Vesties’ Village

Notifications
Clear all

[Sticky] What steps are you taking?

Page 1 / 2

Ms. Cynthia Ryan MBA
(@cynthia-ryan)
VeDA Staff
Joined: 2 years ago
Posts: 50
Topic starter  

We want to hear about what steps you're taking in your recovery! Share your Steps-2-Balance activity here, and keep us updated on how you are progressing in reaching your goals.

This topic was modified 1 year ago 2 times by Ms. Cynthia Ryan MBA

Irum liked
Quote
Irum
 Irum
(@irum)
Active Member
Joined: 1 year ago
Posts: 10
 
  • Focusing on diet changes 
  • More deep breathing and relaxation through the day 
  • Eye exercises
  • Balancing postures (close to a wall or support to build confidence)  
  • Fresh air and shorter walks in the day, and especially in the evening is helping me sleep better

ReplyQuote
Aimee Rivera
(@aimeerivera)
New Member
Joined: 2 years ago
Posts: 1
 

I will be focusing on my balance and mental exercises 

I will make my first attempt in a long time (10 years) to go on a short walk all on my own at least once this week, while using my poles from urban poling to help me feel safer, I hope to do so more than once and slowly increase my distance each time.


ReplyQuote
Brenda
(@bree)
Active Member
Joined: 1 year ago
Posts: 23
 

@irum that sound good Irum. It appears you’re taking healing approaches from many angles. 😀


ReplyQuote
Brenda
(@bree)
Active Member
Joined: 1 year ago
Posts: 23
 

@aimeerivera It sounds like you have thought this through to go slow and easy. Hang in there and good luck!


ReplyQuote
Sue
 Sue
(@vanoz)
New Member
Joined: 1 year ago
Posts: 3
 

After 8 years of Migrainous Vertigo I was finally offered a specialist Vestibilar physio appointment…the exercises she gave me have been life changing as long as I do them every day preferably twice a day..trouble is they are so very simple it is easy to forget but I urge everyone to ask their GP for a specialist specific Vestibular physio ..not regular physio which I had been sent to prior..mostly neck stretches but I have a life at the moment…I was very close to throwing in the towel and just staying in bed….I am now walking several kms a day and tackling stairs like a pro…physio says not to get cocky and relapses are common but wow…it’s a start..


ReplyQuote
Karen R. Mizrach
(@krmizrachgmail-com)
Active Member
Joined: 2 years ago
Posts: 50
 

@vanoz Sue, that is wonderful news. Vestibular Therapy is a great treatment for many people. It sometimes takes a while to find the best therapist for each person's situation, but it sounds like you are finally getting the attention you need.  I'm sure you are excited to see progress and improvement. Keep it up! And keep us updated. 


Sassafras liked
ReplyQuote
Sue
 Sue
(@vanoz)
New Member
Joined: 1 year ago
Posts: 3
 

@krmizrachgmail-com I definitely will..I may add that I may be getting extra relief due to fact I lost several centimetres of muscle and substance from my neck due to Hodgkins Lymphoma and Radiation so these exercises are strengthening and hence more blood flow to brain and nerve stimulation….may benefit others with similar loss of strength..no vertigo or migraines now for three weeks….

 

sue


ReplyQuote
CarrieB
(@carrieb)
New Member
Joined: 1 year ago
Posts: 2
 

@vanoz that sounds amazing. I'm currently battling with my son's GP to get him the specialist physiotherapy his consultant is recommending. My GP thinks he holds the NHS purse strings and will not open the purse for anything. If he doesn't do something in the next week I'm reporting him to the NHS patient care department. And contacting my MP!


ReplyQuote
TheWalk
(@thewalk)
New Member
Joined: 1 year ago
Posts: 4
 

Referals to UWMC, Otolaryngologist, Neuropsychology booked out to Dec, Jan...long ttimelapse a vestibular test booked out until Nov3. Symptoms started June 16th. I am.currently at my moms on the Washington coast trying to see specialists. That's so slow to get help. So I decided to go with therapy. Got in to see chripractor today, neck was off center. Go back Wed. Start vestibular, neurological PT Tuesday. These two are minutes from my moms house! I am.so happy to finally get seen.

 


ReplyQuote
Karen R. Mizrach
(@krmizrachgmail-com)
Active Member
Joined: 2 years ago
Posts: 50
 

I'm so glad you've found some options close by. That's often quite challenging. Keep us updated as to how you're doing. 


ReplyQuote
K-Shoo
(@k-shoo)
Active Member
Joined: 12 months ago
Posts: 5
 

@thewalk are you referring to the University of Washington Medical Center? 


ReplyQuote
Larry
(@jtranger)
Active Member
Joined: 12 months ago
Posts: 75
 

Why is our Government not researching and investigating all these vaccination side effects?  They tell us the shot is safe then when we get sick they have no place for us to go for research and treatment. We need to start speaking up!


ReplyQuote
ptroy53
(@ptdemers)
New Member
Joined: 10 months ago
Posts: 4
 

My PCP is a good man but knows zero about Vestibular. He refers me to an ENT who actually put a pair of vibrating tuning forks on my left ear - ten minutes later I was down for the count; 5 days, projectile vomiting, creep 1" steps, husband remained out of work five days to babysit me. Don't know what I'd have done without him. 

It was a nightmare. I've been through 3 therapists; I wanted to start up again with the last one but they discharged me from not making appts during the pandemic so I'm going to Boston instead.I wanted to resume with the last PT but the receptionist was pretty cold with her 'goodbye, thanks for calling, good luck'... No clue why. I always paid my bill before leaving the office.

So, I am seeking out a new ENT after my vestibular ENT retired last year. He sold his Omniax equipment to someone in Oregon.  So sad. I tried to google who else on the East Coast had one but I only found my retired ENT and some AZ people then OR.  There are only 28 machines in use in the States. So, I hope to find some luck here.   I had found a medical massage therapist who understood the improvement of neck circulation and head massage for my Vertigo BPPV but she moved back to Vegas; there are more classes out there than on the East Coast.   Maybe I will find another one like her.  

So, PT, massage, ENT evaluation which hasn't been done since 2019.  It is time. 

 

The Omniax chair almost worked on me once, I was 'cured' for about two weeks. No idea why it came back.  An amazing feeling that Monday when I realized that I wasn't dizzy all morning. It was exciting, and that equates to HOPE in the future.

Pat

 


ReplyQuote
David Morrill
(@wolf1476)
Active Member Moderator
Joined: 2 years ago
Posts: 46
 

A new year new goals! What steps are you taking?

 


ReplyQuote
Page 1 / 2