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Active Member
Joined: 1 year ago
Posts: 6
Topic starter  

Hello everyone,

I did a quick search on the forums and did not find any posts on or about cholesteatoma. I know it is on the rare side but the symptoms after can be simular to many of the others on here. Dizziness, Vertigo, Migranes and many others. 

I thought I would reach out and see if there were anyother Ctoma people here 🙂

This topic was modified 1 year ago by Ms. Cynthia Ryan MBA

New Member
Joined: 1 year ago
Posts: 3

Hello.   I’m actually on here due to my Covid induced vestibular neuritis.  But my daughter had a cholesteatoma as a teenager 5 years ago (when it was finally discovered)  My battle to get her appropriate medical care was a tough one. I’m sorry you’re in that spot now too.  She had the dizziness vertigo and migraines.  Such a struggle to get anyone to believe they were present and that the surgery made them worse,  in the short term at least.  

This post was modified 1 year ago by Renee

Active Member
Joined: 5 months ago
Posts: 15

oh yeah I had it 35 yrs ago and its back it sucks