@tunafish15 how are you now? Did you have Lyme before the vaccine? 

@anita1962 how are you now? 

@klavietman how are you now? Lyme better, too? 

@twitch Atleast I know I’m not on my own with the breathlessness. How are you feeling now still in the same boat?

@rachie me too! What reaction did you have? Better now? 

@nath7 yes a bit better with breathlessness but have tingling in extremities. Had shot 9/3. 

@nodiagnosis yes! What did your bloodwork show? Are you better now? What was your Lyme result? 

@lindar how are you now? Did the Lyme treatment work? I have same issues. 

@nath7 yes

@quail444 me too I’m having anxiety attacks every day now and had so many prescriptions that I’m now confused over what medication I should take. I wouldn’t wish this on my worst enemy!

@nath7 yes that’s anxiety!! It goes hand in hand with dizziness

@kenny you could pay me all the money in the world and I wouldn’t take it. 

Has anyone had this ….Iam progressively feelin better in the mornings for a few hours.. less dizziness.. bit more clearer headed. But by 12pm I am back feeling light headed again. Is this some sign it’s getting better or that I’m doing too much ? Thanks x 

@adelaide

My dizziness is chronic and constant for 5 months now (not episodic) it’s like I’m rocking on a boat. I just notice it more when I sit or stand still, the only relief I get is when I lay down. I also have intermittent bilateral tinnitus and severe anxiety.

My ENT just checked my inner ears to rule out any problem there. He said if this hasn’t gone away in 6-8 weeks then I’m to go back to him for an MRI and vestibular function testing as he knew I was going to Harley Street as the next stop because I already knew I had PPPD.

I also tried betahistine in the beginning, also propranolol and anti sickness tablets with no effect other than severe drowsiness or worse dizziness!

I’m particularly bad this week and anxiety is through the roof all because I started on the prescribed high doses of Magnesium and vitamin b2 and had a reaction to them I wasn’t expecting so my body’s gone into panic mode again. So the thing that Harley Street have given me to help me is actually making it worse so anxiety has gone mad and as a result I had to cancel my eye test and audiometry test until I feel I’m able to go through with it. I’m doing everything privately it’s costing a bomb but I don’t care I needed this sorting quickly although I’m still not there yet 5 months later!

The neurologist I saw performed several tests neurological examination including head thrusts, Hallpike's test and Unterberger’s test all were entirely normal with normal eye movements and in the limbs, normal bulk, tone, power, coordination, reflexes and plantar responses. The neurologist said I was introspective and hyper vigilant so in other words it’s all anxiety! That’s why I went to Harley Street and finally got diagnosed.

I think I’m going to have to bite the bullet and start on a course of SSRI’s not only for the anxiety but it’s supposed to be the second line therapy for PPPD alongside CBT and Vestibular Rehabilitation Therapy.

Hope this helps

@cherry101 I have it the other way around. I wake up dizzy in bed and it doesn’t calm down until around 7pm. I have PPPD I don’t know if you’ve looked into that but there’s a very good video on YouTube done by a girl who describes exactly what I’m going through and it was only through her that I realised what this was! Then I went to a specialist and they confirmed it. https://youtu.be/cvcR7VKp2kw