I have posted before but just wanted to update. I had my Pfizer vaccine May 4th. May 8th developed severe vertigo in the wee hours of the morning. I woke up with it. I barely managed to get downstairs but had severe vomiting every time I tried any movements. Taken to the ER, given meds for vomiting, IV fluids and valium. After several hours they were able to do the Epley maneuver to stop the symptoms.
May 25 the same thing happened, around 3 a.m. Tried the Epley maneuver on myself several times but it did nothing. Took the Betahistine meds they prescribed the last time and it did nothing. Ended up in the ER again because of the vomiting and vertigo. They treated it the same way but did not do the Epley maneuver and sent me home with a prescription for valium.
June 22 I had been out doing errands and got home and the symptoms started, building until I was in full on vertigo again with vomiting. I tried the Betahistine again but it did nothing. I ended up taking the valium and it once again worked to reverse the symptoms. This time I was able to avoid the ER.
I saw an athletic therapist who specializes in vertigo issues and she could not elicit the symptoms, but they come on without warning and are not constant so that was not surprising. She gave me some eye exercises to try since certain eye movement did cause some slight transient nausea.
I am grateful that once the vertigo attack stops it does not continue between severe attacks, so I am functional in between. There is no consistency to the triggers that cause the next attack. It just happens. The last one was the first one to occur during the day and it built up until it was full on vertigo with vomiting.
No one has specific answers and the dr office has been absolutely no help at all. I asked my dr if I should get the second vaccine and her only response was that if I did not, I would not be able to travel. She said nothing about the symptoms possibly being related to the Pfizer Covid vaccine. It seems that since she has no studies to prove it, so she would not comment on it. I am totally frustrated because I never know when the next vertigo attack will happen and no one has any specific help for me. I am in Canada. Any suggestions?
I'm still reeling from the vestibular rehabilitation eval I had yesterday, so my symptoms may just still be increased from that after finally having my MRI today. And I didn't get around to drinking my usual morning coffee today, so that may account for a headache I've had for the last week being worse today.
During my MRI today, I had some weird visual symptoms and the technician said it can sometimes cause peripheral nerve stimulation.
For anyone else that has undergone an MRI, did you find that going through it increased your symptoms?
@mikes yes, it includes night sweats. I’m over 45 but never had hot flashes until after my second shot. I can’t find anything about it. I am totally open to suggestions. Good luck to you too. So glad to know I’m not crazy that this started after my second shot.
Peripheral nerve info, including symptoms of Peripheral Nerve Disorders that may be related to a lot of our symptoms.
@thenystagmus My symptoms did get worse for the several days after my brain MRI. I did not connect the two since I’ve had several cycles in the past month of 3-5 bad days, then 3-5 days of slight improvement. But both the dizziness, headaches and excruciating ear pressure have been at a peak since.
Does anyone else have the same issue as me where when you go anywhere in public and you're looking through aisles, your eyes just get super overwhelmed and everything is too much for you and the brain fog comes rushing back and you get a sense of confusion again.
Hello, guys. More update.
35 y.o. male with n medication background.
11/6 - First Moderna shot. Side effects: some pain in hands, hot toes. 14/6 - Severe headache and panic attack. i thought it was triggered by reading about side effects and didn't pay attention, but now I think it was side effect by itself. My hands issue persisted and I lost some breath, however this simpton when away. I even played 1 hour tennis match on 15/6.
24/6- another panic attack for 24 hours, than some relive until 27/6 which ended 28/6 afternoon. It ended during conversation and shocked me how immediate it was, like a puncture and I felt better. Hands are not burnt, at least the way they were after vaccine.
30/06 - got blood and EKG - tests - all fine. My body temperature is 35.5 which is I think less than normal, but I don't know, feel better when it goes higher to 36C.
Try to drink more water, also herbs which somewhat help.
I am still brain fogged and have anxiety all day today, not the best feeling. Read a lot of stories which are horrifying. I fell up in tonus, have idea try to do some running in the evening. Some heart palpation and all over body, not sure they are connected but I tend to be afraid of every change now. Feel a bit dizzy, visual disorders, but can walk and work, experience some freeze-to-cold issues. Scheduled to see neurologist 1/07.
2nd Vaccine was Feb 14th; My dizziness started 2 1/2 months after my second moderna shot. It was extreme to start with and has tapered off. Went to my Primary Care Doctor immediately and had me do a MRI which came out clear. He referred me to a neurologist but I could not get an appointment until 6 weeks out. I’m 70 and otherwise in great health. I wake up every morning having trouble walking a strait line and for the rest of the day my head is in a fog. Too worried to continue bicycling. Afraid of crashing. I walk 2 miles everyday without any problems once my morning wobblies wear off. I notice on this forum that most people’s dizziness start quickly after the vaccine with some that have continued on for months.
I would like to hear from other people how long your dizziness continues after the vaccine.
I did not connect my dizziness with the vaccine until someone told me it was a possibility and found this forum.
@thenystagmus My symptoms did get worse for the several days after my brain MRI. I did not connect the two since I’ve had several cycles in the past month of 3-5 bad days, then 3-5 days of slight improvement. But both the dizziness, headaches and excruciating ear pressure have been at a peak since.
Thank you for your response! I searched, but wasn't finding this information anywhere. I also have cycles of better/worse symptoms, which makes it difficult to understand relationships between that and any causes of worsening. I hate to medicate and mask symptoms, but I'll feel freer to for a bit now and hope for better days again ...which I hope for you, also. 😔🙏
8 hours after my first dose. Still a bit woozy but like I said, not different from the bad days. I feel ok with going on to the second dose tomorrow.
I'll post updates tomorrow!
Thank you so very much for keeping us updated...I am praying for you and all of us!!
i know this link was posted a few days ago, but I watched it for the first time last night and it gave me SO much hope. It is a long video with lots of technical jargon but the doctor speaking is the head of virology at Standford and he explains that post vaccine long haulers are essentially having the same bodily reaction as covid long haulers because of the spike protein that is present in both the virus and the vaccine. They have had success (getting peoples immune system back to normal!!) treating with maraviroc (a CRR5 antagonist), statins, and ivermectin. This is still very new research, but the fact that they are finding out what is causing this and ways to treat it is soo relieving!
Update: After experiencing my first symptoms in early February, my tinnitus has lessened. It took months! I do have bouts of dizziness. I have always had some sensitivity to light, but it is worse since getting the vaccines.
Hi Kris,
Wondering if your tinnitus is still lessened...
Thanks,
Ginger
