Hello All. Since 7th September I have been suffering from rocking sensation, dizzinness, extreme fatigue. I had a ENG-VNG to discard any Neuritis, mi dx is Vestibular Migraine.
I went this week to the best Vestibular Doctor in my country, and she has told me she is seeing tons of cases like mine, of these symptoms after vaccine. She says in most cases are people with history of Vestibular Migraines (not properly diagnosticated before) that re appear after the Vaccine or MAV due to the vaccine.
Probably doing a good ENG-VNG test can help you all to discard Neuritis. My own personal theory goes for two things, one that the vaccine as the covid has something to do with some type of blood vessels inflammation, and also probably all the immune reactions plays a role in some channels that play with vestibular migraines.
This week I will start treatment and will let you know if this works. So far, COQ10 has also helped me a bit, not a big help but some help, and it is a drug somehow linked to MAV aid.
im curious to how you are doing a year later come up date this place has been a ghost town we’re assuming everyone got better…also did you score negative on your vng why VN was ruled out?
@shannonkibbe It has been 1 year later. That post was made too soon, I ended up being in bed for 3 months and could not function. A migraine from the second I woke up to the second I went to sleep, blurry vision, light sensitivity, lightheadedness, hearing sensitivity... After seeing a neurologist (MRI & CT scan), ENT, the ER, 2 Mayo Clinic doctors, and a cardiologist... everything came back fully okay. No sign of anything, which is a good thing but extremely frustrating for us long haul covid patients. I now have western doctor ptsd as they haven't been able to help once or just want to give me drugs that always make the pain worse or did nothing. I really thought it could have been POTS or an inner ear issue but neither!! Im back on the site because 1 year later... about 4 weeks ago I got a small cold and it triggered all these symptoms for me again. Though the migraines have stopped, it is now just severe lightheadedness all day everyday & the blurry/sensitive vision for 3 weeks now. It gets alot worse by walking around, making things seem dizzier. Im back doing hyperbaric oxygen treatments as thats the only thing I know can relieve me. HBOT is also the thing that healed me last year after 3 months of being bedridden.
Feeling the long haul symptoms again today over the past 3 weeks... I am back doing HBOT on my 6th treatment now, feeling a little better each day. CANNOT wait to feel normal again as it's so hard being young and having your life be busy to depressing and unfunctional the next day. Ever since I got covid its completely changed my life and health for the worse but im learning to cope. Hope this helps you guys.
im curious to how you are doing a year later come up date this place has been a ghost town we’re assuming everyone got better
@shannonkibbe It has been 1 year later. That post was made too soon, I ended up being in bed for 3 months and could not function. A migraine from the second I woke up to the second I went to sleep, blurry vision, light sensitivity, lightheadedness, hearing sensitivity... After seeing a neurologist (MRI & CT scan), ENT, the ER, 2 Mayo Clinic doctors, and a cardiologist... everything came back fully okay. No sign of anything, which is a good thing but extremely frustrating for us long haul covid patients. I now have western doctor ptsd as they haven't been able to help once or just want to give me drugs that always make the pain worse or did nothing. I really thought it could have been POTS or an inner ear issue but neither!! Im back on the site because 1 year later... about 4 weeks ago I got a small cold and it triggered all these symptoms for me again. Though the migraines have stopped, it is now just severe lightheadedness all day everyday & the blurry/sensitive vision for 3 weeks now. It gets alot worse by walking around, making things seem dizzier. Im back doing hyperbaric oxygen treatments as thats the only thing I know can relieve me. HBOT is also the thing that healed me last year after 3 months of being bedridden.
Feeling the long haul symptoms again today over the past 3 weeks... I am back doing HBOT on my 6th treatment now, feeling a little better each day. CANNOT wait to feel normal again as it's so hard being young and having your life be busy to depressing and unfunctional the next day. Ever since I got covid its completely changed my life and health for the worse but im learning to cope. Hope this helps you guys.
how’s the sensitivity to hearing do you still have that? Was there a point where it went away? We’re you started on any medications for it or the migraines
I’m sorry! I agree, it’s total hell. I’m going on fourteen months, thought I was starting to feel better, and this past week I feel like I’m back to square one.
Inflammation of the inner ear can cause dizziness and other symptoms you mentioned.
It is also important to continue to communicate with your doctor about your condition and what activities help or worsen your symptoms. The main thing is to act strictly according to the treatment plan.