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migraine

The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Change comes unsolicited and I have to roll with it.

My journey started at age 27 in 1986. I had an emergency medical procedure following a miscarriage. When I got home to my 3 year old daughter and husband the migraines started. My first diagnosis

2020 Balance Hero Award Winners

This Giving Tuesday, VeDA recognizes the heroes who go above and beyond in the assistance of people living with vestibular disorders. The vestibular community is full of caring, dedicated family members, friends, loved ones, and

Dizziness Symptom Profile (DSP)

The DSP is a "smart" case history form to aid in the diagnosis and management of patients presenting with dizziness. By Gary P. Jacobson, Ph.D., FASHA One of the most important parts of a vestibular function

Tamar Schwartz

My vestibular disorder, Migraine Associated Vertigo, is also sometimes called Vertiginous Migraines. When people think of migraines, they think of someone in pain, and that part is true. But migraines, which vary in severity, can

Documenting the Patient Perspective

In 2014, VeDA asked members to assist in a research project by signing onto a patient registry and providing information on their diagnosis experience. This data was analyzed and the results published in the Journal

Jennifer Husak

I have been dealing with vestibular imbalances for 3 years now and was recently diagnosed with Vestibular Migraines. I've done all testing for BPPV, VN, and others and was first diagnosed with Menieres Disease. After

Travelling with Vestibular Conditions

Lara's Story of Learning to Travel with Vestibular Neuritis, Migraine, and pppd Where It All Began I was hit suddenly with my first vestibular condition back in early 2010 turning my world literally upside down.

Vestibular Disorders Affect on Your Personal Relationships

ICU – “I SEE YOU” PODCAST Vestibular Disorders Affect on Your Personal Relationships LISTEN NOW Available wherever you get your podcasts. APPLE PODCASTS SPOTIFY YOUTUBE In the newest episode of the ICU - "I See

Vestibular Migraines Do Not Define Me

Vertigo can be scary. It can come out of nowhere and incapacitate us if we let it. Mine started 8 years ago after a series of 4 sinus infections back to back. I woke up

Amanda Rodriguez – Steps-2-Balance Ambassador

Vestibular migraine kept Amanda from her passion - running. Now she's back in the race. I was running about 200 miles a month before it happened. I was the type to clean my baseboards regularly.

Can Screens Trigger Vertigo and Dizziness?

ICU – “I SEE YOU” PODCAST Can Screens Trigger Vertigo and Dizziness? LISTEN NOW Available wherever you get your podcasts. APPLE PODCASTS SPOTIFY YOUTUBE Devices—can’t live with them, can’t live without them. Televisions, computer screens,

VeDA Volunteer Takes On Washington DC

Headache on the Hill Recently, VeDA Board Member Darcy Bonjour advocated for others when she participated in the Headache on the Hill event. Headache on the Hill (HOH) is the most influential day of the