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Many patients who experience dizziness, vertigo, imbalance, and other symptoms that accompany a vestibular disorder feel lost, confused, frustrated, and overwhelmed by the lack of understanding prevalent among their family, friends, and coworkers, and even the medical community. You are not alone! Vestibular disorders are real, medical conditions. You may have been told that your symptoms are all in your head – they are not! Vestibular disorders are underdiagnosed and undertreated. Many patients visit multiple healthcare practitioners over months or even years before they receive an accurate diagnosis. We can help you learn about your condition so that you can be an advocate for your own healthcare. Our provider directory will help you find qualified vestibular specialists who can diagnose you and provide effective treatment.

Strategies, Tips, Tools and Techniques Tinnitus, the medical term for the perception of non-existent noise, often described as ringing in the ear, is a common symptom among vestibular patients and a difficult one to address.

Wondering how to get your support group talking? Sometimes it just takes presenting a topic to the group and starting the conversation with some questions to promote a lively discussion. You may want to query

Vestibular disorders are not unique to humans. All higher animals that have a vestibular system—from fish to mammals—can be afflicted, including cats and dogs.

WHAT IS CENTRAL NEUROTOXIC VESTIBULOPATHY? Central neurotoxic vestibulopathy is a poisoning of certain cells called neurons that help control balance by receiving and processing information from the inner ear vestibular sense organs (the semicircular canals,

When your brain is expending all its energy keeping you balance, there isn’t a lot left over for other cognitive processes. As a result, many vestibular patient struggle with attention, concentration and memory, and may feel disoriented and confused. Activities that were automatic, that you never had to even think twice about, now have to be meticulously focused on and thought about. Thankfully, there are ways to combat and overcome these difficulties and improve functioning.

Downbeat nystagmus (DBN) is a distinctive ocular motor finding most commonly associated with cerebellar or brainstem dysfunction—particularly involving the flocculus, paraflocculus, or vestibulocerebellum. Patients typically report oscillopsia, imbalance, and unsteadiness that worsens with downgaze, head

Why does it take so long for researchers to develop new treatments for vestibular dysfunction? Learn more about the research process, and find out how you can participate in advancing the science of vestibular medicine.

A patient registry is a database of health information that helps describe the patient experience. When you participate in VeDA’s patient registry, you share your diagnostic journey. That data is anonymously summarized and analyzed for trends to better inform policy-makers and the medical community so that improvements can be made to the diagnostic and treatment process.

Session Transcripts Transcripts of each session will be created and made public within 2 business days after the live stream. Once a transcript becomes available it will be linked below. THE VESTIBULAR JOURNEY (MONDAY, MARCH

Struggling with the daily symptoms of a vestibular disorder can be disheartening. But there is hope. You can learn coping strategies that reduce symptoms and improve your quality of life. Many people describe this as adapting to their “new normal.” Our tips and tools come from vestibular patients, who have learned the hard way that small changes in your lifestyle can make a big difference in your physical, mental and emotional wellness.

It's not all in your head Dealing with a chronic illness or medical condition goes far beyond the physiological and medical challenges it poses. Chronic illness can strain your view of yourself, your relationships, your