i received first doze of astra zenica 2 weeks later severe back pain 1 week later admitted to acute stroke unit with bilateral facial paralysis, in hopital close for a week, had a cat scan , 3 mri scans last one with a dye injected iv had a lumbar punch they took lots of blood, neurologist is confident its an unusual variant of guillen barre syndrome that attacks the nerve peripherals , no underlying health conditions... has anyone else heard of this,, neurologist told me there are clusters of this condition popping up all over the country...(uk)
@lpycb42 Each person reacts differently, so I am not offering advice. Just my experience. I had the second dose as scheduled. My symptoms didn’t seem to worsen. However, if I had skipped the second dose, my symptoms may not have lasted for as long as they have. I still get dizzy but with less frequency and intensity. (My first reaction was on 02/04.)
Wanted to do a quick update to my experience and what I've learned so far:
4/16: First Pfizer shot
5/7: Dizziness and other symptoms started
5/21: Tachycardia events started
Today: Going on over two months of on and off symptoms and seeing multiple specialists who provide very vague answers to what's going on. I finally met with a "long covid doctor" which has been the only doctor that made any sense so far. This guy almost wouldn't talk to me because he doesn't deal with patients with vaccine effects. He specifically deals with covid patients but made an exception to talk to me. I told him my story and we went back and forth about what the problem could be. Then he brought up something called dysautonomia which he has seen a lot with long covid.
Dysautonomia causes disruptions in the dysautonomic nervous system which regulates blood pressure, heart rate, and a list of other functions. Anyone can do a Google search and see why this makes sense with all the problems everyone is having here and other forums. The way the doctor explained it to me was like this: Two people have cell phones that are in perfect working condition but when you call each other the connection might be screwed up. That is similar to our bodies and why when we see a specialist they can't find anything wrong. Our organs are working fine (for most of us) but the connections are screwed up.
The good news is for most of us, our bodies will sort things out over time and we will make a full recovery. There are even ways to speed this up. I am not convinced fully that this is a diagnoses but I have scheduled to do testing and still learning about this myself. I have talked to so many doctors that are either incompetent or lazy or simply don't know what to do. This is the ONLY doctor that I've talked to with any experience with long term covid symptoms and I felt very confident, relieved, and comfortable with his response so I thought I'd share it here.
Hi Mark, I can't tell from your post - is the Long Covid doctor you spoke with taking on your case to order testing and give you ongoing care?
The word on vaccine reactions is getting out. My daughter sent me this link:
Watch "Pro-Vaccine Mother Shares Story After Daughter’s COVID Vaccine Trial" on YouTube
https://youtu.be/sh_D3TypW-w&source=gmail&ust=1625093247153000&usg=AFQjCNHnV9iR5NnJT2duTFbn7dMo-E5tE A"> https://youtu.be/sh_D3TypW-w
I read the story about this child a while back. I'm glad it's still circulating because it needs to be heard.
The word on vaccine reactions is getting out. My daughter sent me this link:
Watch "Pro-Vaccine Mother Shares Story After Daughter’s COVID Vaccine Trial" on YouTube
https://youtu.be/sh_D3TypW-w&source=gmail&ust=1625093247153000&usg=AFQjCNHnV9iR5NnJT2duTFbn7dMo-E5tE A"> https://youtu.be/sh_D3TypW-wI read the story about this child a while back. I'm glad it's still circulating because it needs to be heard.
Yes, this needs to be heard, loud and clear. This mother's grief is moving 😦
A little child declared the Emperor wore no clothes!
We can only hope, even though America may not be listening to the advice the World Health Organization is putting out that children should not be vaccinated, that parents will hear the plight of this child and others, and take heed!
Our children are our heritage. I do hope we don't send some of them limping into their futures, in the name of protecting them! 😢
If you look through the many pages on this forum you will see that folks here have some if not all of the same symptoms as you...people are taking supplements such as liquid liposomal glutathione and Quercetin for the dizzyness and it seems to have helped most folks...there are folks taking all sorts of supplements to help them reduce the inflammation...as for me, I only suffer from ringing in the ears...It started on May 9th, after my second dose and is still with me...but I can absolutely attest that this week the ringing seems to have subsided some...Not sure if it is time, or some of the supplements I am taking along with the others here on the forum...
About the second shot, well I can't say...I had my first shot and no symptoms...
If you read the below post below from @danb you will see that you will eventually recover eventually...
Hello All, I wanted to share this because it explains what is likely going on with post vaccine inflammation and covid long haulers so well. My wife has had lingering brain fog, vertigo for 8 weeks post 2nd dose vaccination and my mother in law is in the midst of long covid for 6 months. This truly looks to be a cheap, safe treatment to break the immune / inflammation cycle and let your body reset to homeostasis. The video below is timestamped where they discuss and visually show the mechanisms behind what is likely going on. We have a telemedicne call lined up with Dr. Haider for my mother in law and my wife has already had some relief using nasal corticosteroids.
The bottom line is to reduce inflammation which reduces the immune response, inhibits the spike proteins, and let the mast cells and immune function reset to normal.
All of the things here that have helped people reduce inflammation (omega 3's, turmeric, NSAID, corticosteroids) but the use of ivermectin, fluvoxamine, and steroids either by themselves or sometimes in conjunction seem to fully reset the system to get back to your normal self.
P.S. They do mention that although the function of inflammation is similar from vaccine to long covid that the vaccine related inflammation will not be a viscous cycle like the long haulers have. It's similar reaction but shorter durations. Most long haulers are taking a year or so to recover whereas the post vaccine is within weeks or months.
Dr. Syed Haider Discusses COVID Management
Based on what we heard in the Video, has anybody tried "Ivermectin" and seen positive results?
Day 2 of ivermectin.
I feel slightly better today physically, although my anxiety is a bit more today. It's only been 24 hours since dose 1 so I don't think it's the medicine. I tried famotadine (pepcid) last night.
I Wanna say that what's made me anxious is knowing I have to eat but knowing it tends to make me feel worse unless it's veggies which doesn't fill me up. Anyway, took a few bites of a tuna sandwich and ate some grapefruit. I also took advil this morning because I had a headache waking up ( happened before the ivermectin too).
Gonna continue taking the medicine. Seems everytime I look there is some other medicine I should be trying but I got these so I'm gonna stick to it. These are times I learn how impatient I am as I can't even wait 48 hours for something to work lol. Will keep you guys updated.
On another note. I saw the vid posted here about the girl and although we all know it's important for the truth to be out there, I am of the opinion that the truth is a little bit more complicated. We know for sure that we are sick. We know for sure that many people are just fine.
I just don't like the use of fear. Using people's emotions. That's whats made me paranoid about the virus, and also getting/not getting the vaccine. Fear. I'm not cool with it. I'm not anti vax or pro Vax. Obviosuly, more information needs to come out but also, we know that money is the root of all evil and if that's the priority, then truth, safety and accuracy can't be, can it?
Just wanted to rant a little. I'm already paranoid enough and I'm already vaccinated and I doubt I'll ever get a vaccine again but my opinion would probably be different if I turned out fine. Some people probably got better and just left the forum and others probably never searched because they are fine. I'm learning just how different we all can be. As similar as we are, we all have slight differences that can end up being a big difference. This all seems to be at a very molecular level.
What if I'm sick because I was low on important vitamins because I always skip breakfast and eat like crap in general? There's so many factors to consider. But when you try to spook someone, I feel like it's the emotional response driving us, not objective truth and logic. I am scared. But I just feel I need to just breathe, realize I'm not doing so bad, and just keep going on with life! Ok my ramblings are over lol.
I've found a small puff of marijuana(indica) from the pipe has helped my anxiety and the bad feelings, but it doesn't help if I smoke alot, like usual. And it doesn't help if I smoke with wrap/paper. I guess I'd add that in for anyone else who smokes weed here.
I'll post again later!
Thank you so much for sending the updates...I, like you, am always looking for that quick fix...We are all rooting you on!!..I have a follow-up next week with the doctor for ivermectin if the supplements she has ordered me to take have not resolved my issue...I wish you success on your journey to recovery...
@thenystagmus No, he is only working with long covid patients. There is also this clinic that is working with post vaccine patients: https://covidlonghaulers.com/
The long covid doctor I spoke with (Scripps Clinic) says the symptoms are "dysautonomia" but there are other doctors (see link above) saying the cause is "vascular inflammation" from the spike protein remaining in the cells long term.
The link above is a group of doctors that did a colab youtube video with FLCCC (seen on Rogan podcast) to explain the science: https://www.youtube.com/watch?v=JwjJs5ZHKJI&ab_channel=DrbeenMedicalLectures
Skip to 22:00 where they talk about post vaccine patients.
I’m 2 months after second Moderna vaccine. Symptoms started day 3-4 and haven’t gone away in 9 weeks. Horrible ear pressure, dizziness, and ear & head aches to point feels like my ears are going to explode (ENT says ears are fine). Also having short term memory loss issues. First vaccine I only suffered a headache for a day. This second vaccine has made my life difficult and at this point I’m considering taking a leave from work.
I’ve gone to 3 primary care, an ENT and Internal Medicine doctor before one of them listened and is running test and considering a round of steroids. I did try Quercetin and Glutathione for 3 weeks without any effect. Initial Acupuncture provided a little relief the first week, but no effect since. Have also looked at diet and made changes that might impact inflammation. Overall, my symptoms haven’t improved over two months and quickly wearing me down. I’m hoping the steroid cycle might help!
I can relate! Please let us know if you are prescribed steroids, including what kind, dosages and taper schedule. Thank you!
For those who had gotten relief for prednisone, how long did it take to start feeling partial relief? I’ve just started a 10 day cycle today, and wondering when I might see if this helps.
thanks,
Hi! Athough I lobbied for higher dosing, I was only able to get my PCP to put me on a low dose 6 day Medrol pak about 2 months after starting this journey. ENT wanted VNG, etc. testing before prescribing treatment, but agreed steroid couldn't hurt in the meantime. After the first couple of days of Medrol my symptoms backed off, but didn't totally resolve. My symptoms rebounded shortly after finishing last tapered dosing. A month later I experienced a major relapsing of my symptoms and my ENT got to see me while in worst shape mode. Decided to put me through a second Medrol round while waiting my turn for MRI to rule out any underlying cause beyond vaccine reaction. Same partial symptom remission and subsequent relapse to plateaued level of about 65% recovery that I've spent the majority of the last 4 months at, while bouncing up and down to be worse, then 65% once again. Did MRI yesterday, now awaiting that result.