Hey folks; I've been dealing with post vax issues for 16+ months now. At this point I am down to just a few real main symptoms that occur episodically; paresthesia (burning limbs / face) and dizziness. I've noticed that now any time something affects my ears/vestibular system (changes in elevation, head congestion, etc.) I become dizzy. This never happened before my vax injury, in fact, I would have had a hard time describing what it was to be dizzy before all of this. My ENT said that there is now an 18% difference (via caloric test) in my vestibular response between my left and right ears, but stated that was "subclinical" and didn't really have any recommendations for what to do about it. They did say it might get better on it's own, but that's little consolation. Has anyone else had this experience? Is there anything that can be done about this? Does it get better? Thanks.
I previously asked here about drinking coffee again. Has anyone successfully added it back into your life? I think it would help mask/improve my brain fog symptoms, plus I just really love coffee.
Those that have tried, did it make your symptoms worse at first and then did your body get use to it?
I began to drink less coffee, and I began to want it less. No more than a cup of coffee a day, or even less. The main thing is that the coffee is of high quality.
Hey we have an uncensored vax server up and running.. feel free to join to share ideas and helpful tips we currently have members getting positive results and improvements, 2 who have recovered fully
Link to discord: https://discord.gg/mWeeeWF6
Update from me: Mt tinnitus seems to be getting more noticeable more often, and slightly worse. The regimen of vitamins and supplements I’ve been taking (Turmeric, B12, D3, Krill oil and Zinc) does not seem to be having an effect. There are others I haven't tried yet (Glutathione, Devil's claw, etc.) that other people have indicated helped them. I’m going on 11 months since the tinnitus first showed up and while I seemed to have had a couple of periods of “getting better”, it now feels like this is going to be a permanent situation. I also still have a level of brain fog / anxiety too, which is not fun. I just don’t feel like the same person I was before this happened.
It’s all mild enough where I can live and function OK, so I am thankful for that. It’s just annoying and scary that these vaccines could have so many horrible adverse side effects for so many people. Who knows what side effects/conditions will develop over the coming years? I know the traffic on this forum has dropped way off and I just haven’t seen very many stories where people had their tinnitus resolve. I have seen a few where people indicated that it took 14-15 months to start to feel “back to normal”. That provides some level of hope. If anyone has had any success with resolving their tinnitus, please take a few minutes to tell your story on this forum.
Update from me: Mt tinnitus seems to be getting more noticeable more often, and slightly worse. The regimen of vitamins and supplements I’ve been taking (Turmeric, B12, D3, Krill oil and Zinc) does not seem to be having an effect. There are others I haven't tried yet (Glutathione, Devil's claw, etc.) that other people have indicated helped them. I’m going on 11 months since the tinnitus first showed up and while I seemed to have had a couple of periods of “getting better”, it now feels like this is going to be a permanent situation. I also still have a level of brain fog / anxiety too, which is not fun. I just don’t feel like the same person I was before this happened.
It’s all mild enough where I can live and function OK, so I am thankful for that. It’s just annoying and scary that these vaccines could have so many horrible adverse side effects for so many people. Who knows what side effects/conditions will develop over the coming years? I know the traffic on this forum has dropped way off and I just haven’t seen very many stories where people had their tinnitus resolve. I have seen a few where people indicated that it took 14-15 months to start to feel “back to normal”. That provides some level of hope. If anyone has had any success with resolving their tinnitus, please take a few minutes to tell your story on this forum.
15 months here since tinnitus started, and no sign of improvement.
In my opinion I'm pretty sure it's permanent. I've talked to people who have had tinnitus after a vaccine (not Pfizer or COVID) but flu or yellow fever vaccines, one of them had it for over 15 years...
The good news is that both people lived normally and got used to tinnitus by leading normal lives.
I've also seen cases where the intensity of the tinnitus has decreased (on case Pfizer or AZ vaccine), but I suspect it could be more habituation than the cure.
Update from me: Mt tinnitus seems to be getting more noticeable more often, and slightly worse. The regimen of vitamins and supplements I’ve been taking (Turmeric, B12, D3, Krill oil and Zinc) does not seem to be having an effect. There are others I haven't tried yet (Glutathione, Devil's claw, etc.) that other people have indicated helped them. I’m going on 11 months since the tinnitus first showed up and while I seemed to have had a couple of periods of “getting better”, it now feels like this is going to be a permanent situation. I also still have a level of brain fog / anxiety too, which is not fun. I just don’t feel like the same person I was before this happened.
It’s all mild enough where I can live and function OK, so I am thankful for that. It’s just annoying and scary that these vaccines could have so many horrible adverse side effects for so many people. Who knows what side effects/conditions will develop over the coming years? I know the traffic on this forum has dropped way off and I just haven’t seen very many stories where people had their tinnitus resolve. I have seen a few where people indicated that it took 14-15 months to start to feel “back to normal”. That provides some level of hope. If anyone has had any success with resolving their tinnitus, please take a few minutes to tell your story on this forum.
15 months here since tinnitus started, and no sign of improvement.
In my opinion I'm pretty sure it's permanent. I've talked to people who have had tinnitus after a vaccine (not Pfizer or COVID) but flu or yellow fever vaccines, one of them had it for over 15 years...
The good news is that both people lived normally and got used to tinnitus by leading normal lives.
I've also seen cases where the intensity of the tinnitus has decreased (on case Pfizer or AZ vaccine), but I suspect it could be more habituation than the cure.
Thanks for the quick and informative reply. Unfortunately I am slowly coming to the realization that the tinnitus is permanent. It seems to be the only side effect that doesn’t resolve over time. I wish the medical community would figure out what exactly these damn vaccines did to cause tinnitus. I was hoping it was inflammation that would subside, but it obviously damaged something. The worse part of this is that it’s highly likely that it was our own body’s immune response that created all of the havoc. I probably would have been fine if I had not gotten the booster. I was 8 months from my second pfizer dose and no issues. About 6 weeks after the booster is when the tinnitus and other crap started. I just hope it doesn’t get progressively worse and I can habituate over time. It’s already robbed me of things I like to do, like play my electric guitar and go to shows, concerts, etc. I hope we all get better with time. Let me l know if you ever start to have any luck with your tinnitus. Thanks again and take care.
Wow what a interesting post Jason thank you. A couple of the things you listed are exactly what I am experiencing from the T. I appreciate your post. There is team a b and c, I wonder which one I’m supposed to follow. Do you have the link to this article or info you found? maybe there’s other details listed to help me figure out which one to follow. Once again thank you this is what I am suffering from is MAst cell activation syndrome.
@plandistry
Hi Jason, thank you for your very informative post. I tick a lot of the boxes for the manifestations you describe. However, one I’m questioning is the burning/tingling. I have this but have been confirmed to have small fiber neuropathy through a biopsy. Has your wife had this test? I wonder if MCAS can cause this. And what are your thoughts on the microclots theory? Has your wife been tested for this? I am heading to South Africa in a couple of weeks to have this checked out.
I would also like your opinion on the following;
Is it generally best to take a probiotic that does not include histamine strains?
Same with magnesium, what kind do you recommend? I have tried magnesium citrate and had subsequent flare ups.
There are a few powerhouse supplements I have come across that you have not mentioned but all have strong therapeutic effects;
glutathione (powerful anti oxidant)
NAC (slows blood clotting, lung support)
Lions mane (anti-inflammatory)
Vit b complex (nerve support)
L-Lysin (essential amino acid)
fexofenadine (H1 antihistamine)
Nattokinase (clot buster)
Cromolyn (mast cell stabilizer)
LDN (anti inflammatory)
Cornzyme Q10 (mitochondrial support)
famotidine (reduce cytokines, vagus nerve support)
Betaine HCL (to increase stomach acid and decrease allergen reactions) - very underrated supplement
Would love to know your opinion on these and whether you have tried them at all?
Thanks!
I read you in total post on your treatment and ailments. I too have almost the exact same symptoms. Got second dose of Pfizer vac in aug 2021 and since then my works has turned upside down. I've seen every type of dr under the sun. Finally saw an immunologist who did genetic testing and discovered and mitochondrial myopathy. My follow up in Jan 9 to discuss further and Treat plan. I believe whole heartedly the vaccine caused this gene to ignite because I never had any issues like this prior to vaccine. I'm at A loss. 36 year old women and three little boys ages 5,3 and 1. I just want to feel and be their normal mom again❤️
I read you in total post on your treatment and ailments. I too have almost the exact same symptoms. Got second dose of Pfizer vac in aug 2021 and since then my works has turned upside down. I've seen every type of dr under the sun. Finally saw an immunologist who did genetic testing and discovered and mitochondrial myopathy. My follow up in Jan 9 to discuss further and Treat plan. I believe whole heartedly the vaccine caused this gene to ignite because I never had any issues like this prior to vaccine. I'm at A loss. 36 year old women and three little boys ages 5,3 and 1. I just want to feel and be their normal mom again❤️
@j still struggling. My second mri showed no change. Have another neuro appt and mri schedule for dec 9.
I did see an immunologist in the mean time who ran genetic testing and discovered a mitochondrial myopathy that he believes was triggered by the vaccine waiting for so follow up jan 9 to see where to go from here. This is a nightmare. I pray to God I can get healthy again. How are you doing?
Coagulation disorder is a phenomenon that is talked about so much, and microclots are a possible cause for bruises, which are a symptom that quite a few people report.
And many affected people describe that the symptoms appear in waves, there are periods of aggravation and periods of improvement.
This natural evolution of the symptoms overlaps with the action of various remedies and makes it very difficult to correctly evaluate the action of each remedy.
Because every aggravation or improvement that occurs may not be determined by that remedy, but by the processes of the disease, which, in fact, are rather difficult to master, compared to the effects, relatively moderate, that different remedies, in the right doses, can determine.
Therefore, a very good check of the effect of a remedy is necessary, in order to be able to state for sure that it helps or damages.
my INR and PTT levels were within range. CBC normal values. That was reassuring. I really should see a natural path to get some advice when taking natural herbs, these practitioners know what’s best and labs values that can help them determine what and how much I should be taking. I have reached out to two. I just need to set up an appointment. The only issues is this is not covered by Ontario health insurance.OHIP. I’ll update after my appointments with whoever. I was supposed to have a follow up with ENT on Friday but he canceled. So I’m waiting for the rebook date.
About microclots
I read you in total post on your treatment and ailments. I too have almost the exact same symptoms. Got second dose of Pfizer vac in aug 2021 and since then my works has turned upside down. I've seen every type of dr under the sun. Finally saw an immunologist who did genetic testing and discovered and mitochondrial myopathy. My follow up in Jan 9 to discuss further and Treat plan. I believe whole heartedly the vaccine caused this gene to ignite because I never had any issues like this prior to vaccine. I'm at A loss. 36 year old women and three little boys ages 5,3 and 1. I just want to feel and be their normal mom again❤️
wow you are so lucky to have those types of tests done. How did you get your doctor to go to that extent? I had a hell of a time trying to get my flammatory markers checked I had to tell a little fib as in my joints are aching and it comes and goes and can I have that checked? Did you get a referral to an immunologist? How did they determine you should see them?
best of luck to you I’m glad you were able to find something and start from there.
keep us updated
I saw a holistic dr that could not get to the bottom and luckily she referred me to dr ambrus he is in Buffalo ny. He ran genetic testing which was very expensive but gave me answers. I totally believe the vaccine unhinged my gene mutation. Mitochondrial myopathy is not a good diagnosis though...no cure only supportive treatment. Now I pray and wait that supplements and probably iv infusions can put this atleast into remission.
I wonder if that's what a lot of you are dealing with though bc all our symptoms sound so similar. Hope you find some answers. I know I wanted them but I will not lie this diagnosis is life changing:(
I saw a holistic dr that could not get to the bottom and luckily she referred me to dr ambrus he is in Buffalo ny. He ran genetic testing which was very expensive but gave me answers. I totally believe the vaccine unhinged my gene mutation. Mitochondrial myopathy is not a good diagnosis though...no cure only supportive treatment. Now I pray and wait that supplements and probably iv infusions can put this atleast into remission.
I wonder if that's what a lot of you are dealing with though bc all our symptoms sound so similar. Hope you find some answers. I know I wanted them but I will not lie this diagnosis is life changing:(