@thenystagmus I also have nystagmus, vertigo and developed double vision post vaccine. I have hope that vertigo and nystagmus may improve with vestibular PT. Still trying to solve why double vision happened 5 weeks post vaccine. Prayers!
@isismadec i asked the same question to myself. I was so isolated in my after vaccination disorder till i found this forum.
Hi @norcallynda - No, I have never had these symptoms before, no Menieres. I started getting light dizzy spells about 4-5 days after first Pfizer vaccine. Going on 8 weeks now of varying degrees of dizziness and tinnitus - a couple of times so bad, with non stop vomiting, I had to go to the hospital. I have started on Meclizine 25 mg 4 times a day for 5 days, now down to 3 times. Seems to be helping some but I have had a few goods days and then, wham, knocks me on my butt - and I wind up in the hospital. It does seem like this week after being on the meds I am having less severe dizzy surges but still constant tinnitus seems mostly in left ear. I am also taking plenty of vitamin C as some on here are doing.
Trying physical therapy tomorrow at a vestibular rehab place. We'll see. Sounds like from many here that it either goes away or it doesn't. I am hoping it goes away!!
Two in a half weeks after my first covid shot. Moderna. It's seems like I went through different stages first nausea. Dizziness light headed. Brain fog. I was taking vitamin c twice a day along with Tylenol and or ibuprofen whatever helped.. I started feeling better until I stopped the vitamin c. After 8 days of that I started to get the headache. Started in the back of my neck to the top of my head. Then my right ear started acting up. It wasn't ringing but . You know that feeling after you swim like there is something in there that you can't get out. 3 days after that started. It turned into what I would call a popping sound.. such a weird feeling. So when that started my cheek swelled up then my eye , pain behind my ear and my temples hurt. So I went to the doctor. He strongly suggested that I not get my second shot. My head and my hair hurt so bad they gave me a toradol shot and some prednisone to stop the pain and swelling. Also got me an emergency eye appointment that same day to make sure there wasn't any damage to my eyes. Grateful to know I have 20/20 vision . No damage to my eye. At 55 that was a good thing. So I feel much much better . Prenisone is working like it should. And I canceled my second shot. So. That is my moderna story. I am going to report this to Vears website. I think they need this information for further vaccine development.. . And I am so grateful to have found you all here . Who are having the same effects as I am . I am not alone. So. Hang in there. Hopeful for a better vaccine in the future.
I submitted a VAERS E-Report about a week and a half after symptoms started. Several days afterward I decided to update my information. To do so, the VAERS site states that you must request a "one-time-use, case sensitive key to access the system." I did that and have not heard back from them. My request for the key was on March 7.
Needless to say, I'm not happy about the lack of a response.
I had severe flu symptoms for 24 hours following my second dose of Pfizer. After sleeping that off for 16 hours (!!!) I woke up and was really dizzy. 48 hours later, I still can't drive, went to Urgent Care, and was told I have Vertigo. Given meds and will be scheduling therapy with an ENT.
I have never had vertigo in my life. I believe this was brought on by the vaccine either from the shot or from the extended sleep time? Unsure. But very coincidental if it's unrelated and seeing all these other posts.
I am on the CDC site trying to figure out how to report this but it looks like only doctors can fill out this VAERS form. I guess it's entirely up to the docs and if they fill out this paperwork now? But I'm telling everyone I know.
I'm 40, female. I wonder if we all have anything specific in common that made us have this reaction? My 70 year old parents barely had ANY side effects!!
@joerescen Good idea to go to the press! I literally thought I had a brain aneurysm or something!!! It was TERRIFYING as I had never had vertigo before!
Update: Almost 4 weeks since 1st Pfizer. All bloodwork came back fine, was told to just wait it out. Some improvement of brain fog and the constant off balance feeling. I will be getting my 2nd dose tomorrow, after much debate. I am terrified my symptoms will worsen. However, my reasons for wanting to be vaccinated haven't changed. I have an underlying health condition that could make a covid infection severe. I guess if this is how I'm going to feel for the foreseeable future, I'd like to not have to worry about Covid, too. I'm nervous, but rolling the dice and hoping for the best.
I am due to get my 2nd dose on 3/28. I received my 1st shot on 3/7, by 3/9 had sever vertigo symptoms. I do have a history of vertigo, but nothing like what happened on 3/9. I woke up room was spinning, vomiting was out of control. Just slept all day to relieve the symptoms. I have a phone call with my primary today...need to know if I should take 2nd dose.
@asimps Hi Amber, I can relate. Am very worried that the vertigo, tinnitus, and nausea will get worse or more with the second shot. BUT I also have serious issues with the electrical system of my heart, asthma and am overweight which already predisposes me to bad outcome of I get COVID. Also, I am 54 and have not seen my family except by Zoom for over a year and friends sitting apart in the backyard weather allowing. I can’t live my life like that.
So unless one of my doctors tells me different, I will also get my second dose. I hope all goes well for your second shot, all current issues resolve, and then you are well protected from covid.
Take Care,
Moira
Hi everyone - I wanted to share my COVID-19 vaccine story in hopes that it helps others and acknowledges that side effects may last longer than "a few days."
Information about me:
- I am a 35 yo active female.
- I have asthma and seasonal allergies.
- I am allergic to insect bites - when bitten, the area becomes red, swollen, and hot. I am also allergic to ibuprofen - I experience facial swelling when taking it.
I received my first Moderna vaccine dose on February 5th. About 20 minutes after, as I was driving home, I experienced rapid heartbeat and lightheadedness. I was able to calm myself and these symptoms passed within a few minutes. I attributed it to feeling a sense of excitement and relief to get the vaccine. For two days after the first dose, I had brain fog, chills, and fatigue. I also had a sore arm.
I didn't think twice about getting the second Moderna dose on March 8th. I received the shot and again, 20 minutes after, started experiencing rapid heartbeat and lightheadedness. When I turned my head, I felt dizzy and like I was going to pass out. This time, though, the feeling of dizziness and lightheadedness did not pass right away. I have experienced ongoing dizziness and lightheadedness for 14 straight days.
I am currently 15 days post-second dose and the dizziness has just now started to lift. I am able to work again and walk without fear of passing out.
Here's a timeline of what has happened over the past 15 days for reference:
- My injection site become red and hot 2 days after the second shot and went away by day 5.
- On day 7 post-vaccine, I became concerned about my continued dizziness and lightheadedness and went to my PCP. My PCP prescribed Flonase, Zyrtec, and meclizine (Zofran). As some others in the forum have suggested, the meclizine made me groggy, sleepy and did not help with dizziness. I stopped taking it, but continued Flonase and Zyrtec.
- On day 8, I had bloodwork (normal) and urinalysis (normal).
- On day 13, after reading posts in this forum, I began eating foods with a lot of Vitamin C, started taking Aleve as an anti-inflammatory (since I'm allergic to ibuprofen). I cut out processed foods.
- On day 14, I had a hearing test with an audiologist (normal) and was tested for BPPV (negative). ENT recommended vestibular therapy and VNG testing.
- Today, day 15, I am finally beginning to experience bouts of dizziness, rather than ongoing dizziness. I am hopeful that the improvements continue.
I got my second Moderna shot this past Friday afternoon. I became very sick for the weekend and today it is Tuesday and I am still feeling weak, disoriented and dizzy.
@hollyd Has anyone tried the Epley maneuver on you? If that doesn't improve things, I would get a simple hearing test and see a quality ENT. Low tone hearing loss in one or both ears combined with your symptoms, could suggest Menieres. Good you are trying rehab. Feel better soon!
@hollyd Has anyone tried the Epley maneuver on you? If that doesn't improve things, I would get a simple hearing test and see a quality ENT. Low tone hearing loss in one or both ears combined with your symptoms, could suggest Menieres. Good you are trying rehab. Feel better soon!