@gingerjones Hello, could you please tell us if the strong doses of supplements has helped you ? Have you tried ivermectine after ? Thanks !
@happyhourglass You are correct...the diagnosis process took 4 hours of testing and an hour consultation with the neurologist. It is a lengthy process but he was able to pinpoint exactly where my nerve damage was located. So having that answered was a great relief to me. The vestibular rehab is what set me right, although it did take time and patience. It's all about teaching your "good" side to compensate for the "bad" or damaged side. I hope you are able to find relief from your symptoms and I wish you well!
Hi everyone, just wanted to follow up and see if anyone has heard of something called Sensory Mismatch? In vestibular rehab, the doctor said he suspects I might have it. After doing some research, Im still not exactly sure what it is, but Im gathering that your brain isnt able to process movement at the speed in which you move around. As a result you are constantly dizzy because your eyes cant catch up. It has nothing to do with the quality of your eyesight, etc I believe its just impacts the vestibular system.
I had never heard of this term before and wasn't sure if anyone had any insights. He asked me if I get motion sickness in the car, and I always have, so I guess that is related as well. In general, I know this onset of terrible vertigo has to be from the vaccine and I just want to figure out what is wrong exactly.
Hi chels - Some of these things they say to us in the arena of testing/diagnosis? seem so squishy when I try to research them.
I've also always been really susceptible to motion sickness in a variety of manifestations of it, but I never considered that to be terribly uncommon.
I've been told that my rotary chair testing showed that I now have vestibular-ocular-reflex dysfunction. When I research that and the sensory mismatch information you've been offered, I wonder if they're slightly different ways of describing the same issue, or if they're distinct from each other? I doubt that either one of these things are truly diagnoses, but who knows?
I am finding my vestibular rehabilitation home therapy exercises beneficial and I look forward to my weekly meetings with my therapist who I've found to be understanding, sympathetic, and competent to guide me in my advancing recovery.
I've been trying to summon the mental energy to access and download some of the information available to me online that my ENT and vestibular rehabilitation therapy providers have been accumulating about me to see if I have an actual diagnosis matching any that I read about here on the VEDA site. That would be interesting indeed. Maybe if I can get my physical medical paperwork tamed soon, I'll get to that afterwards.
Well wishes! 😏👍🙏
@daisy a me va tutto molto ad ondate, vanno e vengono, hai provato con un oki per i muscoli?spero che sia solo una questione di tempo per “smaltire” il vaccino che in noi può aver causato una reazione spropositata rispetto agli altri
@nodiagnosis yes I hated it. Once for my left leg which didn’t result in anything. Now I think I have a pinched nerve near my elbow but I’m not sure if this isn’t from the vaccine cause all my issues seem to be on the left side
I too have found this - moderna vaccine going on 4/5 weeks ago with tinnitus and some dizziness. Nothing seems to help improve it so worried it's stuck with me now.
@isismadec I appreciate you replying to my post, thanks. You did bring up a good point about "the one size fits all" approach may not be for everyone despite being constantly and even coerced to believe otherwise. It's such a difficult predicament to be in - the one thing that's supposed to protect you might very well harm you as well. And if you dare speak negatively about it you get shut down or not taken seriously. I'm definitely going to speak to my doctor about it although I'm pretty sure I know what they're going to say. At least I have this place for support.
Just keep in mind that just because your doctor tells you to get the vaccine doesn't mean you have to go along with it. Make your own choice about the matter. Only do it if it's what YOU really want to do.
I'm (usually) somewhat partial to non-chemical things going into my body. This Covid vaccine was an exception and, well, that got me where I am today...
I sat on my patio today and couldn't resist pulling some of the weeds that had grown tall in the cracks. Like usual, my arms started breaking out and itching ferociously, which I usually just put up with. I remembered that for poison ivy outbreaks an oatmeal bath is considered to be good, so I got a handful of oats, wet them and used it to scrub my forearms. All rash, red streaks, and itching quickly disappeared!
I started wondering if eating oats might help with this crazy reaction going on systemically in my body, so I decided to do a Google search. What I found was interesting...
"...oats also contain special compounds called avenanthramides that seem to play a role in reducing inflammation. Avenanthramides are not found in other cereal grains—they are a part of the oat plant’s own defense mechanism, produced in response to environmental stresses such as harsh weather.
Professor Mohsen Meydani, director of the HNRCA’s Vascular Biology Laboratory, discovered that oat extract that was high in avenanthramides could reduce the number of inflammatory signals put out by cells that line blood vessels. Add in the fact that oats also have been shown to improve the function of blood vessel cells, which help regulate blood pressure and blood flow, and it seems oats have the potential to not only decrease plaque that causes bad cholesterol in the blood, but dampen the inflammation that leads to atherosclerosis."
I think I'll start including oats in my daily diet - probably can't hurt? 😏👍🙏
@patty80 I feel for you both going through this. this is our precious life being wasted on being debilated. Sucks. BTW i have dizziness too for over 2 months.
I found this worth the time to watch.
As did I, also.
This is madness!!!
How long should we need to be like this... Im totally worn out... almost always bed ridden and even if get the courage and energy to go out... this freaking dizziness is not allowing to do so... This is hell and no one understands this and everyone points to anxiety?.. common seriously?.... Took my jab on may 20th and its almost 7 weeks of continuous nightmare... Took all battery of tests, ct, mri and couldn't find anything other than sinusitis... I need to go out and be normal, have plenty of work to do, probably the worst decision i have ever made is to take this jab.... never knew this would completely disable me.... And the sad part is there is no one to recognize this and there isn't a treatment... my knee feels funny all the time as if i may fall down anytime.... the strange 'on a boat' feeling never goes away....
I'm so grateful to have found this site, like many others. I'm 2.5 months in to this nightmare and it's some comfort that I'm not the only one.
I had the Pfizer vaccine early May, and within a week I had developed balancing issues, constantly feeling dizzy, headache, tiredness - the same symptoms I had when I had COVID in March. I put it down to the vaccine working and gave it a couple of days - unfortunately it didn't go away.
I was taken to hospital about 3 weeks post-vaccine as I couldn't stand, headache was excruciating, I couldn't see because of the dizziness - without overeating, I genuinely thought I was dying and wrote out letters for my family to say my goodbyes.
At the hospital I was put on a fluid drip and kept over night. I had a CT scan and a follow up MRI as something showed up on the CT - I'm still waiting on the MRI results and it has now been 3.5 weeks since I had it. No one is taking ownership of giving me my results - GP says it's not them, MAU at the hospital are saying it's not them, Neurosurgery are saying it's not them.
When I was discharged from hospital they put on my discharge letter that they think it's Vestibular Neuritis, and if I have it beyond 2 months that my GP should refer me to ENT specialist. It's been 2.5 months now and I had to make 3 calls to my GP and beg to be referred to an ENT as they were just wanting to prescribe me with antidepressants!!! I'm now waiting on the ENT to write to me with an appointment.
My symptoms have been up and down - this past week they have been very bad. I've been very dizzy and exhausted, and I've had ringing in my ear now for 3 days. The nightmare feels like it's never going to end and it seems like no one will help! I tell the Doctor that I think it is the vaccine that has caused this - "No it can't be. We've had no information about that." The worst part is I have a 3 year old to look after and I'm struggling, and my wife is at the early stages of pregnancy so I feel like I'm a total liability at the moment!
@masectid so sorry to read you symptoms, have you looked at the FLCCC website for their protocol, so many people are successfully getting better using the same protocol as long covid. Ivermectin has been used, strong antihistamines, steroids, a mixture of different things. People on this site have used a great many supplements (@dizzyfromvaccine recommended some).
Doctors have been so useless so far in my opinion. Rule out anything sinister but then it looks like it's just up to us!
I so hope you start feeling better, it's so brutal.