@thenystagmus Thankyou! I am glad to still be here! I wasn't really told anything from the drs, I felt like he totally brushed off the idea of my fainting being related to the sudden onset of redness in my arm...basically said my BP was low and acting up, I have had low BP my whole life and have never passed out because of it so it's definitely unexplained for me! I have no answers as to why I passed out! My gut is telling me it's from the vaccine, that's why I went in search for my own answers and found this forum!
Hi Gail, Sooo, just told you low, acting up BP... And, as a result, gave you treatment, told you to follow up with your doctor, advised you to...? My BP is borderline line low 90/60 and manage fine - I know not to stand up super fast, but it sure sounds like something changed for you.
thank you ! Just ordered , be here Monday! I’ll be 6 weeks on Monday , I miss running it was my escape!
also thanks to dizzyfromvaccine for all the info! I’ve tried alpha lio acid , resveratrol , I even did the ibuprofen for a week with high vitamin C, was even given a steroid taper pack , meclyzine,
so thanks yall!
Meant 800mg quercetin
Update from me.
4 weeks post Vaccine.
2.5 weeks with dizzyness, light headedness, pressure on back of head, ear clogged feeling, vetigo, waves of tirednes and an increasing sense of detatchment from what I was experiencing as my reality.
At 2.5 Weeks developed Tinnitus
Over the last 10 days I have only had 1 episode of vertigo (when climbing a tree) the pressure on the head feelings have more or less completely gone, no more light headedness, no more dizzyness and the fullness of the ear feeling...is still there but only when im laying down and its barely noticeable AND my sense of reality feels like its shifted back and I feel part of my experience again as opposed to detatched.
I am a VERY active person, example I went on a 4 hour hike yesterday and had no issues what so ever...BUT I felt a.bit tired today....so the fatigue/tiredness is just about still there but seems to be fading.
The Tinnitus, however feels like its getting progressively worse and I am having to change the way I respond to it.
Last night I accepted that I might have loud high pitched ringing in my ear forever and so I have now come to accept it is there and now i see it as background noise and NOT the only noise I am to focus on.
That simple shift in thinking has made a huge difference and I am hopeful that I can push the Tinnitus sound to the background permanently over time and live with it.
But I will still get an m.r.i anyway through GP to make sure there's nothing esle going on.
Hope this gives hope to those experiencing the same.
Ive had Tinnitus for 2 weeks now, so its early days on that one yet.
Has anyone had a lumbar puncture/their CSF tested?
No, I haven't had it mentioned to me. Is your doctor wanting to do that for some reason?
Hi there
Thanks for replying my message. No worry about your comments. We are all frustrated here with the side effects.
I got Pfizer on May 21 and the symptom of numbness started on May 27. It started on the left side (leg and arm and lip). I felt better the next day. Certain days I have certain symptoms but they are all some numbness and pin and needles (just in various places). It's here and there and it's like it moving around, pin and needle for short time at certain area. Couple times that I felt dizziness (or more like sleepiness) but it resolved quite quickly. Yesterday my left leg felt so tired (right leg was okay). Today both legs are okay. I talked to my cousin who is a doctor and he thinks I'm having Immunization stress-related response which the symptoms are real but no specific causes. He said it's less likely to be a true neurologic condition because my symptoms are not persistent (even though I thought it's persistent just not always the same places). I'll talk to my doctor today over the phone and see what he says.
Hope you're feeling better each day.
Yes, frustration is understandable - but it's really unproductive when I go to that place of worry, without doing anything about it. I'm trying to get out of that rut! I'm working on getting up my nerve to give a call to my ENT. At this point I don't have an appointment to follow-up on the test he ordered that I'll have next week. Only wanted to call me results, and I know from experience that I won't get all my questions answered with a test result call from his PA or nurse. Since it takes a while to get an appointment, I need to call to get one scheduled. First, I need to look back on my copies of the questionnaire I filled out when I saw him to see what symptoms I had developed at that point.
It seems that people that have a relative in medical care get more frank responses from them sometimes than from their doctors - you're lucky to have that! I hope you're fortunate to have the benefit of good input from your doctor today also. Thanks for your sharing! 🤗🙏
No, my doctor didn't deem it necessary back when she regarded my symptoms as 'migraine'. However, I know this is how certain neurological conditions are diagnosed - I moreso want to rule that out for myself. It's odd not having an answer - clear scans, clear bloods, clear neurological exam and yet, something's not right.
I had dizziness for about three months solid, maybe two or three weeks of that without. I haven't had dizziness in almost two months (am still on medication) but other symptoms such as headaches, ear pressure and finger numbness persist. Doesn't make much sense to me. Have had autoimmune bloods done (awaiting results) but just wondered about testing my actual CSF. Not meaning to draw anyone's attention to this - it's not a pleasant procedure and I'm sure it's not necessary at all. I just find it incredibly hard not having an answer. It's in my nature.
@elallen17 Looks like just the two supplements? Did you combine the Zinc & Quercetin w/ the one bottle?
No, my doctor didn't deem it necessary back when she regarded my symptoms as 'migraine'. However, I know this is how certain neurological conditions are diagnosed - I moreso want to rule that out for myself. It's odd not having an answer - clear scans, clear bloods, clear neurological exam and yet, something's not right.
I had dizziness for about three months solid, maybe two or three weeks of that without. I haven't had dizziness in almost two months (am still on medication) but other symptoms such as headaches, ear pressure and finger numbness persist. Doesn't make much sense to me. Have had autoimmune bloods done (awaiting results) but just wondered about testing my actual CSF. Not meaning to draw anyone's attention to this - it's not a pleasant procedure and I'm sure it's not necessary at all. I just find it incredibly hard not having an answer. It's in my nature.
I can relate to wanting answers. I've been curious since childhood and never have lost that. I enjoy learning and don't plan to stop. But I do wonder if this stuff we're going through is "Novelle" - like they early on called the coronavirus that we were vaccinated for - and they really don't know what tests will pin down what's going on with us.
It will be good for you to get your autoimmune test results back. I had some preliminary ones done and was actually relieved that ultimately none of them showed issues needing attention, but like you, I still would like anything tracked down that could be identified and resolving treatment given, if warranted.
But, yeah - lumbar puncture would be about the last thing I'd want to go through, considering the inherent risks involved! My son had a CSF puncture through his scalp into his VP shunt tubing that subsequently got surgically replaced. He was about to be dismissed several days post-surgery when they came up with a slow-growing positive CSF culture from the puncture. They thought it was most likely a contaminated sample, but couldn't take chances with a possible meningitis, so he had to have IV therapy for a while. He was just lucky that they didn't feel it necessary to surgically externalize his imbedded VP shunt tubing and then replace it again after the antibiotics.
Sooo, I would think the risk of meningitis with lumbar puncture to sample CSF could be a serious consideration, and I would think that suspicion of those kinds of diagnoses might need to be strong to warrant doing it.
I have a sister who is a registered nurse at a hospital in Boston, MA. She contracted Covid-19 in March of 2020. During this time she lost her sense of taste and smell and developed tinnitus. It took a full year for her sense of smell and taste to come back, and it took a good 6 months for the tinnitus to go away. She said at times the tinnitus was the worst...
She did go on and got both doses of the vaccine and none of the symptoms she had from Covid-19 returned.
She also told me if my tinnitus is from the vaccine (which it DEFINITELY IS!) then it is only temporary...
@latency Yes. Muscle cramps in my toes for weeks. I didn't even think it was related Hmmmm....
I have a sister who is a registered nurse at a hospital in Boston, MA. She contracted Covid-19 in March of 2020. During this time she lost her sense of taste and smell and developed tinnitus. It took a full year for her sense of smell and taste to come back, and it took a good 6 months for the tinnitus to go away. She said at times the tinnitus was the worst...
She did go on and got both doses of the vaccine and none of the symptoms she had from Covid-19 returned.
She also told me if my tinnitus is from the vaccine (which it DEFINITELY IS!) then it is only temporary...
@gingerjones That is reassuring thank you for your feedback. I am a little over 6 weeks from shot. Some days are normal. Some days I get "surprise" symptoms.
I've been following this thread for a while and decided I'd post everything that's happened up to this point. I received my first dose of moderna 4/1. Few days after, my left ear canal felt swelled, but went away 1-2 days after, and about 1-2 weeks later I began experiencing severe vertigo, but only for 10-30 seconds at a time. This was triggered by fast head movements, laying completely flat, or turning my head in a certain direction. Around the beginning of May, my vertigo almost completely subsided, but had minor dizziness (No spinning, but more of s shaky feeling) when laying down flat, or again making fast head movements. Visited a physician who claimed it was an outer ear infection, and provided nasal spray with a 7 day cycle of steroids for the ear, but honestly I didn't notice much of a difference from those.
The remnants I dealt with throughout may was ear fullness, though now since late may I feel like the symptoms have improved even more, Ears still feel full, but just a lot less, or only in one ear whereas in the past sometimes both ears would feel full, or one ear very full. What seemed to help was watching a youtube vid by an ear doctor who showed all these techniques to open the ears up, oddly enough what seemed to help the most was swishing around coconut oil in my mouth for a few minutes and spitting it out.
One thing that has me concerned is someone here had mentioned a family member who dealt with vertigo and eventually they found out it was a brain tumor. (Which thankfully they had a successful outcome) What I'm wondering is if this ear fullness could be related to something like that, and the ear infection/fullness caused it to press up against the vestibular nerve. The reason I'm worried is because I've been dealing with these "very minor" symptoms for over a month now, it being so minor that it's really difficult to gauge improvement, or even explain how it feels besides maybe a heavy head and light shakiness. A few more things to add is that once I began clearing/opening up my ear, I had an almost relieving 1-2 second sharp pain in that ear. I also notice that when I close my eyes, it feels like they're moving left/right for a few seconds before keeping still.
I'm hoping that this is all just because of the remaining ear fullness, and that once it's gone things are back to normal. But for the most part, the majority of the symptoms have seen significant improvement from the beginning.
