Thank you. I really appreciate your quick response. I'm going to try these.
Thank you so much. I will be going out first thing tomorrow and purchasing them. Gotta feel like I'm trying to do something. Doctors are just stumped.
@thenystagmus Hi Sassafras, sorry you had to go through all you did yesterday, sounds like your day was horrendous. It seems you have a diagnosis now that absolutely makes sense with the symptoms you describe. I don't know if you've seen it but there is a very good article here on the VeDA website called Vision Challenges With Vestibular Disorders, there's also a pdf version for download. It describes vestibular ocular reflex dysfunction and explains the symptoms you have. I hope the Medrol takes effect quickly for you to have some relief from this nightmare. Good to hear your air conditioning has been fixed, that's one thing off your mind. Wishing you much improvement over the coming days. Take care.🙏😊
Wow, thank you for the article! Just read it, but it's much more than I can absorb in one read, especially now that my brain seems really addled again with this reoccurrence. Some of it fits, thankfully other parts don't.
This seems like a description of symptoms, but doesn't explain to me what is thought has happened for me to have them. Like vertigo or nystagmus is a symptom, but not really a diagnosis. I know they are saying this of me because of my testing last week, mostly the rotary chair tests showing my issues. I'm sure I'll learn more when I restart vestibular therapy again next month ...it sounds like I'm going to need a lot of it.
I'm 66 and was scheduled to get evaluated for cataract surgery a week after my vaccination, but had to cancel. Now I'm wondering how that figures in?
Before I went to bed last night I looked out and the tree leaves seemed to be in motion with wind, but the motion looked funny. So I opened the door - no wind. It was my vision wavering with nystagmus. What a crazy deal this all is!!! The past 2 days I feel a bit better in the afternoon and worse in the morning and worse again in the evening/night.
The Medrol wasn't called to the pharmacy today, so I get to dial the ENT's phone once again in the morning.
I'm heading to try to get some sleep ...I hope you did better with that last night!😏 🙏
Had that type of visual migraine only 1 time many years ago. No pain, but zig zag like. My started peripherally slowly coming towards center. Kinda like a curtain closing. I was alone and out shopping. Went to my car, immediately took Excedrin. Within approx 25 minutes, my vision started coming back. It was just the opposite of the way it left. My central vision returned first and like curtains were being opened this time. Never had it again.
Had that type of visual migraine only 1 time many years ago. No pain, but zig zag like. My started peripherally slowly coming towards center. Kinda like a curtain closing. I was alone and out shopping. Went to my car, immediately took Excedrin. Within approx 25 minutes, my vision started coming back. It was just the opposite of the way it left. My central vision returned first and like curtains were being opened this time. Never had it again.
Yes, my central vision also comes back first, but it first starts in the center. Can't read what I'm looking directly at. The first time it happened to me at work, I called my eye doctor a bit freaked out and got it explained to me. Found out later my dad and his half-sister had some of them, too.
It's the darndest thing I'd ever gone through ...until now!! LOL!!! 😂
@onaboatforover30days Thank you for sharing this info and I do hope the Betahistine Dihydrochloride works for you. They prescribed that to me on the assumption I had a vestibular migraine and this medication increases blood flow to the areas of the body that will combat migraines and imbalance. All we can do is tell ourselves we will get better and try different things to take control of these symptoms rather than them controlling us! If you look at ANY vaccine trial data there were high numbers of people displaying vertigo, dizziness, syncope and vestibular neuritis so there was always a chance some people would get it. The frustration for me is how many people are suffering with anxiety associated with these delayed and long lasting side effects and the non existent support out there. I wish the trial data could tell us how long this lasted for each person and what on earth we do to fix it. I wish you luck with it all and yes please keep us all updated and I will do the same. X
Here's the other issue I'm now worried about. I've taken solace in the probability that as the efficacy of the vaccine starts to wane, so will the side effects, fingers crossed no permanent damage. Here is my dilemma. I'm a healthcare worker, in a hospital (off since March due to unrelenting dizziness). The current trend appears to be that hospital systems across the USA are making it mandatory that their employees take a Covid19 vaccine in order to remain employed. I had no intention of taking any future booster shots for obvious reasons. I'm 63 yrs old and wasn't planning on retiring for another few years. I'm scared of what my future holds. Any suggestions?
Well......I would have suggested using the religious claim as means to avoid having to take more covid shots.....but you kinda blew that option out of the water by getting vaccinated the first time. You've ALREADY BEEN vaccinated,so it's not like they can require you to do something you've already done......and HAVE THE PROOF to show,if need be.
I think if you can just somehow manage to recover from the vaccines you've already taken,you should be good to go. They'll likely just ask you if you've been vaccinated.....period. I don't see hospitals asking people who apply for work if they've taken "boosters" right out the gate. They're just gonna want to know if you've been vaccinated AT ALL.
Can't really give any advice on how to recover,as I'm UN-vaccinated. All these stories I'm reading on this forum about all the horrible side effects,dizziness,heart issues,etc,etc........sounds like a NIGHTMARE,which,I want NO PART OF. I don't have any of these problems/ailments. All I can do is wish everyone here well.
@thenystagmus Hi, yes, that's question we're all asking isn't it "why". I doubt whether they will say there is a connection with the vaccine, seems to me that topic is taboo. Hopefully your MRI will give you the answers you need to speed your recovery.
I'm pleased for you that your Covid19 antibody test came back negative, another thing less to worry about.👍
I did have a better night last night thanks, I feel better this morning for it too.
I am of the opinion that the vaccine has caused an inflammatory response and I am personally working on that theory because it gives me hope that it will eventually subside.
Someone here, Sunshine I think, has recently posted about Gregory A. Poland, MR who contracted tinnitus after the vaccine. It's a good read, he believes these symptoms are "inflammatory responses that will disappear completely or considerably diminish over time".🙏😊
Same thing here! I went to ER yesterday for a quick check-up. They did a basic test (blood pressure, sugar levels, heart listening etc. all fine. The doctor told me it's not because of vaccine (which I did 11 days ago and I am not on my 5th day of dizziness).
He then prescribed me the same treatment as you, betahistine (or SERC how it is called here in Spain). 1 pill every 8h for 7 days, I'm on my 2nd pill only I will write an update if anything changes.
Hi All,
Try to contact with Gregory A. Poland, MD, a vaccinologist and director of the vaccine research group at the Mayo Clinic. He has been suffering tinnitus after his second dose.
No one knows what happened to us. But he has more resources to get help. Try to contact him. Let him know the forum.
Great post Sunshine, good to read this coming from a "main man", very encouraging to hear he believes this is an inflammatory response that will "either disappear completely or considerably diminish over time".
@thenystagmus Hi, yes, that's question we're all asking isn't it "why". I doubt whether they will say there is a connection with the vaccine, seems to me that topic is taboo. Hopefully your MRI will give you the answers you need to speed your recovery.
I'm pleased for you that your Covid19 antibody test came back negative, another thing less to worry about.👍
I did have a better night last night thanks, I feel better this morning for it too.
I am of the opinion that the vaccine has caused an inflammatory response and I am personally working on that theory because it gives me hope that it will eventually subside.
Someone here, Sunshine I think, has recently posted about Gregory A. Poland, MR who contracted tinnitus after the vaccine. It's a good read, he believes these symptoms are "inflammatory responses that will disappear completely or considerably diminish over time".🙏😊
MD not MR, darned predicted text.
@nodiagnosis ok I’ve never heard of them used for dizziness before they are normally given for anxiety or for people with heart problems. I have Propranolol which I can take 3 times a day or just as and when needed. I don’t regularly take these because I’m not anxious all the time. It’s the dizziness that makes me anxious not the other way around and it took some convincing to explain that to my doctor!
Yes I agree, the dizziness makes me anxious too. Doctors are to quick on the draw to pin things down to anxiety.
@tabby 100% they were trying to convince me that post vaccine anxiety was causing all of my symptoms. Absolutely infuriating when it’s the other way around! They listened eventually and I guess it’s a process of elimination for doctors. Got to try to take control of this anxiety though when it rears up and not read too much online either because that makes it worse. Let’s face it none of us are doctors, nobody really knows what’s going on, doctors included and we are all different. All we do know for sure are the facts that the vaccine trial data clearly states many other people had these symptoms afterwards, we got unlucky and just have to get used to living with this and finding and sharing things that help us and using this forum for support until the symptoms go away which I believe they will.
We need to support each other with sharing helpful information, positive thinking, actions and advice. I think we are all upset and angry but at least we don’t have covid, we have our lives and although it’s upsetting that we have been left unsupported with nowhere to turn we do have each other on here at least and it’s vital we give each other some sort of hope!x
@tabby 100% they were trying to convince me that post vaccine anxiety was causing all of my symptoms. Absolutely infuriating when it’s the other way around! They listened eventually and I guess it’s a process of elimination for doctors. Got to try to take control of this anxiety though when it rears up and not read too much online either because that makes it worse. Let’s face it none of us are doctors, nobody really knows what’s going on, doctors included and we are all different. All we do know for sure are the facts that the vaccine trial data clearly states many other people had these symptoms afterwards, we got unlucky and just have to get used to living with this and finding and sharing things that help us and using this forum for support until the symptoms go away which I believe they will.
We need to support each other with sharing helpful information, positive thinking, actions and advice. I think we are all upset and angry but at least we don’t have covid, we have our lives and although it’s upsetting that we have been left unsupported with nowhere to turn we do have each other on here at least and it’s vital we give each other some sort of hope!x
Absolutely. What is done is done. We have to learn from it, make sure we don't make such a bad misstep again, and help each other onward since this is the road we are on whether we like it or not.
We need to support each other with sharing helpful information, positive thinking, actions and advice. I think we are all upset and angry but at least we don’t have covid, we have our lives and although it’s upsetting that we have been left unsupported with nowhere to turn we do have each other on here at least and it’s vital we give each other some sort of hope!x
Spot on with this. Whilst my other symptoms remain largely the same 3 weeks post vaccine, finding this forum and reading everybody's post has had a hugely positive effect on my anxiety levels. Sometimes it's just nice to know your not alone.