Just wanted to share my experience in effort to give hope and validation to those suffering with vestibular issues after the vax. Thank you to all the others who have shared their experiences as well…it really helped me feel validated when I first experienced my major side effects. To preface, I will say that I have slight hearing loss in my left ear and an audiologist discovered it when I was in elementary school in annual testing. I also am hypothyroid and do fall into the overweight category by outdated BMI standards. I’ve experienced low calcium levels after having my thyroid removed 4 yrs ago. After much deliberation, August 24th I received the moderna Covid vaccine. I went one month later to receive my second dose. About a week prior to my second dose I started having vertigo spells, and a dizzy feeling when standing up quick. I thought maybe my iron was low or maybe even my calcium or something. I didn’t think much of it, although it felt like a different type of dizziness I’ve ever experienced, plus it was weeks after my first dose and I assumed side effects wouldn’t randomly be happening then. I continued on with my second dose…hours after the second shot I felt nauseous, fatigued, dizzy, and started experiencing tinnitus later that evening. I went to bed much earlier than usual because it was so bad and I was hoping it would be gone by the morning. The next morning my arm was very sore, my equilibrium was VERY off..I felt like I could quite literally topple over when I stood up, terrible headache, tinnitus every time I stood up or sat down. Soreness and a headache, to be expected. Tinnitus and vertigo, not so much. I called off work, spent the day relaxing and trying to not fall over, however the tinnitus has remained for the most part. Some days are worse than others. My tinnitus feels like someone clapping inside of my eardrum. It’s not the typical ringing of the ears most people think of. I can’t even explain it. And occasionally I will have moments where I lose my balance and I can hear the clapping.
Now almost five weeks later..I will say, vertigo is not much of an issue anymore, and the tinnitus has not happened in about a week. I’ve been working out, high intensity cardio and running even…was definitely worried the side effects would worsen when exercising.
Things that I feel helped provide relief on days it was bad:
-Using a gua sha stone to try to drain lymph around the side of my face/ear area. If you’re not familiar with Gua sha I highly recommend looking into it! Many people in Asian countries use it to drain lymph and reduce signs of aging. I bought mine from Mount Lai which is Asian owned.
-Benadryl at night- which is when I experienced symptoms the most. Something about diphenhydramine apparently helps tinnitus I read somewhere.
-A chiropractor did something with my ears a couple weeks ago by pulling them (also my chiropractor was furious when I explained to him that this was a result of the shot because bc he like many chiro/functional med doctors are anti vax)
-trying to unclog my Eustachian tubes, you’re supposed to hold your nose and blow hard.
-excedrin for the headaches 🤷♀️
My sister shared with me that Moderna is known to trigger already inflamed areas in the body. Not sure how true this is. & Perhaps with my existing hearing loss issues I was more susceptible to this tinnitus issue. I’m not a medical professional so I’m not trying to spread any sort of medical advice here or anti vax propaganda. Please be mindful of the potential side effects when getting any vax. Vaccine injuries are a very real thing and do not let people gaslight you into thinking your injuries are unrelated. It’s appalling how many people are so sure that the vax is 100% safe. While I still have faith my vaccine will prevent a serious case of Covid should I end up exposed, I am 100% positive my vaccine triggered all of these issues.
Also to add, I have also experienced more painful cycles as well. That probably didn’t phase me as much because I used to have painful cycles up until like a year ago to the point I’d be vomiting and sweating. They randomly started getting much more manageable but these last two have been awful. Definitely convenient it was after the vax.
Hey guys. Almost 4 months out from the last vaccine I will ever get. I'm improving. Although I still have some nausea and palpatations. I noticed foods that used to trigger me don't anymore. I used to bodybuild but lost my ability to lift weights without relapsing after the pfizer vaccine. I started incorporating jogs ( which used to make me relapse) into my routine and noticed. No relapse. Improvement is slow and not linear. Im taking electrolytes, and avoiding animal protein as it triggers my symptoms. First month i lost 40 pounds and had no appetite but ive gained some weight back since then.
Update--I am 8 months post J&J vax and still dealing with dizzy and light headed prolonged periods. I go through periods where I feel "pretty good" and then I'll go through periods where daily life activities are a struggle. Driving even a mile in the car is a real trigger.
I'm a teacher and I haven't taken time off, but I'm scared I'll never be back to normal. Like you, I'm not the same but I'm surviving. I haven't read any success stories of cures or the symptoms just going away.
I haven't found a doctor who helps or believes me, so I'm dealing with those frustrations. I was speaking with a rep from VAERS every 2 weeks in Aug and Sept, but nothing since Sept 29th. Now that we're towards the end of the vaccine effectiveness cycle, I thought we'd be on the upswing. My thoughts are with all of you, and I'm grateful for this group.
@medee unfortunately, no. It is not as bad as it was over the summer, but it is still there. It comes and goes. It isn't permanent. I am 6 months out from my second Moderna dose
I don't even remember what I'd asked. 😞
I think, using the QUOTE option is helpful than clicking on the REPLY button. Atleast we can see what we had commented.
Posted a few months back (I had all the symptoms, severe dizziness for weeks, my first experience with anxiety, my first ever panic attack, high BP, high heart rate, nerve pain, pins and needles, severe neck pain, fatigue… you name it) Alll the tests and specialists (2 MRIs, CT scan, multiple X-rays, blood work, multiple ekgs, heart monitor, etc etc…clean basically)
My second Pfizer was on 7/17, symptoms showed up in high gear mid August but I’m happy to report I have improved significantly. I tried a myriad of supplements but I reacted poorly to many of them as I discovered I have the MTHFR and several other methylation and detoxification genes and my body and liver are so overburdened from the vaccine and also some Prilosec I took which jacked me), so the body says easy on the supplements right now 🙂
I discovered Mast Cell Activation syndrome (reading a book “Mast Cells United” by Amber Walker, a very interesting and a fun read!) which explains our many various symptoms and on looking back at my health which I thought was great, I had some underlying gut issues and stress that I also believe contributes to our poor reactions and all of the inflammation
I started eating a low histamine, low inflammation diet (only raw dairy, no grains, some starchy veggies, protein and fats) and within 3 days my dizziness was virtually gone. I’m still nowhere near 100% but I can now function, drive (didn’t drive for 7 weeks) and sleep is much better for me. Hormones flare my symptoms but are much more manageable now
There’s much more involved than just popping a supplement but there are some supplements that can help support healing
Im doing this program to get my liver, Thyroid, adrenals and gut in better shape called “The Adrenal Recode” on thewholejourney.com and it’s been a lifesaver to help heal the body from root issues. Lots of helpful info on alll things health and I highly recommend it
It’s trial and error but maybe this can help heal you and dampen the inflammation, for immediate relief of anxiety which is a big one for many, I take “L-Theanine Serene” which is great for calming anxiety quickly for those suffering, that has been the worst part for me and maybe worth looking into for some. A game changer has also been Dao enzymes with food to lower the histamine in my body. Also getting my B vitamins levels checked to see how I can better support my body during this healing
Hope this helps and with time we’ll get better each day xoxo
@medee unfortunately, no. It is not as bad as it was over the summer, but it is still there. It comes and goes. It isn't permanent. I am 6 months out from my second Moderna dose
I don't even remember what I'd asked. 😞
I think, using the QUOTE option is helpful than clicking on the REPLY button. Atleast we can see what we had commented.
Hi everyone!
I had my Moderna booster shot on Monday 11/1. Today (11/4) came down with a severe attack of positional vertigo and am trying to see if that has happened for others and how long it lasted.
My doctor sent me to a PT who did this “balance reset” (my term) by having me move my head around, get horribly dizzy, wait to feel better, and repeat. I can attest to how awful the experience was, and am so hopeful that in 1-2 days I'll have the response he suggested- lessening to eradication of symptoms.
I'd also just like to say to this supportive group that I don't mind sleeping on my back but I fully resent rolling on my side with my eyes closed and getting horrifically dizzy/vertigenous. Thankfully rolling back solved the problem (within a minute) but SERIOUSLY?! I have added compassion for those who live with chronic vertigo
Thanks for being there. As with so many things, this is a challenge to explain to those who’ve never experienced it.
@gingerjones Nerve damage...heart issue.. nightmare... brain fog.. fatigue.. no appetite
I took the first moderna covid vaccine shot of three October 7. I felt fatigued for the first few days. I expected it to stop after 5 to 7 days at most but it continued. After a week the fatigue was still there and I had developed a headache. The head ache continued to intensify and on the 11th day after the vaccine I awoke to an extreme headache and a fever of 102.2. I went to the hospital and after many test the cause of the headache and fever was diagnosed with Viral meningitis caused by varicella-zoster virus (VZV), (the chicken pox for kids/ shingles for adults). I'm still undergoing treatment and things are getting better but it's just very odd that this happen right after the vaccine. Has anyone heard of anyone else having an adverse reaction similar to this??
Hello, Welcome, and thank you for sharing! Your post intrigued me and I couldn't quit tossing it about in my mind.
The past 8 months I've toyed with the idea that these inner ear issues a lot of us have had may be related to reactivation of latent varicella zoster virus for some of us. I decided to do a little research concerning your question and came across this report.
https://www.sciencedirect.com/science/article/pii/S1201971221007670
If you view the PDF, you will get an opportunity to download it.
It appears that you are not the only one!
In the light of this information, I'm a bit surprised that your doctors haven't suggested there may be a relationship between your recent Covid vaccination and the VZV meningitis you were diagnosed with. Since you're still being treated for it, I wonder if you could share this paper with your doctors. I'd be very interested in their response to it, as I expect you would be also.
A few questions, if you don't mind sharing more... did you have a shingles rash? Did you have any other symptoms? Did you ever have chicken pox? Or shingles, prior to this? Have you had the chicken pox vaccine? Are you immunocompromised? Were you kept for a time in the hospital? What has been your treatment?
I'm very glad you're getting better! It must have been a hard thing to be going through! And I hope for your full and soon recovery! 😏🙏
@lpcarroll48 This is a link to another paper that may hold some relationship to your experience.
"VZV reactivation might be a possible rare event triggered by COVID-19 vaccination and should aware clinicians to promptly consider this manifestation in the differential diagnosis and to rapidly start the specific antiviral treatment."
https://link.springer.com/article/10.1007%2Fs00415-021-10849-3
My experience about how long did it go away its symptoms? I am almost cured of it except for one thing, forgetfulness. Maybe it helps you.
Blooded eyes - 3 days
Blurred vision - 4 days
Pain in the depth of my teeth - 1 week
Headache - 1 week
Ear itch - 2 weeks
Lower back pain - 2 weeks
Nausea - 2 weeks
Neck pain - 2 weeks
Left armpit pain - 2 weeks
Chest pain - 3 weeks
Arm/hand tremble - 1 month
Tinnitus - 1 month
Glutes pain/cramp - 1 month
Shortness of breath - 1 month
Dry cough - 1 month
Difficulty speaking - 1 month
Hard heartbeats which don't allow to sleep - 5 weeks
Sputum - 5 weeks
Flaming sinus - 6 weeks
Sensitivity to light and sound - 6 weeks
Pimples on face - 6 weeks
Ear pressure - 6 weeks
Leg cramps - 6 weeks
Anxiety - 7 weeks
Tooth bleeding - 7 weeks
Palpitations - 2 months (first month's rate was 105-130, the second was 90-110, then it was normal 70-90)
Lightheaded - 2 months
Bad sleeping - 2 months
Dizziness - 3 months
Fatigue - 3 months
Easy to get exhausted - 4 months
Dark circles under eyes - 4 months
Leg pains - 4 months
Forgetfulness - 4 months +++
Hi, I was just wondering if anyone has serious health anxiety from there symptoms? I started off after my AZ 2nd jab. My vision subtly started changing and feeling weird. gradually got worse and stabilized whereby I just have a weird light headed/zoned out feeling. Its not a spinning room sensation as such. It does seem worse in unnatural/bright light but its always there. I've had all my bloods done twice and they came back fine, MRI was clear, ophthalmologist cannot see any issues and in fact said eye health was very good. This is all re assuring but the fact they cannot tell me the issue makes me so anxious as i'm searching for the cause. I'm 99% sure its the vaccine but that 1% says what if.
This is honestly driving me insane. I have over time had some of the other symptoms like ear fullness etc. They have actually diagnosed it as long Covid however I never had any of these issues after Covid, The GP said that the jab might have sparked a reaction. I think the only thing keeping me sane is this forum and knowing other people have very similar issues.
@lmkk me too. I've had this neck and backache constantly but it has got worse and now all my muscles ache like I've done a massive gym workout or something. It also feels like its my bones but they say its muscular. I did think spinal inflammation and mentioned this to the neuro but he palmed me off and said I will see you in 6 months but it should all pass.
So I'm kind of left just getting by day by day. I have a new irrational fear of taking any medication I'm prescribed and I just want to leave my body to do its own thing now really.
I hope this doesn't take years 😔💔
I've been telling people I feel like the pain is inside my bones and they look at me like I'm crazy! My muscles are also very achy and often warm and fuzzy in feeling. I wonder sometimes if it's caused by inflammation from reactive arthritis caused by our bodies immune response to the spike protein?
I've had reactive arthritis a couple of times in the past when I've had a very bad flu and gastroenteritis and it feels like the same thing only in all my body instead of just my knees and hands. I used ibuprofen to treat it in the past but I know exactly what you mean when you say you are reluctant to use even prescribed meds now. I'm currently trying to heal my body using natural products including pineapple , beetroot, turmeric and coconut water so my body has a chance to work on itself without being influenced by meds.
I am going to see a private doctor soon so I'm going to ask about this bone pain and back pains and see what he says. I will let you know if he says anything of interest.
Hi @larag
I'm just back from my private GP appointment. He was less helpful than my regular GP. He flat out said what I'm experiencing hasn't anything to do with my Pfizer vaccine! He has ordered me to get folate, b12 and diabetes blood tests! I know that all these are fine as they tested me for these during my pregnancy and I doubt they have changed in the last three months since I had my baby especially given the amount of multivitamins I'm consuming with all my healthy eating to try and beat this monster.
It was only when I told him about guillan Barre syndrome being listed in the UK as a "rare" side effect of all the vaccines in use in this country that he changed his tune and after looking on Google he then told me that the intense back ache I'm having along with a weakness in my legs and arms, pins and needles etc sounds like it could be a "mild variant of guillan Barre syndrome" I did read on this thread a guy from in the UK posting on here around June that he had also been diagnosed as having mild variant of guillan Barre syndrome after severe backache and facial paralysis on one side left him in the hospital for a week. If this is mild I shudder to think what severe is like 🙁
He told me not to Google it and that as nothing can be done only time will help. Not what I wanted to hear but he did rule out MS and motor neurone disease.
I'm going to do a big post on here and share all my symptoms and different stages of improvement and set backs so hopefully one day it can help another reader.
Hope you are doing ok.
how you getting on? any more information, month 4 for me and I've recently had very weak legs and numbness/burning. any tests I should have in particular to rule out ms and mnd how did he rule it put with yourself?