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Patient Registry Advisory Council

WHAT IS A PATIENT REGISTRY? A patient registry is a database of patient-reported health information that helps describe the patient experience to better inform policy-makers and the medical community so that improvements can be made

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Wellness Coaches

Supporting Your wellness A comprehensive recovery program includes a medical exam and testing, rehabilitation therapy, and lifestyle accommodations. Health, wellness, and nutrition coaches can be part of your multi-disciplinary healthcare team. Why Use a Coach?

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Usher’s Syndrome

What is Usher’s syndrome? Usher’s syndrome is an inherited genetic disease that affects both hearing and vision, as well as sometimes affecting balance function. It is the most common dual sensory impairment syndrome that affects

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Presbyvestibulopathy (PVP)

Presbyvestibulopathy (PVP) Case presentation JS is a 75-year-old male presenting with progressive imbalance. He first noticed symptoms five years ago and has had three falls while walking on uneven surfaces without significant injury. He previously

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General Vestibulopathy

So, you’ve been diagnosed with “General Vestibulopathy.” Is it a meaningful or a worthless diagnosis? What does it mean and what do you do from here?
I recently saw WM, an established patient of mine who was doing quite well, for an annual follow up visit. Thinking back on her story reminded me of the importance of receiving a correct diagnosed when you have an inner ear problem.

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Environmental Influences on Vestibular Disorders

Have you ever wondered if vestibular disorders and their symptoms are influenced by the environment? Recent work has demonstrated that the symptoms of common vestibular disorders may be linked with certain environmental factors, such as atmospheric pressure changes and allergies.

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Step 7: Give Back to the Vestibular Community

VeDA exists for you and because of you. We are a non-profit organization supported entirely by your gifts. You can help people like you learn to live a life-rebalanced.

Vestibular disorders are misunderstood. You can advance vestibular research by participating in clinical trials and sharing your medical history through VeDA’s Patient Registry.

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