It's good that you're already taking alpha lipoic acid.
Milgamma can also be tried for tinnitus, but of course it is more difficult to get relief for tinnitus.
I know that in cases of MCAS, antihistamines can be taken in higher doses.
Have you also tried Cromolyn or Ketotifen or Montelukast?
Personally, I still believe that chelation therapy plays an important role, in some cases. And I had the opportunity to find out the opinion of some doctors who apply chelation in their activity and they said that clay or zeolite are not very effective.
I knew about the treatment with suction cups, only for colds, pneumonia.
I'm glad that it is effective in such situations.
The treatment to be tried, of course, is made up of trials.
Didn't the neurologists offer any suggestions for treating the fasciculations?
At least magnesium or alkalisation of the body?
I would like to say that articles about myocarditis, as an adverse reaction, show that especially troponin and magnetic resonance imaging have shown changes, compared to other investigations.
Especially troponin, should be easy to control, anywhere.
here is an article on Rosemary benefits
https://www.frontiersin.org/articles/10.3389/fphar.2020.00153/full
I have veins all over my body. i have problems with palpitations shortness of breath
@plandistry what are your thoughts on fluvoxamine? I heard it has effect on mast cells.
Ok, so... I am now fully recovered from Covid, which I had last week.
I had the 2-shot regimen of Pfizer in March of 2021, and developed vertigo, brain fog, and vision problems (depth perception loss, inability to focus eyes together on a target, floaters, and probably a few other issues I'm forgetting) immediately following the first shot. So basically, I was barely functional for 11 months. I was able to work at my desk job and drive to and from work (a few blocks) and that was it. I didn't feel safe to drive anywhere else, had no energy... I was just clinging to my job to survive and that was all I could handle. I had a lot of very dark moments all because my physical health was so bad it felt like I had no life left.
Then I got Covid. I noticed that, while I had a fever, sore throat, and sore muscles, overall I was actually feeling better. It seemed like the brain fog was lifting, and my vision was returning to normal at least some of the time. So now I'm recovered from Covid, and the brain fog that I had for almost a year is gone. I feel like a different person. I had been feeling sick for so long that I didn't even realize it wasn't normal anymore. I drove across town today and my eyes were working correctly again. If this improvement continues, with a little practice, I will feel safe to drive wherever I want like before. I have energy and feel...happy again.
I don't know exactly what happened here, and I am absolutely NOT saying to go and get Covid. If there's anything we know about it, it's that it is unpredictable and dangerous. As we all know here, the shot can be dangerous too, but probably not to the same extent as the illness.
I believe the first shot confused my immune system. It knew it was supposed to be fighting something, but maybe it got confused and decided to just let the spike proteins stay, or maybe it started attacking my body and created inflammation. I don't really know. But it seems like being infected with Covid may have allowed my body to fight off whatever bad thing was still in there from shot #1, or let it go to work on a real foe instead of attacking me. Whatever went wrong, it resulted in me feeling extremely ill for almost a year until I finally got Covid.
I remember early in the pandemic there were stories about people who had Long Covid, and then when they got vaccinated it helped them to recover. I think it's possible that something similar happened to me, but with the reverse sequence of events. This makes me wonder if it is possible for doctors to develop some sort of medical treatment that mimics whatever just happened in my body in order to undo certain vaccine injuries. I am NOT saying it's a good idea to get Covid. I'm just saying the medical establishment needs to take us seriously, and if this really is what happened, it should be possible to recreate with a safe treatment rather than an infectious virus that could just as easily have killed or further disable me. Is anyone even out there studying us or trying to help us?
So yeah please do not take this as me saying it's a good idea for us to get Covid...it never will be. Covid is horrible, covid is deadly, and it can lead to fates much worse than most of us are even living with (which is already very bad). I'm just saying, it indicates that maybe this problem CAN be fixed if the right people were to believe us (instead of framing our very real injuries as the "nocebo effect", hypochondria, functional disorder, what-have-you) and look in the right places for a solution.
@plandistry
How do you tell the difference between mcas and ebv activation?
My homeopatic doctor tells me i have ebv activated by vaccine.
Some of the drugs used to try to help Long Haul/Vaccine Injured seem to actually encourage mast cell degranulation - so all of those need to be evaluated.
What drugs will encourage mast cell degranulation? In other words, what drugs should we avoid?
@sickofthis it was gradual, meaning day by day it would wean until finally it just went away completely. No, I didn't take any meds or have any kind of therapy (my one driving force was my determination to get over it: I am disabled myself, but also a caregiver for two family members who have even worse disabilities. Plus I have two kids, one of which is a minor. Dragging through life for four months, barely managing to keep things "normal" in here and having absolutely no stamina for anything else was terrible. My friends think that I'm taking a big risk by not getting the booster, I KNOW I can't possibly risk not being at 100% physical and mental capacity again in my life owing not to illness, but a vaccine)
Hoping you will follow the same timeline, and looking forward to reading your recovery story soon! Hugs 🤗
I would like to make a small point.
Potassium is a stimulant of the neuro-muscular excitability. The effect of potassium is enhanced by "sensitizers". A sensitizer to potassium is histamine.
The LOEB formula (Na+K+OH/Ca+Mg+H), indicates that the neuro-muscular excitability depends not only on the concentration of potassium in the blood serum, but also on the other ions present.
Calcium supplements are sometimes avoided to avoid calcium deposits, so magnesium supplements are being tried, to reduce the excitability.
Alkalosis increases neuronal excitability. But when there are to many muscle contractions, to avoid fatigue, an alkalizing diet could be helpful.
@sunrise Yesterday I started water fasting. I am planning to drink only water+ tea + some herbal teas for as long as I can. Only problem is some of the drugs Im on need to be taken on a full stomach.
Yesterday I also went to myholistic doctor and got a dose of bioresonance therapy (electrical stimulation something like acupuncture). Today all my symptoms diminished. Whenever my symptoms get bad I get bioresonance and it helps. The downside is; it is expensive and it only works for a few days and then all symptoms come back. So, it is not a cure but only a temporary relief.
There is a vocal version of bioresonce therapy on youtube for mast cell activation. I dont know if it works as good as the electrical version.
Am I the only one who has nerve issues across my stomach, at my side, and up my back?
The food I eat affects it.
Help! Do you know anyone else like me?
Ok, so... I am now fully recovered from Covid, which I had last week.
I had the 2-shot regimen of Pfizer in March of 2021, and developed vertigo, brain fog, and vision problems (depth perception loss, inability to focus eyes together on a target, floaters, and probably a few other issues I'm forgetting) immediately following the first shot. So basically, I was barely functional for 11 months. I was able to work at my desk job and drive to and from work (a few blocks) and that was it. I didn't feel safe to drive anywhere else, had no energy... I was just clinging to my job to survive and that was all I could handle. I had a lot of very dark moments all because my physical health was so bad it felt like I had no life left.
Then I got Covid. I noticed that, while I had a fever, sore throat, and sore muscles, overall I was actually feeling better. It seemed like the brain fog was lifting, and my vision was returning to normal at least some of the time. So now I'm recovered from Covid, and the brain fog that I had for almost a year is gone. I feel like a different person. I had been feeling sick for so long that I didn't even realize it wasn't normal anymore. I drove across town today and my eyes were working correctly again. If this improvement continues, with a little practice, I will feel safe to drive wherever I want like before. I have energy and feel...happy again.
I don't know exactly what happened here, and I am absolutely NOT saying to go and get Covid. If there's anything we know about it, it's that it is unpredictable and dangerous. As we all know here, the shot can be dangerous too, but probably not to the same extent as the illness.
I believe the first shot confused my immune system. It knew it was supposed to be fighting something, but maybe it got confused and decided to just let the spike proteins stay, or maybe it started attacking my body and created inflammation. I don't really know. But it seems like being infected with Covid may have allowed my body to fight off whatever bad thing was still in there from shot #1, or let it go to work on a real foe instead of attacking me. Whatever went wrong, it resulted in me feeling extremely ill for almost a year until I finally got Covid.
I remember early in the pandemic there were stories about people who had Long Covid, and then when they got vaccinated it helped them to recover. I think it's possible that something similar happened to me, but with the reverse sequence of events. This makes me wonder if it is possible for doctors to develop some sort of medical treatment that mimics whatever just happened in my body in order to undo certain vaccine injuries. I am NOT saying it's a good idea to get Covid. I'm just saying the medical establishment needs to take us seriously, and if this really is what happened, it should be possible to recreate with a safe treatment rather than an infectious virus that could just as easily have killed or further disable me. Is anyone even out there studying us or trying to help us?
So yeah please do not take this as me saying it's a good idea for us to get Covid...it never will be. Covid is horrible, covid is deadly, and it can lead to fates much worse than most of us are even living with (which is already very bad). I'm just saying, it indicates that maybe this problem CAN be fixed if the right people were to believe us (instead of framing our very real injuries as the "nocebo effect", hypochondria, functional disorder, what-have-you) and look in the right places for a solution.
Based on our history of symptom relapse, can you please follow up in a few weeks and let us know how you are doing? This post is helpful since my fear of getting COVID is that it will worsen my current symptoms. Knowing you are better after getting it relieves much of the anxiety I feel about getting COVID. Thanks so much!
Just a quick update incase it's helpful for anyone seeking alternative care... went to a chiropractor/kinesiologist this week and he ordered lab tests including EBV antibody panel, TSH, thyroid peroxidase & thyroglubulin antibodies and CRP among others. I don't recall ever having EBV but he wants to rule out reactivation since it is also seen in long COVID. He told me to take B-12 1000mcg and St. Johns Wort. I have not started the St. John Wort yet because it increases heart rate and i've been dealing with tachycardia. I'll follow up when lab results are in and let you know know how it goes.