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The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Kelly Helsel

It took 7 years to be diagnosed with Autoimmune Disease of the ear, which affects my vision, hearing loss, right ear few decibels left and the left a few more. May have to have cochlear

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Visual Snow Syndrome

Visual Snow Syndrome (VSS), is a chronic, debilitating, and persistent neurological condition that affects a person’s vision, hearing, and brain function. The primary, and shared, symptom of VSS sufferers is Visual Snow. This resembles “TV

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Helen Stoll

VeDA has been a sanity-saver for me for 30+ years. I am a 73-year old 'retired' RN. In May of 1986, the month I turned 40, I came down with what eventually was diagnosed as

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Survey Results: Damage Caused By Gentamicin

Dr. Ann Kerlin surveyed patients who suffer from vestibular dysfunction as a result of gentamicin poisoning. In this article she summarizes her findings. Daily Struggles for Vestibular Patients by Ann M. Kerlin, Ph.D., L.P.C. A

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Ear Anatomy

Overview The fluid within the inner ear's membranous labyrinth is called endolymph (endo-: inside or within). The fluid contained between the bony labyrinth and the membranous labyrinth is perilymph (peri-: around or about). These two

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Complementary & Alternative Medicine

We’ve all seen the words “complementary,” “alternative,” and “integrative,” but what do they really mean? According to the National Center for Complementary and Integrative Health, “CAM” (Complementary and Alternative Medicine) is a group of diverse medical and health care systems, practices, and products that are not generally considered part of conventional medicine. Complementary medicine is used together with conventional medicine, and alternative medicine is used in place of conventional medicine. Integrative medicine combines conventional and CAM treatments for which there is evidence of safety and effectiveness.

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Tests For Diagnosing Vestibular Disorders

The inner ear’s vestibular organs and the associated nerves and brain centers form a complex system that serves many functions and can be affected by a number of outside systems. A thorough evaluation of the inner ear may therefore require several different kinds of tests.

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Cholesteatoma

What is a cholesteatoma? A cholesteatoma is a skin growth that occurs in an abnormal location, the middle ear behind the eardrum. It is usually caused by repeated infection that causes an ingrowth of the

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Autoimmune Inner Ear Disease

What is Autoimmune Inner Ear Disease? Autoimmune disease occurs when the body’s natural defense system has difficulty telling the difference between its own cells and foreign cells, causing the body to mistakenly attack normal cells.

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Hearing Aids

Many patients with inner ear balance disorders also suffer from hearing loss. What is the connection between hearing and balance? How do hearing aids help, and what kinds of hearing aids are appropriate for people with balance-related hearing loss?

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