Thank you! I do have a blood pressure cuff and monitor 3x/day; still labile but lower.
Vertigo is better, but yesterday was awful. Stayed mainly still, afraid of triggering episode. I have been performing BPPV home exercise 3x day, which seems to help. Still have some lightheadedness and balance issues. Aleve and Benadryl help. I see PT again next week and new primary care.
The J & J vaccine was paused due to a few people out of millions having blood clot issues, yet the side effects people are describing here aren't even being acknowledged, much less being looked into. And the side effects here seem to be much more common than a one-in-a-million thing. I don't get it.
I surmise it's only the potentially life-threatening adverse effects that garner this kind of attention and response, that may only be a couple of days pause to inform medical caregivers to check platelet level and not to treat this rare event with the traditional heparin, which can make it worse if the patient has the low platelet problem also.
The possibly more common life-changing ones like most of us are dealing with are understandably on a lower rung of importance. This pandemic and vaccination effort is being dealt with on an emergency basis - so like triage in emergencies. Not very helpful for us at this time, but hopes are that eventually there'll be acknowledgment and recommended interventions developed for nonlife-threatening adverse effects such as ours also. For example, it would have been nice to know if a course of steroids very early on would have helped!
The J & J vaccine was paused due to a few people out of millions having blood clot issues, yet the side effects people are describing here aren't even being acknowledged, much less being looked into. And the side effects here seem to be much more common than a one-in-a-million thing. I don't get it.
I surmise it's only the potentially life-threatening adverse effects that garner this kind of attention and response, that may only be a couple of days pause to inform medical caregivers to check platelet level and not to treat this rare event with the traditional heparin, which can make it worse if the patient has the low platelet problem also.
The possibly more common life-changing ones like most of us are dealing with are understandably on a lower rung of importance. This pandemic and vaccination effort is being dealt with on an emergency basis - so like triage in emergencies. Not very helpful for us at this time, but hopes are that eventually there'll be acknowledgment and recommended interventions developed for nonlife-threatening adverse effects such as ours also. For example, it would have been nice to know if a course of steroids very early on would have helped!
That sounds about right. I'm just grateful to have seen this forum before I blindly just got the shot.
Disabling, life-changing side effects are NOT an acceptable risk.
@annasegreto Hi Anna - I did a VAERS report before I had the tinnitus. I need to go back and add it. I’ve had very modest improvement with acupuncture (3 sessions), but it’s hard to know if it’s what I’m taking/doing is working... or passage of time. Acu told me it would take a while for ringing to resolve. I’ve taken ibuprofen on & off since I’ve had more migraine_like headaches. Wondering if I should take more....
It lasted about 3 weeks. I had the Pfizer shot on Friday February 19th and suddenly noticed dizziness on Monday March 8th. The dizziness seemed worst on Wednesday March 10th right when I woke up before drinking any coffee. Caffeine and Alcohol seemed to aggravate it. I had the second Pfizer shot on March 12th. I originally thought it was a side effect of Humira which I began a month before and didn't think of the vaccine although Humira and the Vaccine were the only two new variables in my life. I called my gastroenterologist to report it and he called back and said he had never heard of Humira causing these sort of side effects. I then googled the vaccine and dizziness and found this forum along with a couple others with people describing exactly what was going on. I did have a strange week bout with dizziness around the Torino Olympics in 2006 with a bizarre sound in my left ear and ear fullness that was diagnosed as Meniere's Disease. Never had any attacks since although I did have an occasional ear fullness feeling and get just slightly dizzy after hitting the 500 mile mark when driving long distance. I am wondering if the immunity response to the spike protein inflamed my ear? I did feel a warm head feeling a week after the second booster, then at the two week mark I noticed it was going away and seems gone after 3 weeks around the end of March. I have heard dizziness and now with J&J blood clots are some of the effects of the virus. I wonder if the spike proteins from the vaccines are migrating to the exact same locations the virus would migrate and bringing an immune response there as well that can produce these side effects. I seem fine now and although the dizziness was moderate, was still able to function day to day and go to work. The vaccine definitely seems to have produced an immune response and if this is all and it doesn't come back do think it was worth it to be immune to SARS2 Covid.
@sarap such a great group! I joined and don’t have tinnitus, but I have disequilibrium, headaches, muscle weakness. I suggested that this group make a FB group page. I think it would be so much easy to gather info, share stories, what works/what doesn’t, Dr feedback, etc.
It could be the vaccine is new, also they don't want to panic the public into not getting the shot. Side effects are actually part of a lot of vaccines, particularly some of the ones the military gives for tropical diseases. There is psoriasis in our family. My brother joined the Marines twenty years ago and said he suddenly got it a few months after all the vaccines they give you and said the Anthrax vaccine was particularly strong. I seem to get a psoriasis break out on my scalp the month following my annual flu shot.
... I'm just grateful to have seen this forum before I blindly just got the shot.
Disabling, life-changing side effects are NOT an acceptable risk.
I think I remember that you have a pre-existing condition which prompted you to research possible dizziness, etc associated with COVID-19 vaccination ...many others that ended up in this forum had no previous history of these types of symptoms. And without this association being shared in lists of expected side effects - we're not forewarned or informed when these adverse responses develop, nor are our medical professionals. Thus, this mess we're muddling through! This forum is helpful, both for those affected with these effects and for those sorting through their risks. There are probably many more benefitting than register and share their stories and I too am very grateful for it!
Some people have been asking about how they can report their post-COVID vaccine symptoms. Check out https://vsafe.cdc.gov/ . It's a smartphone based tool that uses text messaging and web surveys to provide personalized health check-ins after you receive a COVID vaccination. Through v-safe you can tell the CDC is you have any side effects. Depending on your answers, someone from the CDC may call to check on you.
I did in fact get the Moderna vaccine, and my ENT did ask me which specific one I got so it could very well be the reason he did not see anything directly related in what he read. He did say that the entire practice has seen a rise in tinnitus since COIVD and has seen lots of people who have received vaccines who have not experienced any symptoms. I am not saying that he is wrong or right in his findings on my tinnitus, but rather just his current case-by-case reaction to me specifically. I went and checked in the packet I was given and the Moderna does not mention anything about ringing in the ears.
I did decide to hold off on the second one for a little while because I have noticed the ringing becoming less noticeable over the past few days.
@chels8957 I’m glad to find this, not that you are having to deal with this though! I’m 46 yo female and got my Johnson & Johnson Covid vaccine the night before it was stopped (of course 😳) All of the sudden while leaning over a little I started getting dizzy but it’s not stopping and I’m getting a slight headache. It’s been about 48 hours since my shot so I’m really hoping this is normal’ish’ with the J&J vaccine. Any opinions?
TY in advance!
Update: after exactly one week, the dizziness finally subsided and feeling semi-normal.
Hello All-
Quick back story for me. I am 37 yr old healthy M. I took the first dose of Pfizer on 4/1. First couple of days were normal, light brain fog, soar arm. Monday 4/4 sitting on my couch I started feeling more disoriented and fuzzy. As the symptoms progressed panic and nausea set in. Each day started to get worse in terms of the Brain fog and exhaustion. I feel like I’m in one big terrible nightmare. I can’t even drive without feeling like I’m high.
I finally reached out to my dr and they scheduled a video appt.. so frustrating...he literally slammed the door shut on it being a vaccine side effect before I could even get my entire story out. He blamed it on me not drinking coffee and that my body is going through withdrawals. I explained to him I stopped drinking the coffee after the sx started. He then back tracked and said it may be an inflammatory response to the vaccine but not likely. Anyways, tomorrow is 14 days since dose 1 and I’m starting to fear that this may be permanent. I will continue to update if anything changes on my end. I pray for everyone that we all come out of this ok. For now I will try to stay positive even though I’m starting to become really depressed.
My wife told me yesterday that we were having our second baby and I tried so hard to be excited but I just can’t mentally get there. Good luck everyone! Peace and Love
Gabe
@carla So sorry to hear about your symptoms. I've been going through the same thing, but now only lying down or bending over triggers the spinning. Would love to hear what your neurologist says. I have an appointment with a neurologist in a few weeks. Wish it were sooner. I'm also about to start on a course of steroids for a week to see if that helps.