@tennyson77 Ok. Those are my last remaining symptoms. I wonder how long this will take to disappear. Only time will tell..
@tennyson77 Ok. Those are my last remaining symptoms. I wonder how long this will take to disappear. Only time will tell..
The only things that have helped for me have been antihistamines, melatonin (at night), vitamin C, and quercetin. Not entirely sure about the last three, but when I started them I believe I started feeling better more often. I did one more round of steroids a week ago, and, knock on wood, I've been feeling quite a bit better since they ended. I'm going to wait another week before passing judgement, but I'm feeling pretty good right now.
@trev Yah I think it was pleurisy.. I have headaches that seem like they are behind my eyes, and I still have ear pressure and ear aches.
Do u have photophobia ( sensitive to light)? Floaters? Flashing lights?
@floryeo I had some floaters. But I don’t notice them now. I didn’t have sensitivity to light.
An update on my last flare up, this one doesn't seem to be ending. It's been more than a week already. Lots of sharp, stabbing pains throughout my arms and legs, especially the wrist and knuckles :/ Had a burning palm last night which was one of the first symptoms for me, it has returned for the first time. Any clues on why this might be happening, I did eat a lot of unhealthy stuff around Christmas and New year so I guess that might be it. But I never really changed my diet the previous time around either and I appeared to be improving
@trev I didn’t have head pain but I did have problems with my vision. It was more like inability to focus on objects and blurriness. It’s much better now. Seems as though when one or more symptoms go away, new ones replace them. Hope you feel better soon.
Hi everyone...
I have noticed many sudden deaths (heart attacks mostly) here in my country of young people and I am worried and trying to figure out whether it's covid or vaxx... young people die and nobody cares...
Hi everyone !
Any thoughts on this?
https://www.autoimmuneregistry.org/long-covid-announcement
Are you aware?
This is very interesting. I agree that a lot of our symptoms are similar to long Covid. I don’t know a lot about long Covid and need to do some research but the fact that they are adding it to this list is not good (my opinion). Makes me think it is an autoimmune disease we will never completely overcome and will have flare ups forever. Others thoughts?
Ugh! I certainly hope not...
@lmkk I actually had a good visit with my GP yesterday. She’s not denying that it could be the vaccine but she wants to cover absolutely every base as well which I don’t think I can complain about because at least she is being thorough!
She was amazing yesterday and very understanding/sympathetic. I truly feel like she wants to get to the bottom of this as much as I do.
That is certainly wonderful to hear...especially, after all you are going through...
Check this out!!! Thank God in Africa there is a serious research taking place! And I am sure this applies to us as well!
https://www.theguardian.com/commentisfree/2022/jan/05/long-covid-research-microclots
@tennyson77 I just wanted to confirm that I've started taking vitamine C and it makes a big difference. I gave it up a few days, and realised how much it made a difference. I also started the Quercetin and am not sure yet. Finds it makes the tremors worst. I am also looking at taking your antihestamin as they are over the counter. Did you find those helped same day or did it take a bit of time?
I've been trying to get the steroid but doc not giving those out easily. Did they make you more sick in the time you took them? As they can be hard on the body.
@tennyson77 I just wanted to confirm that I've started taking vitamine C and it makes a big difference. I gave it up a few days, and realised how much it made a difference. I also started the Quercetin and am not sure yet. Finds it makes the tremors worst. I am also looking at taking your antihestamin as they are over the counter. Did you find those helped same day or did it take a bit of time?
I've been trying to get the steroid but doc not giving those out easily. Did they make you more sick in the time you took them? As they can be hard on the body.
Yah they aren't fun. They raise blood sugar, blood pressure, mess with your vision, and often cause weight gain (I gained about 5 lbs in 9 days). But they also are the best anti-inflammatories we have, and suppress the immune system.
@rainyday I very much agree with you - and am in the same boat At first, you just find another reason but then it hits you. And it's hard to find people around you that understand. It's bad enough you feel like you are going crazy from these tempermental side-effects - there is a lack of support from both doctors and close ones. Anyways that's been some of the other struggles I've dealt with other then trying to survive/live. I am glad that we can chat here and connect.
I am not sure if you came to the same conclusions? 1: possibly Ace2 antibodies - like long haulers; 2: the medication does exist that would make us feel better and avoid inflammation damage, even if the simplest; steroids. But that inability of the medical community to be so risk averse makes it we don't have access to those proper treatments. Some conditions are based off of a list of symptoms then a positive test (because they don't exist yet) but that isn't still good enough. For myself I've turned to vitamins, some which I really think help. It's all I've got at this time. My brain and over the counter stuff.
I am very sorry you also have these symptoms. Have you found improvement with anything? Do you feel this will most likely go away in time? (For myself, I think so more likely then not - while it still feels like forever from now)
I've also found the disbelief from others to be isolating and painful. I have never been an antivaxxer, nor have I ever been one to make things up, so the look of skepticism in people's eyes when I tell them I became sick after taking two doses of Moderna is disappointing.
I keep my symptoms to myself because of it. I'm not sure what my coworkers think of me, at this point, as I am certainly not at my best. I have to white-knuckle my way through each hour of each shift. I'm sure that desperation comes through in my work, but I can't help it.
I believe the vaccines caused our immune systems to react in the same way as they would have to a severe case of COVID. I tend to think our symptoms will wane over time as the antibodies go down, but I'm unsure what the long-term will look like. What damage has the near-constant inflammation done to our body? Will we experience flares for the rest of our lives? It's hard to tell.
I, too, believe there must be a combination of medication (Fluvoxamine? Steroids? Antihistamines?) and supplements (Glutathione? Quercetin? NAC?) that would help to re-regulate our immune system and cause it to stop attacking our own tissues. That's going to require research - and that will require the "powers that be" to acknowledge that the vaccine is damaging us in the first place. For now, our best bet is to follow the research of COVID long-haulers; I believe their treatment will be similar to ours.
Thus far, Quercetin/Bromelain and Flonase have provided the greatest relief for me personally. I also take Vitamin D3, CoQ10, and a multivitamin daily. I keep to an anti-inflammatory and vegan diet, which has also helped. And finally, I plan on adding Resveratrol soon, as I read it's recommended for COVID long-haulers.
Had a very scary episode today. Felt like this is the end!
Have been feeling feverish since past few days. I took medicines for my flu and cold and felt better. I again fell ill yesterday, maybe due to drinking coconut water everyday. Its already cold here and I usually fall ill when its cold. Have been drinking almost everyday since these symptoms occurred.
Had dinner and took a tablet but pucked it out. But didn't endup puking the tablet. It didn't subside my fever. Today afternoon while I tried sleeping, I had the most scariest internal tremors. My whole body was shaking, it felt totally cold from the inside. I was shivering too. Took 2 sheets to cover myself up but I still didn't feel warm. This was the most horrifying feeling.
Asked my mom to give me a bottle filled with hot water. Held it in my hands and rolled it all over my body to reduce the shivering. Gradually it went away. But my temperature is again too high. I can't stand nor do anything without a helping hand. I feel too weak.
I don't know what is happening but, I'm too scared for my life already and this is just adding up to the fear.
Anyone else had any similar episode ever?
Have you taken a covid test just in case?
I experienced something similar once on holiday in Africa. It was crazy hot outside but I was shivering so much my teeth were chattering and I had to have three duvets to try and warm up. Thought I was on my death bed. My husband said I was burning to touch but I felt so so cold and couldn't get warm for a day. After the chill broke I developed a crazy high temperature and I started having hallucinations. I also had violent uncontrollable body tremors, vomiting and bad stomach troubles when I was so cold. I think I got sick from eating something not properly cooked from a food Market. When I got back to the UK I went to my GP who ran some tests. They detected e.coli and campylobactor bacteria which could have been from badly prepared food or someone not properly washing their hands before making the food. I was given antibiotics to treat it. I was rough for a fortnight. I've never bought street food anywhere since at home or abroad.
No, I never felt so sick that I needed to do a Covid test.