Anyone else have PLF? Or have round window reinforcement surgery to fix it? Wanting to connect with other PLF patients. Cause of your PLF, experiences with symptoms or treatment, and recovery after surgery? Thanks!
PLF isn't common, but there are plenty of people on this site who can empathize with what you're going through. Here's an article about PFL. You might also want to check out this Facebook group.
Hi. I was diagnosed with plf and had round window reinforcement in feb 2018. It was really successful for me.
I had PLF. Never had the surgery, it healed on its own, but I am left with quite a bit of residual dizziness and other issues.
I had surgery, too, and it was like a miracle! VERY grateful for it and surgery resolved the constant nausea, headache, light sensitivity, etc... Head trauma caused the ear injury. Guess it took about a year or so for the ear to quit leaking clear fluid. For a long time it popped and felt intermittently clogged and felt pressure and achy. Two years after surgery the ear bled a lot for 3 days. It was out of the blue and no idea why. I'm a little paranoid about the "bad" ear. The symptoms during recovery were never addressed and I guess it was normal? But treatment is so rare, there weren't others to reassure me if they went thru the same thing.
Did you return to full activities after recovery? I was restricted for a year after surgery. Things were so miserable prior to surgery that I worry about resuming heavy lifting or high impact exercise or anything that could cause symptoms to return. Especially since both ears were injured but only the worst one had surgery. It's always in the back of my mind that the "good" ear could become more symptomatic. I still have some balance issues that are worsening; perhaps from the head injury or the untreated ear. Who knows?