@emmak Hello, I have a question. I'm researching positive ANAs. I'm a teenager. I recently had a positive test of 1:80, since they sent me to do that test because I had various side effects such as numbness in my legs and palpitations, but over time it It disappeared completely and now I feel very well, it's just that the fact that it has tested positive has me worried since it may be some autoimmune disease, but I just saw your comment where it says that you contacted a specialist and you say that it is very common that Antinuclear antibodies are raised positively by the vaccine, right? (mine is pfizer by the way)
@jaydev55 Hi, this is Thelma Ponce, and I had posted that I suffered from mild peanut allergy to a very severe allergy after the vaccine. I did suffer very extreme anxiety but just for one month, thank God. Now after the vaccine I am allergy free even from penicillin, pork and other allergies that I had. In the past I suffered mild anxiety when flying, but after the one month with severe anxiety due to Pfizer vaccine, I am anxiety free even when flying. Weird right?
My take on this is that the vaccine brings to the surface problems that we were prone to suffer from but that were under control. In my case I can travel from one country to another without being medicated any more.
Regarding the booster I WILL NOT HAVE IT. Enough is enough.
@bowie it is interesting, I would to know about this.. do you have more information about this?
Hello everyone!
I’ve been taking a bit of a break from online forums etc as I felt like it was making my anxiety worse.
I wanted to post here and share how I’m doing now that I’ve passed the 3 month mark on my second Pfizer jab. I’ve been on colchicine for my pericarditis for the last almost three weeks and have noticed a considerable difference. Like many others, I too tried every new remedy I came across and never really saw much of a difference. I ended up stopping everything except for: Vit D, Magnesium, Vit B12, Fish Oil and Curcumin (I have to stop this also, as a type 2 diabetic it’s plummeting my blood sugar which I already have controlled with diet and exercise). These things have, I feel, helped with my previous side effects of: all over paraesthesia, brain fog, tremors, dizziness etc.
I did start getting new symptoms which align with POTS. They’re frustrating but nowhere near as debilitating as the previous ones. Heart rate is fine when sitting/laying and jumps by 30+ getting up and walking around. I have what feels like sunburn on my face but no temperature or real hotness. Body aches! My shoulders, back, legs, you name it they are all aching at different times. I was prescribed medicinal cannabis (flower) which has helped a lot with these symptoms. I was referred to an endo and neurologist, I’ve an appointment with the endo in April and I haven’t been able to get into the neuro yet.
I hope this somewhat positive post helps someone and that you are all taking care of yourselves!
@lukenick What has tylenol and zyrtec cause? Is there a problem with both of them together?
@bowie I did see Dr Patterson as a guest on Dr. Bean channel on YouTube. Very impressive, especially his diagrams of what he feels as the problem. He also as a protocol for treatment.
He's based in Northern California and I would see him if I could travel. I hope he gets more coverage. His research lab sounds fascinating. If you do see him, I'd be interested in your opinion.
In case this is helpful in managing pain. Just starting to look into it but it seems like there are resources on how to retrain the brain in dealing with pain (especially when tests, come back negative, etc.)
@sickofthis I was “lucky” that my dizziness has not been intense and there has been no room spinning vertigo symptoms. My dizziness has been more of a light-headed, swaying sensation noticeable only when walking, but not when stationary. It can feel like I’ve had a few beers or like walking on the deck of a lightly rocking boat. I also have tinnitus in the left ear, although I am like some others on this forum in being able to live with that if the balance issues are sorted out.
I suspect that time along with physical activity are the things that help the most, although the timeline can vary for different people. I was queasy for 3 months, but at least that gradually went away. The balance retraining exercises have helped diminish the symptoms, although I only had contact via email with a vestibular physiotherapist for the first few months and his view was “try any exercises that keep you moving”. That helped to some extent, although progress is not linear and it can feel like a case of 2 steps forward, 3 steps back with better days followed by worse days (particularly if you are tired).
I am now seeing a vestibular physiotherapist in person and that has helped since she did a detailed assessment in person rather than online. (The ENT specialist also conducted an office-based assessment when I first saw him). She thinks I am a “visual” person who relies mainly on the eyes for balance and movement, whereas some people naturally rely more on proprioception without them knowing it. The exercises I’m now concentrating on involve optokinetic videos, balancing on one leg, and using a wobble cushion.
One advantage of seeing an ENT is that they should be able to figure out whether your problem is vestibular and related to the inner ears. Others have different views, but I was not desperate for any formal diagnosis since I was almost certain I knew what the problem was based on my symptoms so being told I had “unilateral vestibular hypofunction” or “vestibular neuritis” weren’t as helpful to me as being advised to stay away from drugs that masked symptoms and delayed the process of natural recovery over time. Incidentally, my GP, the ENT specialist, and both vestibular physiotherapists all thought there was little doubt my problems were caused by my body's inflammatory reaction to the vaccine and they have all seen many cases of people with such problems so at least I haven't faced denial from medical staff!
This sucks. I had gotten symptoms of Bell's Palsy (or extremely small chance it's guillain-barré) 2 weeks after my 1st Pfizer shot, but it only lasted 2 weeks, so it wasn't THAT bad. Basically pressure / tingling in inner ear and extended to most of the left side of my face, no real paralysis, although I did bite my lip pretty much every day it was going on.
Fast forward 6 months later and I get a pretty bad respiratory infection that gave me an asthma attack almost every day for a few weeks and bam, relapsed my symptoms except now it's been going on almost a MONTH. It seems anytime I get stressed out or something, it gets worse. It's only almost gone when I first wake up. This sucks, because I think this is going to be with me for life now. I really hope it doesn't or at least doesn't progress into full blown Bell's with a droopy face and all. I had never had a reaction like this before to a vaccine and nothing happened like this after the J&J shot (relapse didn't happen until about 2 months after that). Hope no one else has to go through this. Wishing I hadn't gotten the Pfizer one and just went with J&J instead, but dummy me didn't think it was available at the time. I guess that's what I get for being lazy? I dunno, it stinks, also puts me in a bad mood whenever it flairs up, and I'm normally pretty laid back.
I don’t now about anyone else or if it’s just me or I’m going crazy but lately I have been having lots of body twitching, muscle spasms, weakness in my hands, vibration’s legs and feet also it feels like I’m getting tremors in my hands they shake and not until a few days ago I realized it all happened after I got my 1st COVID vaccine Pfizer. It’s been 3 weeks now and, 3 weeks ago is when I got the vaccine that’s the only thing I have done differently to my body was inject it with that crap ! I regret getting it. I’m going to see a neurologist for all these issues and figure out what I can do and make sure the vaccine didn’t cause any damage to my nerves or something. I got a MRI a week ago and it was normal these spasms are driving me crazy. Anyone else with similar side effects?
@sickofthis I was “lucky” that my dizziness has not been intense and there has been no room spinning vertigo symptoms. My dizziness has been more of a light-headed, swaying sensation noticeable only when walking, but not when stationary. It can feel like I’ve had a few beers or like walking on the deck of a lightly rocking boat. I also have tinnitus in the left ear, although I am like some others on this forum in being able to live with that if the balance issues are sorted out.
I suspect that time along with physical activity are the things that help the most, although the timeline can vary for different people. I was queasy for 3 months, but at least that gradually went away. The balance retraining exercises have helped diminish the symptoms, although I only had contact via email with a vestibular physiotherapist for the first few months and his view was “try any exercises that keep you moving”. That helped to some extent, although progress is not linear and it can feel like a case of 2 steps forward, 3 steps back with better days followed by worse days (particularly if you are tired).
I am now seeing a vestibular physiotherapist in person and that has helped since she did a detailed assessment in person rather than online. (The ENT specialist also conducted an office-based assessment when I first saw him). She thinks I am a “visual” person who relies mainly on the eyes for balance and movement, whereas some people naturally rely more on proprioception without them knowing it. The exercises I’m now concentrating on involve optokinetic videos, balancing on one leg, and using a wobble cushion.
One advantage of seeing an ENT is that they should be able to figure out whether your problem is vestibular and related to the inner ears. Others have different views, but I was not desperate for any formal diagnosis since I was almost certain I knew what the problem was based on my symptoms so being told I had “unilateral vestibular hypofunction” or “vestibular neuritis” weren’t as helpful to me as being advised to stay away from drugs that masked symptoms and delayed the process of natural recovery over time. Incidentally, my GP, the ENT specialist, and both vestibular physiotherapists all thought there was little doubt my problems were caused by my body's inflammatory reaction to the vaccine and they have all seen many cases of people with such problems so at least I haven't faced denial from medical staff!
Thank you for the reply. From the sounds of it, we have a similar dizzy symptom. I also read your initial post and it seems that we never really had anything too debilitating, just more annoying than anything (which I am thankful for). You have been battling this for a while, how has your light headedness progressed up to this point? Would you say you are close to 100%?
How about other symptoms, have you had any head pressure or brain fog? I did, and it seems like those went hand in hand with my light headedness. As one got worse, so did the others. I think I am going to keep my ENT visit just to confirm or rule out that it is from the vestibular system. Thanks for the advice.
@charsen hello I hope you are doing ok and this a good day. Like you I have lost a lot of weight. I’ve been able to stop the weight loss but can’t seem to put any on. I got 2 vax in July. Have you been able to stop the weight loss? I also sleep and wake up every couple hours. I would love to hear from you.
@chelsun I’ve also been diagnosed with POTS as a result of my Pfizer booster.
I’m only 1.5 months in but the fact you have improved, and so quickly has given me hope. I just wish I could get good sleep to help my body along (broken and light at the moment).
I read a fb comment on a dysautomnia support group a few days ago that POTS brought on by the vaccine can last around 6-10 months. I’ll take 10 months of hell to have the rest of my life back without this.
I’m only 30.