.
About new diagnostic tests for neuroinflammation, I would like to share a link :
Jarred Younger, PhD, How brain inflammation causes ME/CFS
In a recent video, Dr. Younger talks about low dose naltrexone therapy:
On the German forum are told positive experiences with this treatment:
It is also interesting that a study is being conducted for patients with ME/CFS:
@ksharky13 @asanders I too have noticed a drop off in this forum- it's not because people have given up, it's because people are recovering and getting on with their lives. Also, it can be quite triggering coming back here. My wife had a SEVERE reaction- full MCAS, POTS, neurological symptoms- still ongoing some 9 months later, but improvement is there. To help her, I now peruse this forum: (4) Reddit - Dive into anything and this forum (4) vaccinelonghaulers (reddit.com) (i've never used reddit before and assumed I was too old! haha), but it is helpful on there. The main things that will help the majority of people are a low histamine diet, antihistamines, reduction of stress (ie exercise and work related- if possible do not work) and give the body time to adjust. This website has some useful summaries about what has helped people: Treatment Outcomes Survey analysis (react19.org)
My wife, like all is a work in progress, but with reducing chemicals, living cleanly and reducing stress the body can recover.
Blessings. I'm on [email protected] if you have questions,
Mark
Thanks for the detailed reply. Glad to hear that you feel close to normal most of the time. Also very glad to hear that your tinnitus resolved. That gives me hope. I'll have to look into the blood cupping you mention. Were there any other things (supplements, etc.) that you think may have helped your tinnitus, or do you think it was just a matter of time while the inflammation reduced? I know a lot of people on here have mentioned that they started to get better and then had a relapse (or two). I guess that could be what I'm going through, but it's been 3+ months so it gets concerning that it could be permanent the longer it goes on. Anyway, thanks again for replying and sharing your experiences. I hope you continue to get better and back to normal.
Actually other than tinnutus and dizziness nothing is resolved. I feel normal thanks to cortisone and tramadol. If I pass a single dose of cortisone all the inflammation comes back. So in reality nothing changed but I just dont feel the pain and symptoms as long as I am on cortisone.
tinnutis is totally gone tough. Most of my problems are in my lower body but every now and then I feel inflammation around my eyes and chin, and I have lip, tongue, and several face muscle twitches, and Trigeminal neuralgia but no tinnutus dizziness or headaches. I am pretty sure removing toxic blood behind my ears helped my tinnutus to resolve. I also used Betahistine dihydrochloride and Trimetazidine dihydrochloride during the time I had tinnutus. Of course starting cortisone early was probably another factor that helped.
My problem with inflammation is that I feel it all around in my body but my CRP levels are within normal range so my doctors refuse to accept that I have an inflammation problem and I have no clue why my crp levels are not elevated even tough inflammation destroys my body. My rheomotologits insists that the pain I feel in my knees, shoulders and hips are not bone pain but probably nerve pain.
My hemotologist thinks I dont have a blood clotting problem since D-dimer and other blood clotting related tests are normal. But I have abnormally high neutrophils and leukocytes and low eisonophils.
So still no diagnosis, no IVIG or another treatment by insurance.