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Patient Registry Advisory Council

WHAT IS A PATIENT REGISTRY? A patient registry is a database of patient-reported health information that helps describe the patient experience to better inform policy-makers and the medical community so that improvements can be made

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Types of Vestibular Disorders

“Vestibular disorder” is an umbrella term used to encompass many different conditions that affect the inner ear and those parts of the central nervous system involved in maintaining balance.

Vestibular disorders can result from or be worsened by injuries, genetic or environmental conditions, or occur for unknown reasons. There are more than twenty-five known vestibular disorders. Each is unique, but many share common diagnostic traits, which can make it difficult for healthcare professionals to easily differentiate them.

The most commonly diagnosed vestibular disorders include benign paroxysmal positional vertigo (BPPV), labyrinthitis or vestibular neuritis, Ménière’s disease, and secondary endolymphatic hydrops. Vestibular disorders also include superior semicircular canal dehiscence, acoustic neuroma, perilymph fistula, ototoxicity, enlarged vestibular aqueduct, migraine-associated vertigo, and Mal de Sébarquement. Other problems related to vestibular dysfunction include complications from aging, autoimmune disorders, and allergies.

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Usher’s Syndrome

What is Usher’s syndrome? Usher’s syndrome is an inherited genetic disease that affects both hearing and vision, as well as sometimes affecting balance function. It is the most common dual sensory impairment syndrome that affects

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