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Patient Registry Advisory Council

WHAT IS A PATIENT REGISTRY? A patient registry is a database of patient-reported health information that helps describe the patient experience to better inform policy-makers and the medical community so that improvements can be made

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Wellness Coaches

Supporting Your wellness A comprehensive recovery program includes a medical exam and testing, rehabilitation therapy, and lifestyle accommodations. Health, wellness, and nutrition coaches can be part of your multi-disciplinary healthcare team. Why Use a Coach?

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Usher’s Syndrome

What is Usher’s syndrome? Usher’s syndrome is an inherited genetic disease that affects both hearing and vision, as well as sometimes affecting balance function. It is the most common dual sensory impairment syndrome that affects

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