@downunder21 I am having all other symptoms and from last night started having ocassional pain in left ear.
I had only first dose on 10 August.
So much for these being 1 in a million symptoms. I am having some of the same stuff. My left ear area started being numb 2-3 days ago, and now it's my lips and within the last hour or two my left arm. I still have strength but I am kind of paranoid about stroke. Hopefully all the posters from a month or two have recovered by now. Got my shot on 8/16, Pfizer.
Hi, I have some medical background so thought I'd shed some light on a couple questions.
guillain-barré usually starts at the feet and 'travels' progressively up. If your feet remain number tingling and the numbness travels, get to your dr. It's treatable but does need early detection. I've had gb patients fully recover, but I've also seen the other end of the disease, so heed early signs.
The antihistamines (allergy med) work to block histamine acting on nerve endings (this is very basic and there is a lots more to it, but without bio study doesn't make sense). Histamines are released from mast cells which are activated during 'attack' (anything from a pinprick to an infection or invasion (hello vaccine and spike proteins). They may help reduce some symptoms.
I took anti inflammatory medications when my pins & needles and numbness happened with some effect. (Always eat with anti inflams).
Also thought you all may be interested in these:
And
Videos with the inventor of the mRNA vaccines. He has concerns, especially people's reports of side effects not being taken seriously.....
Hope you are all recovering and improving. My symptoms are 99% gone, but scared to get the 2nd dose!
Update as requested: saw my neurologist today. He said it's definately the vaccine. I'm due for my second shot tomorrow. He would like me to have the second shot (Pfizer) even though I'm tingling. The plan is - go for second shot. I will tingle / have pins and needles / burning. He has upped my medication (Trepiline) from 25mg to 37.5mg to counter-act this. See him again in 3 weeks. If the neuropathy hasn't settled, he'll give me a cortisone shot. He's pretty confident that the Trepiline will calm the neuropathy down - it may just take some time. Remember, I've been on Trepiline for 15 years and it was a life saver. Accordingly to him, it's an auto-immune issue, where your immune system attacks the peripheral nerves. Not unheard of with vaccines. They put alot of crap (preservatives and the like) into vaccines. I'm not sure if I should get the second shot despite his advice. His philosophy is that we can deal with the neuropathy, but he can't help me if I'm on a ventilator due to covid.
@watchg41 thank you so much for sharing. I think the most difficult thing for me is also the non linear healing that occurs. I thought I was getting better and the last two days have had such a bad flare up that now I’m questioning if this will ever go away. Depression is starting to hit. I went to the neurologist yesterday and he thinks it is inflammation due to the vaccine. He is sending me for an MRI as well as blood work for autoimmune, inflammation, B12, iron and a few other general things. He feels all will he well with tests and this is temporary. I sure hope so. Today I’m just not so sure.
I can totally understand. I’ve been through several cycles of doubt/fear/anxiety everytime symptoms rebound after having got better. And all the tests they make you do to eliminate other “potential causes” are nerve wracking for anyone. All I’ll say is just stay calm and be positive. It’s no coincidence that there are so many of us with similar symptoms seeing the same kind of specialist docs and getting similar tests done. I try to stay humble and understanding of the fact that our medical system is also faced with a lot of unknown given this new virus and new type of vaccines. They’re doing their best to help guide with very limited data on the effects of these vaccines. In that way, we’re the first batch to get tested 🙂
You’re going to be fine and the symptoms will definitely get better with time. Just hang in there and keep us posted on what advice your neuro gives. Might have something that helps us all. 🙂
@tango1 Oh wow, so interesting! Thanks so much for sharing, that's super helpful. Now I feel less nervous honestly. Glad to have it confirmed that you basically hear/know right away about your nerves. Very frustrating that the doctor wouldn't say one way or another, but kind of funny that the technician seems to think there is! So since there's "nothing wrong," do you not get to have any more tests done? Ugh. How long have your symptoms been going on now?
@nawpan Thanks so much for letting me know! Very interesting that you had to be so warm for it, ha. Great to hear it wasn't super painful and that you find out info ASAP. Also, thanks for mentioning that it's only testing the peripheral nervous system; I wouldn't have known that, so I'll make sure to bring up an MRI if necessary.
@account6 I wanted to update that today is Tuesday (got Janssen vaccine Friday). Pins and needle sensation did not go away as I was hoping when I woke up this morning. Instead they’re worse. I went to urgent care who told me to go back to the ER. They did blood tests and a CT scan which came back normal. Waiting to talk to the doctor. I feel like the vaccine messed up my body. Any advice what to ask doctor?
@account6 Hi how's your case. I got Janssen vaccine too. Two weeks after I felt tingling sensation in feet, legs, arms and hands. I hope you're fine. In your case did it worse overtime or lesse? Do you still feel the side effects?
Update as requested: saw my neurologist today. He said it's definately the vaccine. I'm due for my second shot tomorrow. He would like me to have the second shot (Pfizer) even though I'm tingling. The plan is - go for second shot. I will tingle / have pins and needles / burning. He has upped my medication (Trepiline) from 25mg to 37.5mg to counter-act this. See him again in 3 weeks. If the neuropathy hasn't settled, he'll give me a cortisone shot. He's pretty confident that the Trepiline will calm the neuropathy down - it may just take some time. Remember, I've been on Trepiline for 15 years and it was a life saver. Accordingly to him, it's an auto-immune issue, where your immune system attacks the peripheral nerves. Not unheard of with vaccines. They put alot of crap (preservatives and the like) into vaccines. I'm not sure if I should get the second shot despite his advice. His philosophy is that we can deal with the neuropathy, but he can't help me if I'm on a ventilator due to covid.
You are brave to get a second shot. It’s been 3 months for me now with tingling/buzzing sensation and more than a month of internal vibration. EMG result is okay and my neurologist said they is nothing wrong with my peripheral nerves so I am waiting for MRI to check my central nerves. Where I live, now if you’re not fully vaccinated, you can’t do a lot of stuff (attending events or gyms or restaurants or indoor activities, etc.). I don’t plan to get a second shot until I understand why this happened to me and all symptoms are gone. I hope your second shot goes well. Keep us posted.
@fifoh Thanks for the info on how the antihistamines work and the links! My symptoms have also gotten better but I get enough flare ups to make me discouraged. Sometimes the flare ups can be truly horrible. How often are you taking allergy medicine? I take 3 per day. My Dr. also has me on 3 Gabapentin per day as well. For me, my symptoms came after the 2nd shot. If these symptoms came after first shot, I wouldn't have gotten the 2nd. It's been a tough 5 months. I'm seriously looking forward to being past this!
Just wanted to report back that my symptoms of tingling numbness in my hands and feet, after Pfizer 1st shot, have subsided.
It took 5 days but they finally went away.
I'm going to see the doctor and see what the recommend about my 2nd shot. Hope it doesn't come back then.
On August 17 I received my first vaccine (moderna).
On day four my tongue began cramping and throbbing.
To this day, the tongue continues to cramp and throb.
Has your tongue tingling resolved?