I have been previously diagnosed with BPPV, had the Epley many times and vertigo/dizziness returns. A Physical therapist thought it was neck related, I do have neck pain. Dizziness has gotten a lot better since I lowered my pillow and do neck strengthening exercises. Now upon waking I turn my head to the right and left, I still feel some dizziness on the right but it’s improved. I sometimes wake with nystagmus and this morning was the first time I turned my head during nystagmus and it provoked vertigo and continued dizziness. The only diagnosis I have is BPPV, I don’t understand nystagmus upon waking. I have become phobic about Epley maneuvers and reluctant to go back to the ENT. Thoughts?
Have you seen a vestibular & balance specialist?
@sandstorm yes I saw a PT who specialized in vertigo who said it was bppv but also neck/posture related. I have also gone several times to an ENT who does the Dix, confirms nystagmus then the Epley. Dizziness returns in weeks.
@sandstorm no, only trying to turn my head to the right then left in bed. Do you have suggestions?
@ellenos Yes, please see a different vestibular specialist. I can help you find one in your area. Have you seen a spine doc?
@sandstorm years ago I had a spine mri for back pain. I live in Plymouth MA. Thank you SO much!
You are very welcome Ellen! I would see a spine doc again...do you want me to send you spine doctors in your area?
I have done the gazing eye exercises, but your issue sounds very different from what I had. I had a vestibular dysfunction caused by a virus attacking my inner left ear.
@sandstorm yes I saw a PT who specialized in vertigo who said it was bppv but also neck/posture related. I have also gone several times to an ENT who does the Dix, confirms nystagmus then the Epley. Dizziness returns in weeks io games
Poor posture or neck issues can contribute to dizziness. Tension or misalignment in the neck may affect blood flow or nerve signals, leading to symptoms that mimic or exacerbate BPPV.