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Vertigo when sitting or lying down

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(@tello)
New Member
Joined: 3 years ago
Posts: 1
Topic starter  

Hello,

 

I was wondering if anyone has been struggling with the same symptoms as me.

History:

2017 - Had a bad cold and a strange feeling in my ear. For weeks afterwards I had a nautical dizziness while I was walking or sitting. Felt exactly like I was on a boat that was rocking side to side. Physio explained that this was due to Vestibular Neuritis in the right ear, this diagnosis has been questioned by ENT specialists as I did have very mild symptoms. However the symptoms slowly faded over a couple of weeks.

2019 - BPPV attack (right rear). Physiotherapist performed Epleys and instantly better. No symptom after first treatment.

2020 September -  Typical BPPV attack (right rear). Rotational vertigo. Went to physiotherapy and they performed Epleys and it relieved the the rotational vertigo. But I still had a "lag" in my head as if watching a YouTube clip which sometimes had very short lags. When I was walking on the road it felt like I was walking on a very uneven surface. When sitting down I noticed that I was being pulled left/right/up & down about once every two seconds.

2021 February - Cold with pressure in the ear. Mild tinnitus in same ear. When walking it feels like the world is tilted towards the right, I can walk straight but I need to compensate for it (nobody else can notice the compensation). I feel nausea when looking at screens and mobile. The movement where I am being pulled up/down/left right is now present when I an lying down feels like being in an airplane in light turbulence with sudden jolts (all inside my head). Contacted GP, MRI of the head, blood tests and screening test for hearing is done. Nothing abnormal. Test with VNG googles show need for vestibular rehabilitation (nystagmus etc) - perform 6 week program (but I still continue with the exercises today). Tests with VNG show improvement but no improvement of symptoms themselves. Panic attacks and anxiety of what the symptoms are and why it is worse when I lie down doesn't help the situation. GP suggests PPPD might be an explanation but for me lying down / being still is the worst which is not the traditional PPPD diagnosis.

2021 March - No longer being drawn towards the right when walking. Still movement in my head but anxiety levels goes down.

2021 April - Wake up feeling dizzy almost every night. Not the rotational dizziness but very strong jolts in the head. Tests shows BPPV on left year (rear) (previous times it has been the right ear). Treatment in chair, not the immediate effect that the previous BPPV maneuvers had given me but feel woozy in my head after the treatment. Suggested to try Semont maneuver instead of Epleys as it could potentially trigger new BPPV attacks. Still a lot of movement in the head when I am lying down, still the turbulence in the head. Movements are context specific so I "forget" them when I am concentrating or when I drift of to sleep. 

2021 May - Nausea is back - physio says BPPV in right ear is back (rear). Nausea eventually wanes after a few days but still the ever ongoing turbulence in the head is still there. Anxious and trouble sleeping.

2022 June - Visit to Neurologist, examination completely normal. Some nystagmus was observed. Rombergs test showed "very good balance" etc. Suspected Cervicogenic dizziness and stretching/physio alleviated some of the movement in the head but still turbulence when I lie down. Also a follow up test at physio with VNG shows no nystagmus and all functions very good, this was however on a "good" day. I have good and bad days like most other people.

So to summarize: I have had a feeling of being on a plane in light turbulence for the past 4-5 months. I suspect that I have hade multiple different factors weighing in such as bouts of:

  • BPPV
  • PPPD(?) Although I would describe it as being hypersensitive to symptoms/unsteadiness and therefore more anxious when lying rather than meeting the PPPD criterias fully
  • Stress. Although I don't feel stressed it is obvious that the pandemic has been stressful in many different ways for all of us in 2020-2021 with uncertainties both in terms of health and jobs.
  • Cervicogenic dizziness from anxiety
  • General damage to the balance system from previous infections in 2017. Although many people claim that this should not affect since it was back in 2017 I have also heard that it can make you more sensitive.

My question: I have not been able to find much information about the light turbulence in the head that I am feeling constantly and especially when lying/sitting down.  I am not sure about how to try and find a recovery strategy as I don't have problems with agoraphobia, walking or poor balance. I don't have headaches or any noticeable hearing loss. 

Does anyone out there recognize themselves in my symptoms? 

 

 

 

 

 


   
Quote
(@gloriam)
Very Active Member
Joined: 3 years ago
Posts: 169
 

Highly recommend this book:

https://www.amazon.com/Rock-Steady-Healing-Tinnitus-Neuroplasticity-ebook/dp/B08MWLCJH6/ref=nodl_

And do a google search on Rock Steady by Joey Remeny for more information. She gives all of us living with vestibular problems hope. Gloria 


   
ReplyQuote
(@ashna1)
New Member
Joined: 1 year ago
Posts: 3
 

Posted by: @tello

Hello,

 

I was wondering if anyone has been struggling with the same symptoms as me.

History:

2017 - Had a bad cold and a strange feeling in my ear. For weeks afterwards I had a nautical dizziness while I was walking or sitting. Felt exactly like I was on a boat that was rocking side to side. Physio explained that this was due to Vestibular Neuritis in the right ear, this diagnosis has been questioned by ENT specialists as I did have very mild symptoms. However the symptoms slowly faded over a couple of weeks.

2019 - BPPV attack (right rear). Physiotherapist performed Epleys and instantly better. No symptom after first treatment.

2020 September -  Typical BPPV attack (right rear). Rotational vertigo. Went to physiotherapy and they performed Epleys and it relieved the the rotational vertigo. But I still had a "lag" in my head as if watching a YouTube clip which sometimes had very short lags. When I was walking on the road it felt like I was walking on a very uneven surface. When sitting down I noticed that I was being pulled left/right/up & down about once every two seconds.

2021 February - Cold with pressure in the ear. Mild tinnitus in same ear. When walking it feels like the world is tilted towards the right, I can walk straight but I need to compensate for it (nobody else can notice the compensation). I feel nausea when looking at screens and mobile. The movement where I am being pulled up/down/left right is now present when I an lying down feels like being in an airplane in light turbulence with sudden jolts (all inside my head). Contacted GP, MRI of the head, blood tests and screening test for hearing is done. Nothing abnormal. Test with VNG googles show need for vestibular rehabilitation (nystagmus etc) - perform 6 week program (but I still continue with the exercises today). Tests with VNG show improvement but no improvement of symptoms themselves. Panic attacks and anxiety of what the symptoms are and why it is worse when I lie down doesn't help the situation. GP suggests PPPD might be an explanation but for me lying down / being still is the worst which is not the traditional PPPD diagnosis.

2021 March - No longer being drawn towards the right when walking. Still movement in my head but anxiety levels goes down.

2021 April - Wake up feeling dizzy almost every night. Not the rotational dizziness but very strong jolts in the head. Tests shows BPPV on left year (rear) (previous times it has been the right ear). Treatment in chair, not the immediate effect that the previous BPPV maneuvers had given me but feel woozy in my head after the treatment. Suggested to try Semont maneuver instead of Epleys as it could potentially trigger new BPPV attacks. Still a lot of movement in the head when I am lying down, still the turbulence in the head. Movements are context specific so I "forget" them when I am concentrating or when I drift of to sleep. 

2021 May - Nausea is back - physio says BPPV in right ear is back (rear). Nausea eventually wanes after a few days but still the ever ongoing turbulence in the head is still there. Anxious and trouble sleeping.

2022 June - Visit to Neurologist, examination completely normal. Some nystagmus was observed. Rombergs test showed "very good balance" etc. Suspected Cervicogenic dizziness and stretching/physio alleviated some of the movement in the head but still turbulence when I lie down. Also a follow up test at physio with VNG shows no nystagmus and all functions very good, this was however on a "good" day. I have good and bad days like most other people.

So to summarize: I have had a feeling of being on a plane in light turbulence for the past 4-5 months. I suspect that I have hade multiple different factors weighing in such as bouts of:

  • BPPV
  • PPPD(?) Although I would describe it as being hypersensitive to symptoms/unsteadiness and therefore more anxious when lying rather than meeting the PPPD criterias fully
  • Stress. Although I don't feel stressed it is obvious that the pandemic has been stressful in many different ways for all of us in 2020-2021 with uncertainties both in terms of health and jobs.
  • Cervicogenic dizziness from anxiety
  • General damage to the balance system from previous infections in 2017. Although many people claim that this should not affect since it was back in 2017 I have also heard that it can make you more sensitive.

My question: I have not been able to find much information about the light turbulence in the head that I am feeling constantly and especially when lying/sitting down.  I am not sure about how to try and find a recovery strategy as I don't have problems with agoraphobia, walking or poor balance. I don't have headaches or any noticeable hearing loss. 

Does anyone out there recognize themselves in my symptoms? 

 

 

 

 

 

 


   
ReplyQuote
(@ashna1)
New Member
Joined: 1 year ago
Posts: 3
 

Thought I was all alone. I have the exact same symptoms.  While lying down I get this jolts in my head which pushes me left to right, so I think. 
when I’m on the elliptical I get the same feeling. Almost like I’m about to fall and I have to stop it. 
While sitting there working , staring at 2 computer screens I get these jolts.

Worse when I’m at a red light, I feel in my head that I’m going round and round.

I wish I can get answers:(

 


   
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(@kimbright)
Active Member
Joined: 10 months ago
Posts: 6
 

@ashna1 hi I was wondering I have similar symptoms. I was diagnosed with BPPV on my right ear. It’s been about 3 1/2 months now I also suffer from chronic dry eye. I have sjogren’s disease and I have high anxiety with panic attacks with this BPPV. It makes me very depressed. I was wondering how you deal with it on a daily basis I am not 24 seven dizzy I can get dizzy with movements I was getting carsick this morning while and of course, when I sit like you were saying, I feel like I am moving at times I don’t know if it’s my eyes my head or what it is also in a car when I come to a stop like you were saying that you feel like you’re still moving or something anyways, I’m hoping for some tips of how to handle this situation in a better way  I get scared to go anywhere because I feel I’m going to have a bad dizzy spell. How can I get over this or what can I do when this happens can anybody help me find some answers to my every day living with us I do the at home exercises and I had the Epley maneuver done three times  and last time I had it done my neck and jaw and everything was hurting for at least two weeks so I won’t have that done again so I don’t know what else I can do to just manage this problem and I’m not so afraid to leave the house


   
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(@kimbright)
Active Member
Joined: 10 months ago
Posts: 6
 

@ashna1 have you got any answers and how have you been feeling


   
ReplyQuote
(@ashna1)
New Member
Joined: 1 year ago
Posts: 3
 

@kimbright 

hello,

I am sorry to hear you are going through the same thing. I’ve been dealing with this for years and I had terrible anxiety from it. I also fear that I will have a dizzy spell which always triggers my anxiety. To be honest, I’m just learning to deal with it. I have accepted that it’s part of my every day now. 
I do hate the feeling. Even when I’m out for dinner there are times I feel like I’m being pushed to one side or my eyes do something funny. I know it’s easier said than done but not focusing on it sometimes does help.

Here is some hope. I went through this in 2015-2017 then I got 💯 better but it came back in 2021 and has stayed with me. Just coping with it now and yes I still have anxiety but it’s up and down. 


   
ReplyQuote
(@kimbright)
Active Member
Joined: 10 months ago
Posts: 6
 

Did you have it the whole time during 2015 to 2017 and then it went away and came back in 2022 or did you have it in 2015 and then again in 2017 and was it a constant every day off-balance feeling with your symptoms


   
ReplyQuote
(@irenej)
Active Member
Joined: 9 months ago
Posts: 5
 

Posted by: @tello

Hello,

 

I was wondering if anyone has been struggling with the same symptoms as me.

History:

2017 - Had a bad cold and a strange feeling in my ear. For weeks afterwards I had a nautical dizziness while I was walking or sitting. Felt exactly like I was on a boat that was rocking side to side. Physio explained that this was due to Vestibular Neuritis in the right ear, this diagnosis has been questioned by ENT specialists as I did have very mild symptoms. However the symptoms slowly faded over a couple of weeks.

2019 - BPPV attack (right rear). Physiotherapist performed Epleys and instantly better. No symptom after first treatment.

2020 September -  Typical BPPV attack (right rear). Rotational vertigo. Went to physiotherapy and they performed Epleys and it relieved the the rotational vertigo. But I still had a "lag" in my head as if watching a YouTube clip which sometimes had very short lags. When I was walking on the road it felt like I was walking on a very uneven surface. When sitting down I noticed that I was being pulled left/right/up & down about once every two seconds.

2021 February - Cold with pressure in the ear. Mild tinnitus in same ear. When walking it feels like the world is tilted towards the right, I can walk straight but I need to compensate for it (nobody else can notice the compensation). I feel nausea when looking at screens and mobile. The movement where I am being pulled up/down/left right is now present when I an lying down feels like being in an airplane in light turbulence with sudden jolts (all inside my head). Contacted GP, MRI of the head, blood tests and screening test for hearing is done. Nothing abnormal. Test with VNG googles show need for vestibular rehabilitation (nystagmus etc) - perform 6 week program (but I still continue with the exercises today). Tests with VNG show improvement but no improvement of symptoms themselves. Panic attacks and anxiety of what the symptoms are and why it is worse when I lie down doesn't help the situation. GP suggests PPPD might be an explanation but for me lying down / being still is the worst which is not the traditional PPPD diagnosis.

2021 March - No longer being drawn towards the right when walking. Still movement in my head but anxiety levels goes down.

2021 April - Wake up feeling dizzy almost every night. Not the rotational dizziness but very strong jolts in the head. Tests shows BPPV on left year (rear) (previous times it has been the right ear). Treatment in chair, not the immediate effect that the previous BPPV maneuvers had given me but feel woozy in my head after the treatment. Suggested to try Semont maneuver instead of Epleys as it could potentially trigger new BPPV attacks. Still a lot of movement in the head when I am lying down, still the turbulence in the head. Movements are context specific so I "forget" them when I am concentrating or when I drift of to sleep. 

2021 May - Nausea is back - physio says BPPV in right ear is back (rear). Nausea eventually wanes after a few days but still the ever ongoing turbulence in the head is still there. Anxious and trouble sleeping.

2022 June - Visit to Neurologist, examination completely normal. Some nystagmus was observed. Rombergs test showed "very good balance" etc. Suspected Cervicogenic dizziness and stretching/physio alleviated some of the movement in the head but still turbulence when I lie down. Also a follow up test at physio with VNG shows no nystagmus and all functions very good, this was however on a "good" day. I have good and bad days like most other people.

So to summarize: I have had a feeling of being on a plane in light turbulence for the past 4-5 months. I suspect that I have hade multiple different factors weighing in such as bouts of:

  • BPPV
  • PPPD(?) Although I would describe it as being hypersensitive to symptoms/unsteadiness and therefore more anxious when lying rather than meeting the PPPD criterias fully
  • Stress. Although I don't feel stressed it is obvious that the pandemic has been stressful in many different ways for all of us in 2020-2021 with uncertainties both in terms of health and jobs.
  • Cervicogenic dizziness from anxiety
  • General damage to the balance system from previous infections in 2017. Although many people claim that this should not affect since it was back in 2017 I have also heard that it can make you more sensitive.

My question: I have not been able to find much information about the light turbulence in the head that I am feeling constantly and especially when lying/sitting down.  I am not sure about how to try and find a recovery strategy as I don't have problems with agoraphobia, walking or poor balance. I don't have headaches or any noticeable hearing loss. 

Does anyone out there recognize themselves in my symptoms? 

 

 

 

 

 

Two years ago, when the condition worsened, I went to the hospital. My doctor recommended that I maintain a proper diet and stay consistently hydrated. In addition, I was doing exercises every day. Now, I have fully recovered. 

 


   
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(@libbyboyd)
Active Member
Joined: 1 month ago
Posts: 40
 

It may be worth discussing with your doctor the possibility of consulting a neurologist or balance specialist. It is important to continue to look for the source of your problems and find appropriate treatment strategies. Each person may have a unique experience and path to recovery, but sharing experiences with others who have experienced similar symptoms can be helpful.


   
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(@libbyboyd)
Active Member
Joined: 1 month ago
Posts: 40
 

I see no one answered... You've been through a lot. My symptoms are not as severe, but sometimes I also experience dizziness and unsteadiness. It sounds like you have tried different treatments but haven't found a solution yet. It may be worth discussing with your doctor the possibility of additional tests or consultations with other specialists. Stay strong and I hope you find the right treatment.


   
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