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The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Helen Stoll

VeDA has been a sanity-saver for me for 30+ years. I am a 73-year old 'retired' RN. In May of 1986, the month I turned 40, I came down with what eventually was diagnosed as

When Sounds Are Too Loud

Hyperacusis is hearing disorder that causes ordinary sounds to be perceived as unbearably loud. July 4th is the United States’ “Independence Day,” known for its picnics, BBQs and fireworks. For most, fireworks are an exciting marvel

Dizziness Symptom Profile (DSP)

The DSP is a "smart" case history form to aid in the diagnosis and management of patients presenting with dizziness. By Gary P. Jacobson, Ph.D., FASHA One of the most important parts of a vestibular function

VeDA Goes Global: Championing Vestibular Advocacy with the PROVIDE Network

In a significant step forward for global vestibular advocacy, the Vestibular Disorders Association (VeDA) recently presented to a group of European doctoral students from the PROVIDE Network—an initiative designed to train the next generation of

Cuban Embassy Attacks Cause Vestibular Dysfunction

US Embassy workers in Cuba have reported unusual noises, which have resulted in dizziness, nausea, severe headaches, balance problems and tinnitus. The number of victims is increasing, and there is now a possibility tourists to Cuba

Yap Wein Fook

Hi, my name is Yap Wein Fook. I was born in 1995 in Malaysia. First, I want to say "thanks" to VeDA for their support. I was first diagnosed with vestibular neuritis. My symptoms included headache, tinnitus,

Athlete and student has central vestibular dysfunction

When I was starting my senior year in 2021 I was feeling great and excited to see what it would all be about! It started out fun and great, but as October hit I started

Ménière’s Syndrome or Ménière’s Disease?

The author postulates that many patients diagnosed with Ménière’s disease could actually have semicircular canal dehiscence syndrome (SCSC). By Philippa Thomson “You are correct that Ménière’s disease is over diagnosed. Many physicians diagnose it when they

Survey Results: Damage Caused By Gentamicin

Dr. Ann Kerlin surveyed patients who suffer from vestibular dysfunction as a result of gentamicin poisoning. In this article she summarizes her findings. Daily Struggles for Vestibular Patients by Ann M. Kerlin, Ph.D., L.P.C. A

When your world is turned upside down!

In 2016 my world changed drastically from a high functioning individual to someone who struggles to keep on top of daily errands. I was repeatedly turned away by Doctors who suggested it was all in

“SO STONED” Mnemonic for Dizziness

Professors Floris Wuyts, balance specialist at the University of Antwerp, and Alfonso Bronstein, a neurologist from the Imperial College in London, have developed a mnemonic to help doctors more easily determine what type of dizziness

LRL Recordings & Transcripts 2025

Life Rebalanced Live 2025 Recordings and Transcripts Package (These videos and transcripts are for personal use only and may not be redistributed.) Beyond Medication: Exploring Alternative Treatments for Vestibular Migraine Managing vestibular migraines