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Heatherxxo
(@heatherxxo)
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@nick Ahhh thank you for your kind and positive words it means a lot, I'm pleased I found this site we're all in this together ❤️

Oh its awful isn't it the anxiety and low mood is just ridiculous,it's the unknown.Honestly I'm so mad with myself for caving in! I thought I was getting a little better but guess I spoke too soon,I'm terrified now! 😞

When did you have your jab and how long have you been feeling off for? X

 

This post was modified 4 months ago by Heatherxxo

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Heatherxxo
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@sarahrua I think everyone here is struggling with the same fear.I was so positive until today as some symptoms were picking up now I've just been floored again with anxiety!

Yes I've had bad ear issues and vertigo.They have felt very full,painful,tinnitus,sound sensitive and I've had muffled hearing.My doc diagnosed vestibular neuronitis triggered by the jab and said it would pick up but could take a while, those symptoms seem to be picking up slowly and it's now started on my kidneys 🥺

How are you? What's the story behind your jab?

Yes of course we can have a group chat ❤️


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creativecat
(@creativecat)
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Hi all, has anyone here been prescribed Topamax for headaches and nausea?  If so, do you feel it helped or experience side effects?  

 

(As un update, I'm 15 weeks post second Moderna, and still experiencing head pressure, headaches and nausea).  All my doctors seem to be pushing the idea this is some type of weird prolonged headache episode and maybe migraine medications would help. 😕  not sure, but I'm willing to try.


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creativecat
(@creativecat)
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@tarruba sorry for the delay getting back!  Unfortunately I didn't get much out of my appointment.  He seemed pretty stumped and acknowledged all my symptoms are  "weird."  Ultimately he seems to think this is some kind of strange migraine episode.  I don't have a history of migraine so it seems odd they would happen all of a sudden overnight and never go away. He had me take an 11 day sequence of high dose steroids and now he wants me to try Topamax for migraines. Hopefully it may help. I'll keep you posted.  But if not, I remain hopeful time will do the trick.  It's hard waiting and wondering when the turning point will come. But I'm sure it will.   Probably when I'm least expecting it.  


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creativecat
(@creativecat)
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@maxx126 sorry to hear your brother is going through this.  It's incrediy difficult not knowing the source and having so many doctors' visits end with a shrug of the shoulders.  

My neurologist is starting me on a Topamax to treat migraines.  Perhaps this will help, although I still remain skeptical these are migraines exactly.  Crossing my fingers even so.  I'll let you know if it helps. 


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Nick
 Nick
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@heatherxxo 

I made my mistake on 8/23 and have felt bad since 8/24 with only a few days of respite since.

 

(insert obligatory I’m not a doctor here) – I wanted to say also though Heather, that your symptoms of backpain x4 weeks and blood in your urine are also consistent with a UTI or bladder/kindey infection. It may be something that can get cleared up with a course of antibiotics! Don’t feel foolish if it is, a week ago I woke up with extreme pain in my hip and my first thought was oh Lord I’ve developed arthritis. It wasn’t, I just threw my hip out somehow- probably from all the sitting around lol.

 

Before I go, I wanted to offer some words of encouragement. I was speaking to a friend of mine earlier about the toll this has taken on my mental state. I reminded myself during our conversation of several things that have offered me encouragement in the past during hard times and thought I might share them in case they help others also.

 

First, 2 Timothy 1:7 “For God has not given us a spirit of fear, but of power, love, and a sound mind”.

This is God’s telling us to ignore all that negative self-talk and fear and instead focus on what is good.

 

Secondly, this is from the genius science fiction writer Frank Herbert’s book Dune. Its called the litany against fear.

“I must not fear.

Fear is the mind-killer.

Fear is the little-death that brings total obliteration

I will face my fear.

I will permit it to pass over me and through me.

And when it has gone past, I will turn the inner eye to see its path.

Where the fear has gone there will be nothing.

Only I will remain.”

 

Finally, courage isnt the absence of fear, its going on in spite of it.

I’ve faced fear of real death many times in my life, racing motorcycles, running into burning buildings ect. That being said, this experience has shaken me. But it has also been a blessing. This has brought me closer to God. It has given me deep compassion for those suffering with chronic illness. I also see now what is important to me with a clarity I’ve never had. When I am better, I intend to act on that clarity- I may not wait that long! There is a fabulous scene in V for Vendetta (great movie if you haven’t seen it), its when Natalie Portman’s character is in prison, she’s been tortured for information about her friends and even when she’s facing certain death, she refuses to give up her friend. In the process she becomes liberated from her fear of death and reborn into a new person. You can watch the scenes on youtube just search for “V for Vendetta Valerie’s letter” (right before she gets out), and “V for Vendetta Evey reborn” (right after she gets out)- it’s a powerful scene.

 

A friend of mine once said long ago, “when you change the way you look at things, the things you look at change”. I am trying to reconcile the reality that I am not who I was 2 months ago before I took this shot. That doesn’t mean I won’t be again – In fact I intend to fully recover. However, I am realizing a lot of my grief is mourning the life I had 2 months ago, instead of trying to live as well as I can now. Even a few months ago we all had problems, maybe not these problems, but our lives had issues. We adapted, we overcame, and we found joy where we could. We can still smile; we can still laugh- we aren’t dead yet! In the words of Andy Dufrane from Shawshank Redemption “I guess it comes down to a simple choice really, get busy living or get busy dying”. Which is what he said right before he crawled through a tunnel of crap (literally). We’re each gonna have our own tunnel of crap to crawl through. Some may be longer than others, but at the end is freedom and rebirth. We’re gonna need a bath at the end but we're make it!

This post was modified 4 months ago by Nick

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AndrewDB
(@andrewdb)
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Since April just days after my second Moderna shot I’ve had 11 bouts of full on vertigo lasting anywhere from minutes to hours. Today was tough had one at 9:20am then came back at 9pm almost like clockwork. The feeling before an attack is weird but I can for certain know it’s coming on.  The doctors ask what’s it like and brain dog was the words put in my mouth. It’s just weird.  Zofran didn’t stop it completely and this time.  No nausea but the room spins is even as I type this ongoing and just sight enough to drive me mad.  I have another ENT visit for this Monday to get my 3rd steroid shot into my eardrum. I feel like this is a guessing game treatment plan. I do in fact have inner ear pressure issues with the left side but the anxiety and constant dizziness is getting the best of me. My blood pressure is all over, mornings it’s around 118/70’s. Right now it’s peaking at 147/90’s but most likely I’m stressing out which isn’t good for it. Also rambling but it helps to get it out of my mind and onto “paper”.


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Kenny920
(@kenny)
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just dropping by to encourage everyone here. We have seen many got better and fully recovered. I believe everyone here will get back to your old self. Continue to eat and rest well! We are all here to support each other in this recovery journey 🙂


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trawii
(@trawii)
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Joined: 4 months ago
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Has anyone else had a bad flare up of symptoms after catching a cold? If so, did the symptoms subside as the cold did? I’m four months in and was slowly getting better, then suddenly caught a cold and feel as if I’m back at day one again. It’s been almost two weeks since I caught the cold and unfortunately the symptoms haven’t disappeared along with the cold. Was finally being relieved of my symptoms, and they came right back. Hope I didn’t slow my progress down too much.


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Hopeitsover
(@s-m-a)
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Hey everyone. I'm seeing a lot of comments of fear and anxiety. I get that. I do. But, time makes it better. I am better. I was super dizzy and sick with all the things for three months and two weeks and then I GOT BETTER. I do know it feels hopeless and the more I think back, the more I believe that is a side effect within itself. Like some people who have had Covid have a hard time coping. I know I did. And I felt the same despair after the vaccine, but I was much sicker after the vaccine. I never had dizzy spells with Covid alone. I think that the feeling if impending doom is a side effect. I felt it too, and I know every single thing you are feeling is real. It is. I felt it. Lots of others here have felt it. And we know that but still feel so very alone. Side effect. But for those in that spot, do not lose hope. Although I know it will be nearly impossible, do something to get your mind off of it. You are not crazy and you will get better. My muscles were super tight so I bought a neck massager. This one thing helped more than all the medication, doctor visits, tests, anything. It loosened my muscles enough to get some blood flow to my brain I think. I felt alot better, and this was daily massages for a few hours everyday, at least one hour, for weeks. It wasn't a cure all but it helped. And it took time. This happened to us. We are going to be ignored because the companies that gave us this are too well protected. They can't be held responsible for what they did to us, and we knew that. Very obvious no, isn't it? But nevertheless, you will get better. Guys, I got on a boat last month. And I was fine. You will come out of it. It just takes time. I hate reading all the scared posts because I was that post. So I feel compelled to try and encourage you all. It's gonna be okay. You don't need drugs. They don't help help. Take vitamins if you are deficient and then stop when you are not. They will not help. There is no cure. You have to heal. I took it it all. It was useless. Lower your anxiety however you can and give it time. You will be okay. Say it until you believe it. And neck and shoulder and back massages. My muscles seriously were noticeably swollen and super stiff to the touch. 


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vaxdJJ4-21
(@jaydev55)
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@spacecadet Did you have trouble sleeping and, if so, did that go away as well.  


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Mina
 Mina
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@trawii hope you will be ok, stay strong


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Nick
 Nick
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@s-m-a 

 

It is good to hear you have recovered! I had a couple of questions for you, have you had any relapses or been sick with a cold or something else that might "set off" your immune system? If so what was the result? Also, how long have you been recovered for roughly?

Thank you for the encouragement!

 

 


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dee
 dee
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@s-m-a thank you for the encouragement!!  And I totally agree with you on not taking prescription meds or drugs to fix this problem. As a matter of fact I think some drugs or meds will probably cause more problems. Time is the answer for healing and good nutrition, vitamins if needed and extra rest. Trying to keep the anxiety and stress level as low as possible will help speed up recovery also. I am 10 weeks out and slowly getting better but trying to have hope and trying not to get myself worked up into a panic. I agree that we will all get better if we stay calm and give it time. “Without meds if possible”. 


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Hopeitsover
(@s-m-a)
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@nick I have had some headaches and runny eyes and a little congestion. It's absolutely allergies though. My mom is unvaccinated and has the same allergy symptoms right now. I was worried it would trigger a relapse but it hasn't. I was very sick with gastrointestinal issues right after I started to feel better from the vaccine effects. I have had these issues once before so I don't think they are related to the vaccine at all. I had the second and last shot on April 19th. My lymph nodes didn't swell until a couple of days later, and then the headaches into migraines about a week later and then the dizzy spells a few days after that. The lymph nodes took a full four weeks before they went down. The headaches were slowly replaced with constant dizzy spells until the end of July, beginning of August where I only had one day in July where I felt normal. Then, first week of August, I started having less dizziness and the headaches started back, always with dizzy spells after. Then I had a really bad migraine that lasted for a whole day but I wasn't dizzy afterwards and I haven't had a dizzy spell since. I would say second week of August maybe. There have been times where I have felt run down and not great. Those examples are just the worst of the symptoms and how I judged if I was getting better. I also had head fullness, which did come and go afterwards for awhile, especially in the nose, ears, and behind the eyes. I still get that. But much shorter durations. I had numbness,, especially in the hands, brain fog,, and heart palpitations. High blood pressure. I still get headaches, and I still get tight and rigid muscles, but nothing, NOTHING compared to the 24/7 constant daily battle it was. I have never been sicker in my life. The little things that happen now which I think are related to the vaccine are so insignificant compared to what it was and what some of you are in the middle of that I wouldn't even consider them a problem. It's not the same. It never will be. Also, I had Covid, which maybe a factor of why it was so bad for me. And I had the same headaches and brain fog, though not the dizziness. There was a point where I recognized some of the things that are different just are that way because of this new virus and if they never went away, at least I survived it. I think the vaccine also creates these long covid symptoms. But I promise, the Neverending constantly worrying you aren't going to make it and no one will know it was the vaccine that caused it does stop. It does. But we heal differently and some people take less time. Some take more time. It took me approximately three months and two weeks for any sign of getting better and about another two weeks to feel like I was going to recover from this. 


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