Has anyone seen this article? It was recently published and describes how COVID can affect the inner ear, which in turn can affect balance, hearing, etc. I read another article yesterday, also recently published, on how COVID can affect the nervous system. I'm assuming the vaccines are affecting our ear and nervous systems in the same way COVID would. Which is terribly ironic, because all of us got to vaccine to AVOID these issues. I've said this before and I'll say it again: The FDA and CDC need to come forward with this information about the vaccines so 1) a treatment plan can be established and 2) they can reformulate the vaccines so they do not cause long-hauler symptoms.
@lmkk me too. I've had this neck and backache constantly but it has got worse and now all my muscles ache like I've done a massive gym workout or something. It also feels like its my bones but they say its muscular. I did think spinal inflammation and mentioned this to the neuro but he palmed me off and said I will see you in 6 months but it should all pass.
So I'm kind of left just getting by day by day. I have a new irrational fear of taking any medication I'm prescribed and I just want to leave my body to do its own thing now really.
I hope this doesn't take years 😔💔
I've been telling people I feel like the pain is inside my bones and they look at me like I'm crazy! My muscles are also very achy and often warm and fuzzy in feeling. I wonder sometimes if it's caused by inflammation from reactive arthritis caused by our bodies immune response to the spike protein?
I've had reactive arthritis a couple of times in the past when I've had a very bad flu and gastroenteritis and it feels like the same thing only in all my body instead of just my knees and hands. I used ibuprofen to treat it in the past but I know exactly what you mean when you say you are reluctant to use even prescribed meds now. I'm currently trying to heal my body using natural products including pineapple , beetroot, turmeric and coconut water so my body has a chance to work on itself without being influenced by meds.
I am going to see a private doctor soon so I'm going to ask about this bone pain and back pains and see what he says. I will let you know if he says anything of interest.
Hi @larag
I'm just back from my private GP appointment. He was less helpful than my regular GP. He flat out said what I'm experiencing hasn't anything to do with my Pfizer vaccine! He has ordered me to get folate, b12 and diabetes blood tests! I know that all these are fine as they tested me for these during my pregnancy and I doubt they have changed in the last three months since I had my baby especially given the amount of multivitamins I'm consuming with all my healthy eating to try and beat this monster.
It was only when I told him about guillan Barre syndrome being listed in the UK as a "rare" side effect of all the vaccines in use in this country that he changed his tune and after looking on Google he then told me that the intense back ache I'm having along with a weakness in my legs and arms, pins and needles etc sounds like it could be a "mild variant of guillan Barre syndrome" I did read on this thread a guy from in the UK posting on here around June that he had also been diagnosed as having mild variant of guillan Barre syndrome after severe backache and facial paralysis on one side left him in the hospital for a week. If this is mild I shudder to think what severe is like 🙁
He told me not to Google it and that as nothing can be done only time will help. Not what I wanted to hear but he did rule out MS and motor neurone disease.
I'm going to do a big post on here and share all my symptoms and different stages of improvement and set backs so hopefully one day it can help another reader.
Hope you are doing ok.
how you getting on? any more information, month 4 for me and I've recently had very weak legs and numbness/burning. any tests I should have in particular to rule out ms and mnd how did he rule it put with yourself?
Hi @nath7
I'm 3.5 months out from first Pfizer jab.
My pins and needles, numbness, burning pain in bones/joints began 30 minutes after my jab.
By day 5 with no let up even for a minute I was getting very worried so I emailed my GP with my symptoms.
He called me straight back and after some questions, without dismissing that it was caused by the vaccine he told me that it was inflammation in my spine causing the peripheral pins and needles. He told me to take ibuprofen and to ride it out.
My back ache started getting really strong around 10 days after the jab so much so I couldn't bend forwards and had to grab the back of the headboard of the bed in the night to help turn myself over as it was so very uncomfortable and tender.
Feels like my back was about to snap in half. Never had anything like it previously and I'm in pretty good health and average weight.
After two months of little improvement I went to a private doctor who completely dismissed the Pfizer link at first. He ruled out MS and motor neurone disease simply by asking me some health questions such as have I been loosing control of my bladder (I haven't). He said he was satisfied it wasn't MS. I'm not very satisfied as neither my GP or private doctor have bothered to send me for further investigation given my dizzyness along with the nerve problems and I dont feel that they were very thorough in ruling out other problems.
My back now pops and cracks alot when I move and is loud enough that other people can hear it. I've never had that before. It seems to be aggravated by the cold. I started fish oil capsules 3 days ago and today is the third day I have felt some improvement in the severity of the back pain.
My numbness and pins and needles is about 50% better than it was in the start. I have days where it is very mild then days when I wake up and my limbs feel dead like I have slept in a very bad position.
I believe the flare ups occur each time I am fighting off a virus. Since the kids went back to school and bringing home constant colds I have had 4 head colds and each time the pain/pins and needles in my hands and legs has gotten stronger till I shake the virus off. I found that as I was getting run down with the cold virus my brain fog came back a little along with the numb/week/ heavy limbs.
When trying to text on my phone I felt like the message from my brain to move my fingers just wasn't happening my hands felt so odd.
Maybe your recent numbness is due to your body fighting something off even if you are not showing symptoms or you may have been pushing yourself to much recently? Try and take it easy.
At at 9 weeks past my jab my right leg went weak/numb for a week and a half. I was very worried but found hot baths with Radox muscle bath gel helped a tiny bit along with daily little walks to keep my muscle mass up in my thigh and calf.
I've also started to use an electric blanket at night to sleep on. I find the warmth soothes my aching back and leg muscles.
I am looking into visiting a different private doctor who is able to offer referrals to a specialist as I'm still worried about my peripheral neuropathy and vision changes. ( I have had eyes checked at Specsavers and had an OCT scan, eye health fine but I'm freaking out at times about my vision).
I'm giving myself another week to see if I have any improvement now I'm taking the fish oil before I pay for the private GP.
Did you see a GP about your pins and needles? Im still hopeful that it will eventually wear itself out but it's hard to be patient at times.
If I do see the private doctor I will let you know what they say.
@lmkk oh no sounds like your having a rough time also. my main issues have been more heart related and since going on Bisoprolol beta blockers my dizziness has been alot worse but chest pains have been better. but last week yeah numbness and burning in legs. I have been trying to train my legs more this last week as I've been inactive for 2 months so maybe it could be due to that.
I have seen a private cardiologist who has confirmed that he thinks here's an autonomic dysfunction, my body seems to be so hyper sensitive to any medication at the minute I seem to have side affects from all medication I'm put on. don't know if the best course is to be on no medication and let my body fight itself! I haven't seen my gp about the leg numbness yet it seems like different things come up all the time.
im 4 and a half months now and tbh since being on beta blockers the last 10 days I have seen improvement but also side affects not really sure best solution. scary isn't it Im thinking of paying to see a neurologist just incase they can expand on what my private cardiologist has found. or at least they can rule out some other things.
I hope we start feeling better soon there is a lot more coming out now with side affects from vaccines, I just want my life back its hard staying positive isn't it. I do believe that hopefully symptoms do go away some people on here there's seem to have gone. maybe 6-12 months is the most realistic target for everyone?
I took the first moderna covid vaccine shot of three October 7. I felt fatigued for the first few days. I expected it to stop after 5 to 7 days at most but it continued. After a week the fatigue was still there and I had developed a headache. The head ache continued to intensify and on the 11th day after the vaccine I awoke to an extreme headache and a fever of 102.2. I went to the hospital and after many test the cause of the headache and fever was diagnosed with Viral meningitis caused by varicella-zoster virus (VZV), (the chicken pox for kids/ shingles for adults). I'm still undergoing treatment and things are getting better but it's just very odd that this happen right after the vaccine. Has anyone heard of anyone else having an adverse reaction similar to this??
Hello, Welcome, and thank you for sharing! Your post intrigued me and I couldn't quit tossing it about in my mind.
The past 8 months I've toyed with the idea that these inner ear issues a lot of us have had may be related to reactivation of latent varicella zoster virus for some of us. I decided to do a little research concerning your question and came across this report.
https://www.sciencedirect.com/science/article/pii/S1201971221007670
If you view the PDF, you will get an opportunity to download it.
It appears that you are not the only one!
In the light of this information, I'm a bit surprised that your doctors haven't suggested there may be a relationship between your recent Covid vaccination and the VZV meningitis you were diagnosed with. Since you're still being treated for it, I wonder if you could share this paper with your doctors. I'd be very interested in their response to it, as I expect you would be also.
A few questions, if you don't mind sharing more... did you have a shingles rash? Did you have any other symptoms? Did you ever have chicken pox? Or shingles, prior to this? Have you had the chicken pox vaccine? Are you immunocompromised? Were you kept for a time in the hospital? What has been your treatment?
I'm very glad you're getting better! It must have been a hard thing to be going through! And I hope for your full and soon recovery! 😏🙏
Very interesting!
Strangely enough I had the oddest most random and painful spots appear on my body and face 4 days after my first Pfizer vaccine along with a bad headache.
They were so intensely itchy they would wake me up from sleeping. Nothing would help so I resorted to using an ice pack to numb them for a bit of relief. As they didn't respond to creams for insect bites I did wonder if I had mild chicken pox or shingles.
I still have pain where the spots were nearly 3 months after they went down.
I had chicken pox as a child but never had shingles.
Randomly just before the pandemic began last march there was suddenly lots of the more elderly colleagues in my work place coming down with shingles.
I found this article interesting:
https://www.healthline.com/health/adult-vaccines/shingles-and-covid#is-there-a-connection
@lmkk oh no sounds like your having a rough time also. my main issues have been more heart related and since going on Bisoprolol beta blockers my dizziness has been alot worse but chest pains have been better. but last week yeah numbness and burning in legs. I have been trying to train my legs more this last week as I've been inactive for 2 months so maybe it could be due to that.
I have seen a private cardiologist who has confirmed that he thinks here's an autonomic dysfunction, my body seems to be so hyper sensitive to any medication at the minute I seem to have side affects from all medication I'm put on. don't know if the best course is to be on no medication and let my body fight itself! I haven't seen my gp about the leg numbness yet it seems like different things come up all the time.
im 4 and a half months now and tbh since being on beta blockers the last 10 days I have seen improvement but also side affects not really sure best solution. scary isn't it Im thinking of paying to see a neurologist just incase they can expand on what my private cardiologist has found. or at least they can rule out some other things.
I hope we start feeling better soon there is a lot more coming out now with side affects from vaccines, I just want my life back its hard staying positive isn't it. I do believe that hopefully symptoms do go away some people on here there's seem to have gone. maybe 6-12 months is the most realistic target for everyone?
I reckon at least 6-12 months is a much more realistic time frame for recovery. Given that I am three and a half months out and feel about 50% recovered I reckon I could be around 90-100% better by around 12 months but I haven't written off the idea of it taking over a year!
I have read about the recovery time for those suffering from peripheral neuropathy symptoms being around a year or so.
Although the articles I read where based on peripheral neuropathy damage as a result of antibiotics side effects, nerve trauma after chemo or surgery, I imagine that it will be about the same time frame for the healing process after the covid vaccine. ( Nerve damage is nerve damage regardless of what caused it?) That's my theory anyway!
I also have read accounts of people who were affected by covid at the beginning of the pandemic last year who are now finally starting to be clear of their numbness and pins and needles so there is hope for us yet! 🙂
I now focus on enjoying my better days and try to take it easy on my flare up days. I have chosen not to take any meds and just let my body do its thing. I have changed my diet to anti inflammatory foods and intermittent fasting to help with the healing process, I have experienced some success with this along with Turmeric, ginger, and pineapple.
I think by giving ourselves a more realistic time frame for recovery we are putting less stress and pressure on ourselves when we anxiously watch the calendar for that elusive 2/3/4/ month mark recovery time that some forum members here have luckily experienced.
I started getting very anxious and down around the 2 month mark as I was really hopeful that I would have recovered by that time as others had, then I pinned my hopes on the magic 3 month mark. Again disappointed to still have symptoms but at least I can tell that they are easing slowly.
I'm now more honest with myself that it will be a longer road to recovery but I will get there.
If we count the days going by we are going to feel worse because recovery is not as quick as we would like.
Maybe see a private neurologist to give yourself some peace of mind and ask about the leg numbness while u are there. I know what you mean about different things coming up all the time. I have experienced peripheral neuropathy, dizziness, nystagmus, migraines, menstrual problems, and other stuff since the vaccine. My GP must think I'm a right hypochondriac haha!
I hope any newcomers who read this take note and to try and not get to hung up on dates as I did but to just focus on your recovery with time and patience and not to compare recovery times to closely with others.
I’ve been having intense leg burning sensation this last week, I’m month 4 now what the hell. Anyone else had this sensation and know what is good to help?
Check out this link. Burning can be a sign of healing. I've experienced it myself since the Pfizer vaccine. Hope this helps put your mind at ease a little.
https://arashrecovery.com/2012/12/15/the-nerves-they-burn-burn-burn/
@lmkk perfectly wrote I think you have summed it up very well, lets hope to recovery and take it slow as like you said recovery is slow and non linear.
thankyou for sharing your thoughts I find it helpful can also make people feel better and not alone with this. my feeling is the vaccine has caused inflammation or damaged our nerves therefore mimicking a lot of auto immune diseases. fingers crossed we get better soon!! thankyou again
@nath7 Hi! I take also 1,25 doses, but don.t worry about the diziness. It will get better after some time you will be use to the tablet. I used it for 4 monthes before it begin to work. Remember also stress and thinking is the most producer of diziness and low blood presure in some people like myself. how is your heart now? do you have any irigularity?
UPDATE: 5 Weeks Post 2nd Pfizer Vaccination. I promised that I'd provide an update after receiving my 2nd Pfizer vaccination. Still feeling OK. Summary: 2nd shot 8 months post 1st shot. Waited as long as I could so that my immune system stabilized and my side effects from the first shot subsided (it took about 6 months). Started antihistamines and NSAIDs a week or so prior to my appointment. Started a 2 week course of prednisolone the morning of my appointment. Only side effects from the shot were a sore shoulder and some headaches. This lasted a few days. I have felt fine since. Please note that prednisolone is not without its own set of side effects. While I was on it I had fluid retention, elevated blood pressure, headaches, sleeplessness and mood changes. After stopping the prednisolone, I had headaches, lightheadedness and sleeplessness. Those have all resolved. I think I'm going to be OK.
I know that folks who had nasty side effects from their initial vaccination are being put in a very difficult situation about getting the second dose because of the government mandate. I'm hoping my experience gives you some ideas about taking back some control over the situation. If anyone is still interested, I can post an update on my condition next week.
@mojkav hi there I have been on bisoprolol for 11 days now and my dizziness has been a lot more severe since being on them. They havent calmed down in these days which is very annoying and debilitating. These last three days I’ve also developed burning sensations in my legs with numbness feels like blood circulation is worse since being on them. Any advice have you experienced this? I am not sure tbh as I would of thought I would have a check up whilst being on them but in the uk it’s so hard to get anything done at the minute my gp hasn’t really been helpful and always feels like im just being dismissed. I had to pay private in the end as I couldn’t wait Any longer for some answers. That is when my heart was monitored over 24hrs it showed sinus arrhythmia which im not quite sure is and also short sinus pauses which is basically my heart stopping for brief times. All of this has not been picked up on any other tests. I have to wait 3 weeks at a time just to see the same gp who has been dealing with it. It’s really hard as doctors don’t fully know or find what is going on. How are you feeling anything that has helped yourself?
@myadan I can relate to so many of your posts that I’ve seen on here. I cry every day and desperately want my old self back! Wish there was a way to message you on here because I feel like we can relate to sooo much and this whole thing has made me feel like I’m going crazy and alone.
@nath7 sorry for the delayed response. I am still struggling sadly. Just not feeling like myself, still feeling lightheaded and weird. Desperately wanting to feel like myself again. How are you doing?
Hi guys, I am officially about 7 months out from my one dose of Pfizer. I am still feeling off, mentally and physically. Still feel lightheaded and head feels floaty, eyes still feel weird, and my mental health is still out of wack because I desperately just want to feel like myself again. Some days are better than others but it scares me that I’m still feeling so off after 7 months of dealing with all of this. Got diagnosed with pots 3 months after vaccine and still having the pots symptoms as well. Anyone start making more progress after 7+ months mark because I’m starting to feel so discouraged.