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Dizzyfromvaccine
(@dizzyfromvaccine)
Estimable Member
Joined: 5 months ago
Posts: 145
 
Posted by: @heybro

Guys!  There is a group of doctors treating "post vaccine inflammatory syndrome" with Ivermectin.

https://covid19criticalcare.com/covid-19-protocols/i-recover-protocol/

Super interesting. I had some of the side effects from it. It apparently can lower your blood pressure making your heart beat fast.  Felt like my arm was numb. I thought I was having a heart attack but I am very sensitive to medications. And apparently this known possible side effect is not dangerous - just uncomfortable.  Overall I understand Ivermectin is a safe medication widely used for other purposes. 


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Karen R. Mizrach
(@krmizrachgmail-com)
Eminent Member Patient Forum Moderator
Joined: 1 year ago
Posts: 49
 

@thenystagmus 

 

Hi there! Such an interesting question. My first thoughts are that all these vestibular disorders are prone to having relapses, and they can take on different forms/symptoms over time. Once your brain/ears/body has had a traumatic event it becomes super sensitive to various stimuli and triggers. And since there is no cure, the condition is always there, able to be ignited again. It can be very frustrating to have progressed and improved only to one day feel plunged back into the mess. But, the good news is, two things. First of all, people usually have learned what triggers are problematic and can quickly try to calm them. Also, often times the reoccurrences are not as severe and recovery can be quicker. Of course this could be because we've adapted and are not as thrown as we were in the beginning. I'll keep an eye out for more information on this. 


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Sassafras
(@thenystagmus)
Prominent Member
Joined: 8 months ago
Posts: 820
 

@krmizrachgmail-com 

Hello Karen, Thanks for replying! Wow, I didn't realize that there would be an ongoing weakness and the need to identify triggers. Not something that's come across to me, despite lots of researching. But that makes sense to me somewhat. If it was my knee that had been hurt, I'd understand it completely. But my vestibular system isn't as visible, not well understood by me, and I realize I've taken it largely for granted!

It seems mysterious to me to identify triggers, since I don't know any I've tripped, except asking my body to deal with Covid-19 vaccine. That's pretty easy for me to choose to avoid doing, since my life has become so affected since then. But I've only gotten one vaccine, so that's not my trigger for relapsing. So, I guess there's more to it than that... 

As for learning how to calm episodes, I've got a lot to learn, also, I'm sure. So far, I've  become sedentary and done a Medrol taper steroid pack, but I don't think that seems to be a good long term strategy. I'm waiting to get into vestibular therapy in about a month. I got to start that and do a couple of visits a while back, but went through a change of insurance and PCP, so I'm waiting to restart it.

A perplexing labyrinth in a number of ways ...thanks for offering your insight from being on the path ahead!

Best wishes, Sassafras


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Sassafras
(@thenystagmus)
Prominent Member
Joined: 8 months ago
Posts: 820
 
Posted by: @tabby

@thenystagamus Hi Sassafras, I hope your new med has started to kick in and is giving you some relief from your vertigo. I'm in migraine 😡 mode again so keeping a low profile today. Wishing you all the best.🙏😊

Hi Tabby, I'm so sorry you're in migraine mode again today. I was just thinking a day or two ago that I didn't think I'd heard that you were doing that as often as you were there for a while. I get the impression that you've dealt with this for an extended time in your life, so you probably have way more experience than you care for in dealing with it. With a family history of my mom and her sister having them, I feel fortunate not to myself; I just quite rarely have the short non-painful visual migraines.

Thank you for asking how I'm doing. My Medrol seems to be starting to slowly make a little difference. I was happy that when I did my nighttime test last night of looking out the window in darkness at the trees to see if my vision was shaking with my new oscillopsia symptom, that the leaves were moving, but there was an explanatory breeze when I opened the door to check. LOL, so I couldn't really do my test. But when I careened down my hall in the dark, I didn't find either of the walls with my shoulders and bounce off them, so that was better. I'm trying to slowly start moving my head a bit more and not evoking such severe vertigo, nystagmus and nausea when I do.

It will be such a relief to get my MRI behind me later this month, since I have added and continue to have a number of one-sided symptoms with facial nerve issues, mild tinnitus, ear fullness & mild pain, and slightly increased diminished hearing all on one side along my journey. So, ruling out some worrisome diagnoses with an MRI will be good. Even my recalcitrant ENT came around to that opinion independently, after seeing me in my sadly relapsed state on Monday. So, that's scheduled for me on the 29th.

I've reduced a lot of my stress level by not constantly comparing my abilities now to what they were before all this started and not chiding myself over the differences. Que sera, sera! 😏

I hope you have good success in laying low while recovering from your migraine today. 😔🙏


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Tabby
(@tabby)
Reputable Member
Joined: 7 months ago
Posts: 338
 

@thenystagmus  Oh my goodness you are going through it, I'm pleased to hear that there is some small improvement though. Yes, hopefully things will be much clearer after your MRI and that will put you on the right path to recovery. Migraine still with me and Henry's given up the ghost so I've got to go out later to replace him. Hope your symptoms continue to improve, just take it easy for a while, baby steps, it will pass.🙏😊


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Sassafras
(@thenystagmus)
Prominent Member
Joined: 8 months ago
Posts: 820
 
Posted by: @tabby

@thenystagmus  Oh my goodness you are going through it, I'm pleased to hear that there is some small improvement though. Yes, hopefully things will be much clearer after your MRI and that will put you on the right path to recovery. Migraine still with me and Henry's given up the ghost so I've got to go out later to replace him. Hope your symptoms continue to improve, just take it easy for a while, baby steps, it will pass.🙏😊

Ok, who is Henry? Or is this a colloquial saying that I'm not familiar with? 🧐


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Nasu
 Nasu
(@nasu)
Eminent Member
Joined: 7 months ago
Posts: 34
 
Posted by: @rachie

Update - cerrazine seems to be working better for dizziness than Behistine. Can buy cerrazine without a prescription. Have also been drinking a fruit and vegetable smoothie daily made with lots of anti inflammatory fruit and vegetables and ones that are high sources of glutathione. Added some almonds too as a good vitamin source.

Cut out caffeine, drinking diluted fruit juice with added vitamin c and a reduced dose of the glutathione, quercetin and zinc.

Awaiting call from naturaldoctor.org regarding ivermectin treatment. I'll update you regarding this when I know more. #maxoutthecreditcardtogetwell

Most expensive free vaccine I've ever had! 

Lol 

Lets beat this guys! X

What is cerrazine?  Is it anti-histamine zyrtec or citirizine?  


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Bro
 Bro
(@heybro)
Trusted Member
Joined: 5 months ago
Posts: 53
 

I just wanted to let you guys know that taking Turmeric made me worse.

It seemed to help but it also caused bloating which I wasn't really aware of and was making things worse.  Because of the mixed message, I took more which made it even worse.

It's finally clearing out of my system.  The bloating caused more pressure to an already inflamed space which made my nerves go crazy.  It was really scary.  It's back to just being bad instead of super bad.

It's hard to know what to try.  I just want to say to try one thing at a time if you can and to go slow.


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Sassafras
(@thenystagmus)
Prominent Member
Joined: 8 months ago
Posts: 820
 
Posted by: @heybro

I just wanted to let you guys know that taking Turmeric made me worse.

It seemed to help but it also caused bloating which I wasn't really aware of and was making things worse.  Because of the mixed message, I took more which made it even worse.

It's finally clearing out of my system.  The bloating caused more pressure to an already inflamed space which made my nerves go crazy.  It was really scary.  It's back to just being bad instead of super bad.

It's hard to know what to try.  I just want to say to try one thing at a time if you can and to go slow.

Ouch! I'm glad you were able to figure out what went wrong. I was researching Tumeric last night. When I saw it could worsen gall bladder issues, I decided to make a wide detour around it, since I've avoided gall bladder surgery so far by keeping the fat in my diet to a low level. When I eat too much fat, I pay dearly.

Lately my digestion seems to be out of whack with all the rest of this stuff, especially with nausea, etc...

I really agree about trying one thing at a time and going slow. I think that is a really sane way to try to keep tabs on results of changes. 

I hope you'll improve soon and steadily 👍🙏


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Nasu
 Nasu
(@nasu)
Eminent Member
Joined: 7 months ago
Posts: 34
 
Posted by: @heybro

I just wanted to let you guys know that taking Turmeric made me worse.

It seemed to help but it also caused bloating which I wasn't really aware of and was making things worse.  Because of the mixed message, I took more which made it even worse.

It's finally clearing out of my system.  The bloating caused more pressure to an already inflamed space which made my nerves go crazy.  It was really scary.  It's back to just being bad instead of super bad.

It's hard to know what to try.  I just want to say to try one thing at a time if you can and to go slow.

Turmeric supplement ie  curcumin has not shown to reduce inflammation in this study. 

https://www.consumerreports.org/dietary-supplements/does-turmeric-really-reduce-inflammation/


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Adnanalkurdi
(@adnanalkurdi)
New Member
Joined: 4 months ago
Posts: 1
 

@chels8957 I'm having the same side effect in the same order , me and my wife actually , I was wondering how long did it last for ?

Its very disturbing....


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pittdcr412
(@riegd412412)
New Member
Joined: 4 months ago
Posts: 2
 

@jenmast how are you feeling I had a similar experience but do not have any of those. How long did it last for the spasms and cramps. Did you do anything? 


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Sarah
(@lilu906)
Trusted Member
Joined: 5 months ago
Posts: 74
 

Helpful link:

https://www.exstnc.com/

This post was modified 4 months ago by Sarah

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Gloria M
(@gloriam)
Estimable Member
Joined: 7 months ago
Posts: 123
 

@lilu906 

thank you Sarah. I certainly will check it out. Also a Nobel price was won a Linus Pauling years ago for the efficacy of Vitamin C but it is still poop pooed by many medical doctors today. Basically I think our health system sucks and so much is overlooked due to ignorance in the profession. Not nurses bit doctors. 


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Gloria M
(@gloriam)
Estimable Member
Joined: 7 months ago
Posts: 123
 

@lexie111 

Yes, yes, yes! May we all get well and sooner rather than later. I am soooooo ready as m sure we are all. ❤️🥰❤️


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