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North Star
(@northstar)
New Member
Joined: 3 months ago
Posts: 3
 

I was also wondering if anyone with vestibular side effects of the vaccine has tried flying? I’m going to have to travel in a few weeks and can’t help but feel a little worried


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CYNTHIA
(@296823933c)
New Member
Joined: 3 months ago
Posts: 2
 

I received my 1st vaccine shot at the end of December the next day tingling all over my body even my lips were tingling. I was scared! I called my Rheumatoid arthritis doctor and explained her what was happening  We assumed it was a side effect of my medication since I had just changed medication recently and the medication bottle stated " may cause tingling" She changed my medication. Everyday I endured tingling in my limbs, numbness and difficulty walking because I was so unstable. Occasionally I would have twitching of my  head , dizziness, sometimes the numbness and tingling would be in the middle of my thigh. I spoke to her my RA doctor several times because the tingling never went away. She did a x-ray of my back and felt that I should see a Neurologist. Went to see the Neurologist, they did a full blood workup and a MRI. All negative - nothing was reported unusual in my MRI and blood work. A few days after seeing the Neurologist for the results   my little finger popped and felt like it was broken so I went to the ER just to make sure. He said that I was having a RA flare and put me on a steriod. Two weeks after I was on the steriod  all of my tingling sensations and side effects went away. I nor any of my doctors assumed it was the vaccine. The day after all the tingling went away I started researching the internet and discovered  That I was not crazy!!   


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catm
 catm
(@cathymason)
Eminent Member
Joined: 3 months ago
Posts: 40
 

@sia77 

 

Just left chiropractor. They did ear candling and adjustment. I'm not sure yet if it helped as I feel better in the afternoons


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catm
 catm
(@cathymason)
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Joined: 3 months ago
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@courtneymchale2288 

What vitamins and how much do you take?


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dragonlover
(@isismadec)
Estimable Member
Joined: 8 months ago
Posts: 206
 
Posted by: @retiredarmy

I too am Retired Military with 100% permanent and total rating due to Meniere's Disease. I still have vertigo, and am considering the steroid shot to get rid of the vertigo as it is getting worse with age. Additionally, I have had severe anaphylactic reactions to vaccines the Army has given me in the past. One was to Bubonic plague vax in 1997 (ended up in the ER), and another was to a flu vax in 2014 (again, ended up in ER). I haven't had flu vax since, as the Army made me go to an allergist, where a scratch test the Dr. performed showed that I was, in fact, allergic to the flu vaccine, however I am not allergic to poultry/eggs (a main component in flu vax). I am simply allergic to the flu vaccine for some strange reason. 

I am very scared about getting the COVID vax. I brought up my concerns to my PCM at the VA, and he dismissed all of them with barely a thought. It was the first time I saw this new PCM and I felt like he was barely listening to me. He told me the risks of COVID outweigh my concerns even though I am 42, exercise regularly and am quite healthy. I am terrified of this vaccine, however I am looking for employment and I know this will be an issue. Also, I hate the politics of this issue, but all my friends/family on ONE side of the aisle are making me feel like a real POS for not getting the vax and I simply don't understand why.

I am scared to death of what will happen to me, but apparently to some that just makes me an anti-vax, Trump loving conspiracy nut. I don't know what to say or do to get people (AND DOCTORS) to understand my concerns. I don't know how I am going to travel or go to concerts and ballgames in the future. At this point I think I'd rather just get the vax, hopefully not die, live with the vertigo for however long it lasts, and pray for the best. I truly don't know what else to do. 

 

I have Meniere's and did not, and will not get the vaccine.  When I talked to my ENT he told me that due to my longstanding Meniere's, it would be likely that I would suffer severe vestibular effects if I took the vaccine.  He told met that no matter if I did, or did not take the vaccine, it was still a risk, but that it was my choice to decide which risk was more acceptable. I am retired and don't go out except for essential errands, and that isn't very often.  I hate living this way but am not willing to risk the vaccine and the horrific side effects.

Best of luck, whatever you decide to do. 


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LPV
 LPV
(@lpycb42)
Trusted Member
Joined: 6 months ago
Posts: 92
 

UPDATE:

Week 4 post second vaccine: No symptoms at all. 


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LPV
 LPV
(@lpycb42)
Trusted Member
Joined: 6 months ago
Posts: 92
 

@stepheneire You're only on day 3.  Give it a few weeks before getting too concerned.  For now just try to minimize inflammation before it gets worse and take lots of Vit C, and don't get too worked up over it.  Don't expect the worst because that will trigger anxiety attacks, and it's exactly what happened to me.


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Karen R. Mizrach
(@krmizrachgmail-com)
Eminent Member Patient Forum Moderator
Joined: 1 year ago
Posts: 49
 

What an interesting situation. Just shows how complicated it all is to figure out exactly what is happening in our bodies and how all the variables make things difficult to problem solve. I'm so glad your tingling symptoms are gone. I'm sorry you had to go through so much to get a solution. 


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Karen R. Mizrach
(@krmizrachgmail-com)
Eminent Member Patient Forum Moderator
Joined: 1 year ago
Posts: 49
 

Did you contact the doctor that follows you and the place where you got vaccinated? 

I did not have such challenging effects from the vaccine, but each of us reacts differently. I'm sorry you're going through this. 


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catm
 catm
(@cathymason)
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Joined: 3 months ago
Posts: 40
 

@hnlinneman 

What does your chiropractor do? I went today. He just did an adjustment


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AndyM
(@andym)
Active Member
Joined: 3 months ago
Posts: 12
 

Hey all,

Healthy (formerly) 26 year old here that got the Moderna jab. Boy, what a mess. The last two weeks have been a horrible mystery trying to figure this out. So glad I've found this forum, I thought I was nuts. So, I got the first jab on July 3rd. At the same time, my ear had been itchy so I had assumed I had too much wax or an ear infection. Got that checked out, looked okay. Then, about a week or two after that first jab- I start feeling dizzy. Hmm. Must be my ear, right? I go through this whole phase of taking every pill to help my ear, nothing helps. Still dizzy. Second jab, JUly 24th. I take it, while still experiencing dizziness and now its even worse. Now, I wouldn't say it's vertigo but its a general feeling of malaise and being unable to focus. I feel jittery and unbalanced. I went to an ENT and lo and behold, it has nothing to do with my inner ear. He refers me to a neurologist because he can't figure it out. This has kind of been one big nightmare, but I'm optimistic things will get better. I can thankfully still function but I just feel uncomfortable most days. I see some improvements, and I'm taking supplements like Magnesium, Vitamin B, and a multivitamin. It's been two weeks since that last dose so I'm looking forward to, God willing, feel better here soon. One day at a time.


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Barb
 Barb
(@barb56)
New Member
Joined: 3 months ago
Posts: 4
 

My reactions occurred after the second shot. After the first I had headaches - normal I assumed. In Australia we are expected to wait 12 weeks between shots so my first was at the end of April and the second was 25th June. I will not be accepting a booster if this is ever offered. I believe that AZ is being phased out in Australia.


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Barb
 Barb
(@barb56)
New Member
Joined: 3 months ago
Posts: 4
 

@michaeljamieson : That would mimic my reaction! Second AZ shot and 10 days later severe dizziness. I am now 6 weeks post that shot, have had two hospital admissions where a small pericardial effusion was found as well ( no other precipitating factors) and I await follow up in 3 months. I did not drive until last week and have not been back to work at all.


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Hopeitsover
(@s-m-a)
Eminent Member
Joined: 3 months ago
Posts: 32
 

@jbeatthis1 

I am curious. I also am being treated by one of the doctors off the FLCCC website. I read in your post that you were tested for long Covid and were positive. Did you have a Covid infection or just the vaccine? Or do you know? Have you taken the Fluvoxamine for the neurological stuff? 

This post was modified 3 months ago by Hopeitsover

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Hopeitsover
(@s-m-a)
Eminent Member
Joined: 3 months ago
Posts: 32
 

Update for everyone. August 19th will be four months since the last shot of Pfizer. It has been a very long, lonely, and scary time. But I have good news. I have felt better for a few weeks now. I feel like I turned a corner week 12 or so, but still felt bad a few times a day. I have really been pushed at work and it has been hot and I have done okay. A few bad headaches that have actually gone away with advil or Tylenol which has not been happening for months now. I stopped taking it actually because it didn't help, but it has the last week or so. I am still getting headaches, but they do not turn into migraines and they do not give way to dizzy spells. I still have muscle rigidness in my back and neck, but it releases a lot quicker these days. I use the back massager every 1-2 days still and it still helps, but is no where near as bad as the first three months. Body wide, I have an improvement, especially in my neurological symptoms which were always the worst part and the most severe part. I am beyond relieved to have felt better. At least for now. I have taken a lot of supplements. They seemed to help but not a cure. I took Ivermectin. It didn't cure me, but I did start to turn a corner around that time. I took Fluvoxamine. I believe that helped my body fight inflammation in my brain and that gave me the most relief. I did not take it for long. Overall, I think time and trying to stay calm. Nothing I took was a cure. Even if it helped. And I would have taken anything. I was in a real bad way. This forum helped and the stories of people getting better were really the thing that calmed my nerves the most. So I thought it appropriate to tell you all that I feel better and the timeline of it. If you have questions, I will try to answer them. I didn't feel like it was getting better for a long, long time. It wasn't a good feeling. If you are going through that now, you are not alone and it seems to get better with time. Sometimes a long time. 


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