Caring for the Carer

John D. During a very long year of auto immune response to the Covid booster, John helped heal my brain from the vertigo/menieres cycle that would just not go away. He listened to me, understood the problem was real and understood the vestibular challenges thoroughly. An amazing practictioner in the field of physical therapy and I am so grateful for his help, knowledge and understanding as well as his staff at Prospect Rehabilitation, Manchester VT - Jennifer T.

Sean S. Sean has single handedly taken care of our home, our kids, and my recovery from transmastoid resurfacing of my right semi circular canal. On top of this, he has handled preparing for holidays. Less than 2 weeks after my surgery, our 4yr old golden retriever lost her battle to lymphoma and he's been so understanding while I've been resting from surgery. - Natalie S.

Mary Kathryn C. I am a 100% Disabled Viet Nam Veteran. In 2018 I suffered from Vertigo because the varicella zoster virus (VZV) was attacking my right eye and my right vestibular system. I had unpredictable vertigo episodes so pronounced that the only safe place for me was in bed, sometimes for 24+ hours. These vertigo episodes lasted over three years while I was being treated with Valacyclovir or Valtrex. I could not hear in my left ear since I came home from Vietnam in 1970; however, the VZV made what hearing I had in my right ear unintelligible. Consequently, I could not communicate over the phone or otherwise. Mary Kathryn arranged for and drove me to my doctors' appointments. There were over 200 appointments over this period of time, some a distance of 150 miles. I could not go to the store by myself, I could not do anything by myself, I could not communicate over the phone to do any kind of personal business. Mary Kathryn did it all for me. This year the vertigo episodes ceased. My Ophthalmologist said the VZV was in remission and that there was no sign of it in my eye. Mary Kathryn was so good to and for me that I married her on November 1, 2022. - John C.

Kyle Ann M. Kyle Ann listened and was sympathetic to my symptoms and advised me on an aggressive path to treatment. Her explanation of Vestibular Migraines/Disorders was exactly what my search for answers needed. 18 month journey to mantra "Health is my Wealth" and spending thousands of dollars, PA Markwell is treating me and responsive to my triggers and making those adjustments. While still not clear of symptoms, She represents my VeDA Hero and I imagine for many others. - Brian F.

Tressa C. I am nominating Tessa to be a VeDA Hero because of her dedication, care, sympathy, and support she shows to her patients. When I suffered from my vestibular disorder she not only helped me to recover in the acute phase, but in the long term too. She was always there for me when I struggled but also helped push me out of my comfort zone. I went from using a walker with no balance to now being able to live a somewhat normal life and I don't know if I would be where I am today with my balance if it weren't for her guidance, knowledge, and support. She is an incredible person who deserves to be awarded the Balance Hero. She dedicated and continues to dedicate her studies and life to help people who suffer with vestibular disorders and I am so grateful for her. She always goes above and beyond to help and support her patients and deserves to be recognised for the work she does, the kindness and compassion she shows, and for the amazing person she is. - Emily G.

Danette P. Danette has always been accepting of days when I have Menieres symptoms and need to be in the bed or recliner and rest. She listens patiently and compassionately as I complain of feeling wonky and about ear pressure and experience the clumsiness of imbalance. She is never complaining. about my limitations. Danette accepts me just as I am and is loving and compassionate. - Sue Y.

Tom C. While visiting Glacier National Park and riding in a tour van, 20 miles away from our oun car, I experienced the most violent episode ever. The vertigo was so bad that I couldn't hold up my head to throw up or walk. He quickly realized we had to get off the van even though we had no other way back to our car. He carried me off the van and sat beside me on the grass in the 45 degree weather. He was able to arrange for a Ranger to carry us back down the mountain while he held my head in place. He never complains when I can't walk and need help getting to bathroom even as I am throwing up on him. He is my true Hero! Without him I would have jumped off that mountain. - Kim C.

Michael M. My husband is always present to do what ever I need with my chronic illnesses. He works hard to meet every need I might have. - Ann M.

Michael K. Michael is always there ready to catch me. He makes sure that I get enough rest, and is the voice of reason when I am pushing myself too hard or get angry at my limitations. Michael was my biggest advocate while I was in labour with our son. He made sure the doctors and nurses understood my vestibular condition. Michael is my balance hero. - Krista K.

Joe M. I nominate my husband, Joe, who automatically reaches for the TV remote to turn down the sound when I enter the room, who handles everything for me on the bad days, and who makes sure I know that despite the worst of my symptoms, everything will be okay. - Amy P.

Steven H. My husband, 81 year old Steven, has gone above and beyond in supporting me and being instrumental in helping me regain my life after multiple major vestibular attacks. He helped me walk for the first 6 months after the latest attack and is always there to lend his arm. He never became frustrated with my inability to lead a normal life and I wouldn't be as mobile and functioning without him at my side. He made the journey much less scary and encouraged me at all times. - Mary G.

Bridgett W. Bridgett owns 360 Balance in Austin Texas. I have been her patient for 15+ years. I suffered from vertigo for a couple of years before I was finally referred to Bridgett. In a couple of months she worked miracles getting severe BPPV (in multiple canals) straightened up, identified my condition as vestibular migraines and worked up a long term therapy plan. Although I have had repeat episodes, I can always count on 360 and Bridgett to see me quickly and help get things straightened out and back on track. After a particularly difficult episode a couple of years ago, Bridgett skipped lunch to work me in and spent over an hour with me going over detailed descriptions of what was going on, various therapies I could try, and was amazingly caring and concerned. In addition, over the years, she has trained many physical therapists in dizziness/vertigo treatment, and is the strongest most reliable venue for careful thorough training in the PT arena, understanding nuances of nystagmus and watching for seemingly minor but significant symptoms. The whole 360 crew, led by Bridgett have really been angels in my life. When there was total despair or panic related to vertigo, it is an enormous comfort and relief to know that there is help available. Bridgett is a deeply compassionate and focused individual, always putting the patient first with a positive and caring attitude. She should be queen of the vestibular world! - Dineen W.

Kiersten J. Stayed by my side to center me with respect, encouragement, and a smile. - Trish J.

William A. My husband has stood next to me being my support, literally, for 15-1/2 years while I negotiate the vestibular universe that I have been living in. He's been my shoulder to cry on, my driver to all my Doctor appointments now and years earlier while I struggled to find a diagnosis, my therapist as I cry, rant and accept the new life I am living in my body, as well as my cheerleader being proud of my accomplishments like continuing to work with restrictions (even driving back and forth to work when it's dark and raining which is difficult for me). He continues to do this while still being a fantastic husband, father and grandfather to all of us. I would be lost without having him by my side. - Vicki A.

Don and Glenda B., and Jeff P. I nominate Mr. & Mrs. Don and Glenda B. and my husband, Jeff P. as awesome Superheros!!!!!! The beginning of my story started on vacation. We did Mount Saint Helen and Mount Rainier the same day. I woke up the next morning (May 10, 2023) with everything spinning, I had severe altitude sickness, vertigo and dehydration. I couldn't walk without bumping into everything. I passed out 15 times in an 8 hour period and threw up constantly. These friends that are as close as family took exceptional care of me. We got on the cruise ship as all this was happening to me and went to Alaska. They pushed me around in a wheelchair and made our 30th wedding anniversary trip one we will never forget. If it weren't for them I wouldn't have seen beautiful Alaska. It's been 6 months now and even though we live in different states they still check on me often and pray for me. To say I'm grateful is an understatement. I love them and appreciate their constant care and concern for me. - Nadeen P.

Natasha S. Natasha traveled recently with me to Egypt. We were gone for two long weeks as part of an excursion around that marvelous country. The days were intense because there were many sites to visit, the temperature was high and moving around included buses and boats. Every day we went into tunnels and shafts in the pyramids and other temples. We climbed stairs to get to the apex of various of them and we also participated in night excursions. Natasha is my sister and she is familiar with my vestibular issue (PPPD), however, she has not spent two weeks straight alone with me. She patiently cared for me, interpreted a lot of the lectures and information given (I am deaf in one ear), and served as support when my balance started to fail. Without her, my dream of going to Egypt wouldn't have happened. I am grateful for her loving support during our adventure. I love her infinitely! - Sandra R.

Brenda H. Drives me everywhere & prepares all meals. - David H.

Karen P. Karen has been my BPPV physical therapist for fifteen years. When I have had an episode and cannot correct my crystals myself, Karen has given up her lunch hour to see me. Just knowing she is there with her calm knowledge and procedures helps me reboot my vestibular brain. - Kathleen M. 

Sarah S. After months of dizziness, I was referred to highly regarded PTs at Core Balance in Kalamazoo Michigan. Dr. Sarah was very caring, empathetic, and professional. She identified that I had crystals in two different canals and resolved those problems over 3 PT sessions. I can't thank her and Core Balance enough! - Al K.

Portia P. Helped me more with physical therapy as a vestibular specialist, balance and dizziness specialist than ENT!!!!!!!!!!! She is professional, caring, helpful, kind, empathetic, knowledgeable, and much more!!!!!!!!!!!!!! I am so grateful. She is amazing and a great coach! - Cindy S.

Loree S. She is just the best! Always encouraging and being positive with a tough situation. This invisible affliction is not easy but she makes each day better! - Greg S.

Evan M. I am nominating Evan, my Vestibular Physical therapist because he is everything a vestibular patient hopes for in a provider. After 15 doctors, 9 misdiagnosis, and 3.5 years of struggle, Evan was the one who listened and finally got me the help and correct diagnosis that I yearned for since my symptoms began. He constantly educated himself in the field, participates with VeDA , has experienced vertigo himself. He cares, he is knowledgeable, and most important the only doctor who looked past my anxiety and still gave me the opportunity to have testing done that every vestibular patient is entitled to. I truly believe that if there were a thousand Evans in this world, we would all be so much better off. He gave me my life back. He caught for me. He listened and advocated. He Handed my life back to me with all the confidence in the World. He is the reason I became a VeDA ambassador!!! He is the definition of a Balance Hero! Not just for myself but for so many others! Thank you. - Marci T.

Dr. Beh Dr. Beh listens to his patients & never rushes them. He allows his patients to ask questions & express their concerns. During my first appointment with Dr. Beh, I felt like someone finally heard me as he took the time to listen to me discuss my history & current symptoms. He let me play a role in my treatment plan by providing options & letting me choose what medication I'd like to try. My choice to see Dr. Beh after just over five months of disabling vestibular symptoms was the best choice I made & finally led me on my path to recovery! Thank you, Dr. Beh! - Tiffany K.

Maria H. Maria is my wife and we have been together for 15 years. My chronic illness started almost 4 years ago so this is not what Maria and I expected in our life together. But Maria has been with me through it all and continues to be my biggest supporter. I am so blessed to have her by my side. - Laura K.

Donielle B. It took me several years to find Donielle, someone who works in the vestibular therapy field. Two years ago I stumbled into her office where she assessed me and started working with me. I couldn't focus on her and felt claustrophobic as she sat nearby taking my information. I almost had her sitting just outside of the doorway to her office to keep the dizzies from stirring up even more. Donielle worked hard with me and my dizzies. I have VM and she said I could have 3PD, and she was correct. I am beyond fortunate to have found Donielle. Even though it takes one hour each way to see her, I am beyond thankful to have her as a part of my team. Knowing that she has worked with the Marines and soldiers at Walter Reed with their brain injuries, I knew I had found the right person to get me on the road to live with VM and 3PD. - Patricia N.

 

 

I nominate Ivan Nekrasov to be a VeDA Hero for going above and beyond in taking care of me and our family for the past 12 years. He has driven many miles, cooked fabulous meals, gone hiking with our kids, maintained our home, taken care of his health, all while working in his own full-time job. His dedication and perseverance are worthy of this honor.–Rachel N.

For the past 11 years, I’ve lived with a vestibular disorder. Over that time, my wonderful mother has been my staunchest support and strength. She has listened, empathised, and believed in me. She has accompanied me to countless medical appointments, advocated on my behalf, and helped me walk steadily on the long road to a diagnosis. She’s done the most incredible job amidst what have at times been bewildering and stressful circumstances for our family. I don’t think I would be where I am today without her, and cannot express how thankful I am to have her as my Mum & VeDA Hero.–Alessandra F.

Laura Beck is a Rock Steady Boxing (RSB) Coach in Pinehurst North Carolina. She is a Physical Therapist and has earned a Ph. D. in Physical Therapy and is a Certified Dietician. Laura goes out of her way to incorporate exercises into her role as a Physical Therapist facilitator and coach to include and teach exercises which are beneficial to those of us who live with debilitating vestibular dysfunction and impairments. Laura is a role model for healthcare professionals and family members working to better the lives of those with VeDA balance disorders. She is most deserving of this VeDA Hero designation.–Michael G.

Dr. El-Feky makes his diagnosis, schedules vestibular treatments, and supports me with redundancy in the face of malicious and deliberately indifferent Medicaid insurance. He is, and his staff are people, of total character and integrity. God bless you all. Prayers.–Thomas B.

I am nominating my daughter Shaeleah Whorley as VeDA Hero. She is 20 years old and was in college at Radford University in Virginia. When I got COVID it really messed me up bad. Severe vestibular dysfunction, Vestibular Migraines, MdDS and a host of other health issues that keep me from being a full-time mom to two other kids as well. She had to quit college after her first year to be my full-time caretaker, she is in school full-time again online now after a year break. Seven days a week she fixes 3 meals a day for me, takes care of her younger brothers. Cleans and takes care of chores in the home as well as all of my monthly bill paying. It is a full-time job. She never complains or makes me feel guilty for having to put her life on hold. It’s a huge job for a young lady to take on alone. I am so appreciative of everything she does. She is my hero and I am so thankful for her.–Amy W.

Since my collapse, hospitalisation and rehabilitation just over 2 years ago and ongoing vestibular migraine since then my young daughter has been my carer. The biggest thing is her constant encouragement and really listening to me with such patience. When I’ve been ready to give up (often) she has been there to lift me up and take care of my mental health. She has driven me to endless appointments and been in the waiting room. She helps me with personal care when I can’t without complaint. The mental struggle is often harder than feeling physically unwell and she lifts me up every day. I am eternally grateful and I know I wouldn’t be here or be as strong as I am without her.–Fiona W.

It has been very hard to choose between my partner, Peter, and my mum for this nomination. I think both of them deserve a mention in equal measure from me, so really, this is for both of them, but I will put Peter forward first. There are too many situations to list in which Peter has been my Vestibular Hero. When I was first slammed with the seemingly infinite number of vestibular-related symptoms, we were away from the UK, so this made it even more terrifying for us. I could do nothing but panic, and fell foul to some of the worst panic attacks I had ever had – and I didn’t really suffer from them before this. There was one situation where I thought I just was not going to get out of one, and Pete got a breathing app up on his phone and made me follow it, exactly. It was the only thing that stopped it. On other occasions, as those who suffer from vestibular disorders will understand too well, I have lost my temper–horribly. Again, Pete has been the one to help stop it. On one occasion, I was so, so dizzy (and at this point, I had been for weeks and weeks on end), I ended up throwing my desk chair across the room in rage (which we decided was quite impressive, given the state I was in). Pete just calmly upended it and hugged me until I stopped crying. Peter has tirelessly researched my condition whilst I have been practically comatose in bed. He has found detailed scientific studies which, ultimately, point to the likelihood that my condition will get better – it just takes time. This has been an extreme comfort to me. He is a very rational, fact-driven young man, so I knew that he was not lying to me. To add to this, Peter drew up a list of consultants we might consider seeing from the Menière’s Society webpage – one of which we did go and see, and he confirmed my diagnosis and put me on a robust treatment plan. If it was not for Peter, I would not have had the fortune to be treated by this marvellous doctor.–Delphi M.

My son Michael was incredible during the darkest days of the onset of vestibular neuritis. He was caring, understanding and showed patience and maturity well beyond his 19 years. Michael remained supportive to me his mom during vestibular rehabilitation and reaching a level to be able to return to nursing. He still remains a guiding light 3 years later and is there in good days and bad my vestibular hero!–Phillipa F.

Jim is my husband. Since being diagnosed with Meniere’s several years ago, he has been my knight and shining armor, caring for me through each and every attack. He has had to rush me to the hospital several times, is constantly watchful and on alert, and does whatever is needed to help me during an attack. He is my rock and always so supportive, even when attacks have canceled major plans and/or, have left me in bed for several days. This disease is so scary and unpredictable. I don’t know what I would do without him.–Mary M.

I would like to nominate my husband, Tyler Chin, who has helped me every step of the way since becoming sick. My first episode was on our wedding day, which came and passed and life went on. But a few days later (honeymoon was already moved due to work), I had a spell at work and he came home from a business trip to me being bedridden. Our first years of marriage were not anything that either of us expected. But I am so grateful for every day that Tyler supports me- from taking me to doctor appointments, understanding brain fog, encouraging me to continue my therapies or work on my recall. He has been there through everything and I am so grateful. He is my balance hero because without him, I would still be a bedridden, depressed shell of a human. With his help ( and that of my doctors), I have regained much of my life back even with a new normal. We finally get to cell rate our honeymoon- after much postponement- this December after almost 3.5 years of marriage!–Ashley C.

My husband is my absolute hero, my vestibular support partner and best friend. He has always been by my side when going through all of my episodes. He is understanding, patient and my rock!–Jackie H.

For supporting me, praying for me, caring for me, and driving me, to and from, most of my vestibular therapy appointments. Thank you.–Yolanda T.

I nominate my husband for his unwavering support he has provided to me for the past year. He goes above and beyond to help me be a better me for myself. He encouraged me to ask questions during testing, rehabilitation, find a support group and continue to not give up. Through his efforts I have found assistance and others to relate to. I am so appreciative of his kindness.–Katie M.

My Mum is the hero in my vestibular disorder life. She has supported me over the last three years in every single imaginable way. She fought with me for a proper diagnosis and treatment options. She’s taken me to all my doctor appointments. She’s stood by me in every possible way. She holds on to me when I can’t walk. She is a constant positive and calming force. She has been my voice when I am too sick to talk and fight for myself. I remember us crying together in her car after one of the countless doctor appointments trying to figure out what was happening to my brain and body. She had just told another doctor that no answers were not an option she would accept for me. I had almost given up hope. But her words that day kept me going. She told me that I wasn’t going anywhere and that we were going to work out what was going on and fight it. She said she would be with me every step of the way. I needed that strength from her and I continue to benefit from it every day. My Mum makes the world feel lighter for me even amongst the heaviness of this chronic illness. I am healing because of her. There is no way I can properly thank her for every inch of her support over my life but especially in my illness. So if I can recognise her with this award I would love to.–Leora W.

For being a carer on a dementia ward as a job, and then coming home and caring for me with MD. for always understanding and NEVER making me feel like I’m acting or pretending, and for accepting such a big change in our relationship without causing guilt.–Colin G.

Years ago when my world fell apart and life as I knew it ceased-my husband came across Dan’s name trying to find someone who had answers for my vertigo. I had seen multiple doctors and other professionals-and even another vestibular therapist-with no improvement or even hope. Many told me my condition was all in my head because I was a woman going through menopause. To this day some of the things that were said to me-brings tears to my eyes. It was in the second year of our searching for answers that we found Dan-who was an absolute Godsend. By the time I saw Dan I was now full-blown depressed from the anxiety of the vertigo itself and inability to function -plus wondering(as so many had told me)if I really was losing my mind/making this up in my head. Dan was so kind and understanding of what I was dealing with-not only explaining but also showing me exactly what my body was doing and the compensation it was trying to do. Dan assured me that everything I was feeling and experiencing was NORMAL and OF COURSE anyone would feel anxious if their world just started spinning one day! He was the first person who REALLY listened and for the first time in years, I had hope. He treated me with vestibular therapy and referred me to others who have also helped tremendously. I have often thought of writing his wife&kids to let them know when he is at work-how much he is making a difference in the lives of people like me!😊As we all know-having an invisible condition like this impacts not just the individual but all aspects of their life and others in it. Relationships are strained or broken, work & finances strained and isolation becomes the norm. Dan gave me such hope better days would come and although he didn’t promise my exact previous function would return-I would be much better than I was currently with appropriate help and support. Thank you & God bless you for being an advocate for your patients and I hope you know how much it’s truly appreciated.🙏😊💕–Sandra C.

Traci went above and beyond with my care. She has been a PTA for 20+ years and had never dealt with anything vestibular before me. We were dealing with neck pain and stiffness as well as minor dizziness in therapy. As time went on, the dizziness got worse. We got the pain under control but the dizziness would not go away. I was dizzy all day every day. On the day she was going to discharge me due to no improvement in dizziness symptoms, my neurologist had just discharged me as well for the same reason. Traci decided that she could not send me home to start a square one again. She had been suspecting me to have a vestibular disorder and in her own time, she had been researching how to test for and treat vestibular disorders. She stopped my treatment immediately and completely rerouted my therapy session. Within seconds I showed positive signs of a vestibular disorder. Traci pushed me to see a doctor in Columbus who confirmed her suspicions. She continued to research ideas and effectively treated me for over a month with no training, specialty, or certification in vestibular therapy. We got my symptoms down to 2-3 times a week. While in therapy, she introduced me to a vestibular physical therapist who is certified with VeDA. I ended up seeing her in an effort to completely get rid of my symptoms. After about of month of therapy with the new therapist, I became symptom-free for the first time in over a year! Next week make a month with no dizziness! I’m so thankful to have run into Traci. She is the first provider that actually cared about me as a patient and believed me when I said I was suffering. She took the time out of her own day to learn a little bit of vestibular therapy, got me in touch with the right people, and completely turned my life around. She gave me my life back and I will never find the words to say how much that meant to me!–Sierra F.

I nominate Ian because quite frankly I was unable to do almost everything when I woke up dizzy then diagnosed with labyrinthitis. He’s stepped up and been a huge help every single day especially looking after my horse. He’s fine the stable duties and not once complained. We sold our house and he did all the packing and moving whilst ensuring I was fine all the time.–Julie H.

Please consider my Balance Hero, Dr. Charles Souliere as a recipient of the VeDA Hero Award. 8 years ago I got very lucky when an emergency doctor treating me for vertigo suspected Meniere’s Disease. I remember him telling me “if I’m right about the Meniere’s, I know exactly the person who can help you.” That person was Dr. Souliere and he has been my hero ever since. Getting the diagnosis of Meniere’s was overwhelming for so many reasons but Dr. Souliere’s expertise, kindness and patience put me at ease. Over the years, Dr. Souliere was always there for me as my Meniere’s symptoms changed, I knew he was only a phone call away. Dr. Souliere always told me, “If you need me, call me, anytime.” In today’s world, just knowing you have someone you can call on in an emergency is a rare and wonderful gift. In 2020, when I began having drop attacks, Dr. Souliere went from my Hero to my SUPER Hero. When we had exhausted all other options and surgery seemed to be my last hope, Dr. Souliere again came to my rescue. As it turns out, Dr. Souliere is also a surgeon and one of the best in the area. He performed my Labyrinthectomy 6 months ago and my world has forever been changed for the better. As he reassured me it would, the surgery went perfectly and I now have my life back. When someone has spent years of their life helping you, and gives you the incredible gift of restored health, there is not enough you can ever do to repay them. I hope that this, in some small way, can convey the life-long gratitude I will feel for Dr. Charles Souliere, my Hero!–Kimberley M.

“When I was diagnosed with labyrinthitis, my husband was also diagnosed with diabetes. During the acute early stages of my illness, I couldn’t even leave the house. My husband was learning how to manage his illness, and had to take care of me and our daughter. He was and is my hero. 🦩 Even now that I’m back in the world, he understands when I’m dizzy and takes extra care! I am lucky!” -Erin P.

“My physical therapist is a balance and vestibular specialist. I began seeing her a year ago for my bilateral vestibular disorder. Her enthusiasm and continual exploration to discover new methods to challenge me during a therapy session has led to a vast improvement in my day-to-day function, movement, and well-being. She creates a fun and positive atmosphere at therapy that is both motivating and encouraging.” -Karen M.

“My hero 🦩 helped us in establishing our country’s first complete vestibular and balance assessment and management lab, which is now providing diagnosis and rehabilitation services to our patients.” -Abdul M.

“My youngest daughter is my hero. 🦩 She transferred from the college she was attending and moved back home to be my caregiver once I got sick. She takes all her classes online so they don’t interfere with my doctor appointments. She drives me everywhere, since I can’t drive anymore, and does everything for and with me. At 21 years old, she has become my right-hand woman, and I don’t know what I would do without her!! -Jill S.

“My doctor works tirelessly for her patients and eclipses all prior healthcare professionals I have met in my lifetime. She exemplifies trust and professionalism. She has a compassionate, curious mind that gets to the root of your issue. She taught me to not fear my vestibular disturbance, but instead to break down the symptoms into more manageable sets and work them out piece by piece. She takes the guesswork out of very confusing body dysfunction and helped me regain as much of my life as possible.” -Cynthia T.

“I nominate my social worker for exemplary dedication to her clients. Her unwavering ability to navigate the transition of an entire social work department from inside a physician’s office is uncanny. She investigates and explores all options before giving up. She’s resourceful and listens deeply to the underlying issues. She’s been an advocate for vestibular disturbance patients across the globe. She knows my diet means everything.” -Cynthia T.

“My husband is my hero! 🦩 He holds me up when I’m too dizzy to stand. He takes me places when I don’t feel up to driving. He’s been there to take me to umpteen PT appointments when I was too dizzy, and he is by my side whenever I need him. He walks with me, and makes sure I’m coming, even when I’m lagging behind, and makes sure I don’t fall. He says that that’s what marriage is all about!! I love him very much for all of this, but even more for the man he has become and who he is today! 💕❤️💕 I don’t know what I’d do without him!!! I love him more than the day we married.” -Susan B.

“I nominate my mom because she ‘grew up’ with me having a vestibular disorder. She took me to doctor appointments and did her own research. She fiercely defended me when I couldn’t do it for myself.” -Anna C.

“My mom is my hero! 🦩 She takes me to all my appointments no matter how far away or how long they take. She helps me take care of my kids and drives us anywhere we need to go, and she’s my cheerleader — always encouraging, positive and hopeful. 💕” -Julie L.

“My doctor has been instrumental in developing microprism in treating binocular vison dysfunction as a cause of chronic dizziness. I was the first person treated for vertical heterophoria over 30 years ago with resolution of dizziness and imbalance. Since then over 10,000 patients have been treated locally.” -Arthur R.

“My mom has been my hero. 🦩 She is really supportive and patient with my PPPD. She takes me to all my doctor’s appointments, drives me to the local park to help walk my dog. But most of all, she encourages me to sit down when I need to and lie down. She has been a part of my care team through misdiagnosis and improvements with my balance.” -Tanya W.

“My hero 🦩 is one of the few medical professionals who ‘gets it,’ who asks questions carefully, cleverly, to dig out what symptoms we have. He spent much of his off-duty time researching all he could about vestibular disorders. He is someone who understands what I’m going through! As a PCP, he concerns himself with his patients’ physical, mental, emotional, and spiritual health at all times, and remains professionalism with each of these health needs.” -Chet C.

“My hero 🦩 has been there from the first diagnosis and always makes sure to help me navigate any and all situations without judgment and with great concern, gentleness and kindness. He never gives up one me even when I am ready to. I am grateful and lucky to have him in my life!” -Kelley P.

“My hero 🦩 has gone beyond anything in trying to help me with my vestibular issues. He’s taken me to my vestibular rehabilitation therapy appointments, he’s taken me to the store, he’s taken me to other doctor appointments because I can’t drive, and he has driven my daughter and I places where we need to go. He’s got me out of the house and helped me to get through some of my bad times.” -Nicole M.

“My mom has been the steady rock I can lean on since becoming sick two and half years ago. Before I stopped driving she would drop whatever she was doing to come pick me up when I had a bad spell. Now that I don’t drive, she carts me wherever I need to go. She nurses me when I can’t do for myself, she helps me take care of my daughter and so much more. I don’t know what I would do without her.” -Elizabeth L.

“I am nominating my hero 🦩 because of her amazing willingness to support me through my chronic illness. The minute I was diagnosed she researched what she could do to help and still discusses suggestions every time we talk. She is my twin sister and has been with me through everything. I have been dealing with having a chronic illness at 19, going to school, work, and leading a club, and she has been with me every step of the way making sure I have the support I need. Last year there was a time I was feeling extremely low and trapped by my illness, so I called her very late one night, not expecting her to answer. Not only did she answer, she stayed on the phone with me until we had a plan for feeling better mentally. She then confessed to me that she always kept her phone ringer up all the way at night just in case I might call needing her. I don’t know how I would be able to deal with my chronic illness without her.” -Emma L.

“My sister is my hero. 🦩 She is my cheerleader: always positive, giving me encouragement to try things … She was diagnosed with breast cancer last October but is doing great now. Thankfully her attitude gets her and her little sister through the days that are harder than others. I am so proud to be her sis. I am thankful for her giving me countless rides to where we need to go, shopping for me during tough days, hanging on to me when it’s windy, and exercising to keep positive!” -Joni S.

“My husband is my hero. 🦩 I suffered my first drop attack from Meniere’s disease in October 2017. This drop attack led to a fall which caused me to suffer a concussion. My brain MRI also revealed an acoustic neuroma. The concussion affected my vision and vestibular system dramatically. My husband used leave from work to take me to all of my medical appointments, physical therapy and visual rehabilitation therapy. Additionally, he took over grocery shopping, meal preparation and housework while continuing to work full time. On weekends, he often split his time between taking me out for drives (as tolerated) and helping to cover my responsibility of elder care for my 89-year-old father. He helped me at home with my balance exercises and purchased me the exact balance pad used in physical therapy for continuity. He never complained when I would want to get second opinions — he would just grab the keys and say, ‘Let’s go!’ He changed the lighting in the house, adjusts the glare on televisions for my tolerance and comfort. When we are out and I become symptomatic, he immediately reacts to get me to a comfortable and safe space. I have improved tremendously because of his support, understanding and love. He will always be my hero!” -Kim H.

“My hero 🦩 has seen me through my vestibular journey from the moment I had my accident in 2004. She took me in and looked after me when none of my family members could. She would attend all my appointments, both medical and legal. Words of hope and encouragement came from her at every stage and together we fought through every battle. She believed for the two of us that I will get out of bed again, which gave me the strength and courage never to give up hope. She extended her care and love to my children. She has become a true sister. We still carry on, but now we mostly laugh about the things I can’t do any longer instead of being upset.” -Etrily L.

“I’m nominating my husband and my sons! They have always been very supportive anytime I’m down, including dropping everything last month to come and get me and my car from work when I had a vertigo attack. They are my heroes!!! 🦩 🦩 🦩 ” -Debbie S.

“My surgeon is my hero. 🦩 I am the fourth recipient in the world to receive the multi-channel vestibular implant. His desire to learn and courage to explore the unknown in medicine, in particular vestibular medicine, has enabled others and myself to have hope for the future. The kindness in his heart is so very evident, bigger than the sun, and his brilliance shines just as bright. His compassion for others, as well as his passion for his work, is so very evident. He is gifted with the ability to teach in a way that makes my understanding so much better of the vestibular system and the damage I had sustained. He is my hero going above and beyond to support me and all vestibular patients by not only restoring us physically but restoring our hope.” -Betty C.

“My clinical psychologist is my hero. 🦩 I started seeing her this year. The support, comfort, connection and help she has shown me has been a blessing in this horrible battle with this unforgiving disease. I have had chronic vestibular migraine for nearly seven years. I am mostly housebound, except for medical appointments. Being a hermit with hardly any social life tends to take a toll on mental health, plus the lack of independence, confidence, losing who you thought you were — these all have a significant contribution to poor mental health. I don’t think it is spoken of enough. So many people on vestibular chat sites are either suicidal, have feelings that they cannot go on, or are a burden to everyone around them. I have had all of these feelings. Having a wonderful clinical psychologist has opened doors for me I never thought to open. She gives me hope, which is everything to a chronically ill person.” -Kylie D.

“My husband and I were just dating when all of a sudden I became debilitated with vertigo, disequilibrium, nausea and fatigue. I could no longer work and all my dreams seem to slip away from my future. He stayed by my side, supported me financially, and as my partner. One and a half years later, I finally had the diagnosis: bilateral SSCDS. I had a MFC repair, plug and resurface on one side, and it took me months to learn how to walk unassisted. He stayed with me and cared for me, taking me to all of my medical appointments and working at the same time. A year later he proposed to me. We’ve been married for six years and have a beautiful four-year-old daughter. Every day he is there for me supporting me when I’m dizzy and when I’m exhausted, never making me feel badly or inadequate even when that’s how I feel most days. I’m so honored to be his wife and proud to nominate him as my hero. 🦩 I couldn’t have made it through any of my falls figuratively and literally without him. You see there isn’t just one example as he is my hero every day.” -Heather B.

“I nominate my husband because he has unwavering support for me. He has helped me stay positive even when I was not hopeful of recovery. He supports my treatment choices, as I have chosen some alternative options that are very time consuming (like vision therapy). Even though he has not experienced these symptoms, he believes they are real for me. As I have recovered in many ways, I have lingering symptoms that he continues to support. He is my hero. 🦩 ” -Robin H.

“For the last three years, my wife has been by my side as I struggle with Meniere’s disease. The onset of my condition has been as unpredictable and as violent as tropical weather can be. After seeing countless doctors and enduring countless tests, the diagnosis of Meniere’s left me feeling disabled and depressed. My wife has been my most heartfelt champion, my best friend, my advocate, and my nurse — which she already is! Now in medical school myself, she has been there for me through low salt diets, exercise encouragement, being 30 years old and needing a cane, protecting me from loud events, always carrying emergency medications for me, and giving me the safest of spaces to talk about my frustration. I already love her more than anything in the world, but I could never express the gratitude I feel for her caring so deeply for me and my invisible illness. She has not only protected and cared for me as I struggle with this condition, but she advocates and educates her friends, peers, and colleagues in nursing medicine. Her compassion fills me with patience, her strength makes me strong, and her encouragement lets me grow. She makes me a better patient, a better partner, and a more caring physician.” -Constantine K.

“My hero 🦩 has gone above and beyond to help me with my vestibular disorder and balance issues. She has been so patient with me every step of the way even when things weren’t progressing as we would have liked due to other medical issues. She was always creative with her approach to therapy, made it fun and taught me so many different techniques for therapy and vestibular rehabilitation. She’s been so good to me and helped me improve in so many ways with balance, dizziness, migraine, weakness, and spinal issues, just to name a few, and I’m so grateful for her kindness, compassion and dedication to making people better!” -Katie E.

“My hero 🦩 provided progressive central vestibular physiotherapy to me over an extended period, following significant traumatic brain injuries and multiple skull fractures that occurred after I, as a pedestrian, was hit by a truck.” -Vicki H.

“My hero 🦩 has been an outstanding leader in our rehabilitation department at our hospital, sharing her knowledge of the care of patients with vestibular disorders so that we can provide the best care for them when we receive them as patients. She also shares her knowledge with PT students.” -Jennifer R.

“When vertigo hit with gangbusters, my hero 🦩 took off a week from work, dropping everything. When I literally could not stand, he faced me, took my elbows and I fell into his forearms, and we inched together. I was the one to feign wellness and relieve him to return to work. During relapses, he has been there each time, babysitting me. He has been my cheerleader to locate vestibular doctors and treatments, never complaining about distance or costs. He has worked 50-60 hours a week so I didn’t have to. As my vertigo doesn’t allow me to walk without holding walls, door handles, railings, he makes certain I have a cart at a store so I can feel more secure and that we go when there are fewer people, recognizing excess movement and noise interferes with my functioning and stamina. When I’ve relapsed, I call out for help when nausea and/or dizziness starts up. He hustles to pick me up, help me get to the bed or couch or chair. He checks on me in the shower so I won’t fall. He calls 2-4 times a day to be sure I’m okay during the workday. He is my best friend. He listens. It’s hard on him but he has learned to just let me vent or talk something out, and generally, no complaints. He is my best friend. Nobody comes close. I don’t know where I’d be without what he has done for me.” -Patricia D.

“My mom has been my constant cheerleader the past five months with my daily battle with vestibular migraine. My mom has helped me and encouraged me to walk when I had no balance. She has been my eyes when my vision feels like it’s bouncing everywhere, my ears when I miss important information because I can’t focus, and my rock when I feel like I am crumbling down. My mom never judges me. She pushes me only when she knows I need to try, and has reminded me of a greater love that will get me through this. I love my mom and I am so appreciative of all she has done to help me and my family. Mom, you are my hero! 🦩 ” -Marissa A.

“My daughter has been my hero 🦩 from my first attack 10 years ago. She was only 10 years old. She cooks for me, brings me food, cold packs and anything she could think of to help me feel better. She turned 19 this year, she become a carer without complaint. She would drive me with her learner’s permit to the doctor or the hospital when things got really bad. She has taken care of me with so much compassion, always trying to understand what her mum goes through. She would cancel her plans if she knows I’m not well. There are too many circumstances to mention and to give them justice they deserve. She would not want to be nominated as she does not see herself as a hero. She normally says to me, ‘It’s what anyone would do.” She is constantly telling me what a strong and resilient woman I am. I love you, my baby, and thank you so much for being my angel, my lifesaver and my inspiration! 💕” -Sandra L-S.

“My hero 🦩 is not only my soulmate, best friend, wife and mother to our three children, but also my carer as I suffer from Ménière’s disease. She is selfless in making sure I am okay, taking my medication, assisting me in daily routines, making medical appointments and being my rock all whilst running the home and looking after our three daughters. I cannot tell you the level of love and appreciation I have for her, especially as a lot of what she does goes unrecognized by us as a family and others. She is a real saint.” -Paul F.

“My hero 🦩 has an honest desire to help people with vestibular problems and in addition to individual therapy she has created an online program that combines all of the various pieces of the complete puzzle needed to have the most effective recovery program possible. Her own experience with vestibular problems makes her particularly effective in helping others. I have struggled with vestibular problems for years and her assistance and program made a huge difference in helping me. By combining her knowledge and drive with modern media she helps many countless people around the world who suffer from vestibular disorders.” -Myron B.

“My husband is my caregiver. He helps me every day. One day recently, we decided to go for a walk in the woods with our children. My husband reminded me to wear my hat and to bring my walking poles. Despite it being challenging for me, it was beautiful and I was happy to be in nature. At one point, I started to feel my symptoms flare up. My husband took my arm and helped me sit down on a log where I could rest. My husband got me my medicine and had me drink water. When we started back for the car, I started having an attack. My husband held onto me the entire way back to the car, guiding me and speaking softly to me. He is so patient and loving.” -Nichole W.

“My son motivated and encouraged me in the dark times after vestibular neuritis. He gave me love and support always, supported me through vestibular rehabilitation, and beyond. He makes me proud every day 💕” -Phillipa F.

“My husband has gone above and beyond to help when Meniere’s gets out of control. When I have dizzy spells, he is an arm/crutch to help me balance. When I was first diagnosed I was struggling with balance and would even struggle to take showers and get in and out by myself. He went and got adhesive tub stickers and a seat for when I can’t stand up on my own. He gets me food and does everything I’m not able to do for myself. He also makes sure that my doctors listen to my symptoms and advocates for me when I can’t use my voice.” -Lauren K.

“Since the day I was hit with vestibular neuritis, my hero 🦩 stayed by my side, got the kids ready for school, made their lunches, took me to the doctor, held my hand and reassured me. Not knowing initially what was wrong, we were both scared with the possible diagnosis of MS, but he took on the extra roles with a smile on his face and helped me the best he knew how. I appreciate all he did and now understand the meaning of ‘in sickness and in health.'” -Stephanie P.

“My mother is my hero. 🦩 When I was diagnosed with vestibular neuritis back in 2016, her and my father dropped their lives to take care of me. I was so sick my husband couldn’t take care of me so I moved in for a few weeks to my parents’ place. My mother is the one who found VeDA’s website and read it top to bottom and front to back. She found out the type of doctors she had to take me to and drove me all over to find the right ones. She brought me to my VRT sessions 2-3 times a week…. When I started getting better, she was diagnosed with breast cancer. She began to fight her own battle, but still cared more for my well-being than her own. Luckily she is a breast cancer survivor. When I got sick again in July 2017, now diagnosed with Meniere’s, BVD and vestibular migraine, she continues to be my full supporter and my advocate as well. She is my voice to family members and friends who question what disorders I have and spreads education to all that will listen. She is my hero. She is the most important person in my life, other than my husband. She herself is a true warrior and a fighter.” -Stacy H.

“My husband is my hero 🦩 for he is always there for me since Day One. When I lost all my balance and was hospitalized for a week, he took six months off from work to take care of me: he bathed me, fed me, dressed me, and took care of me as I learned to take care of myself again. The patience and understanding he has shown for this crazy disease goes above and beyond anyone I know! He has been a savior as I put my life back together and gave me the strength to return to work.” -Rebecca D.

“My husband acknowledges that I am living 24/7 with constant vertigo that hasn’t stopped. He lets me avoid any movement of my head, eyes, or body that will cause my vertigo to intensify. He describes what I can’t see with my double vision. He holds me up when I stumble and hugs me when I lose my balance. He doesn’t feel embarrassed by my how I walk. He repeats himself when I don’t understand what he says. He reminds me when I forget what I’m saying or doing. He drives me to my doctor appointments, therapy sessions, and anywhere we need and want to do. He is patient with me when I know I’m driving him crazy. He encourages me to laugh about my challenges rather than cry about them. He takes me seriously when I tell him what is happening to me. He believes me and doesn’t stop believing in me. He doesn’t tell me it’s all ‘in my head.’ He validates my feelings. He accepts that my brain is hurt. He doesn’t tell me to ‘just drive’ or ‘just work again.’ He knows I have limits in how much I can tolerate. He lets me get my thoughts and words out when my brain doesn’t feel like sharing. He takes over all the roles of a spouse, parent, caretaker, financial supporter. He lets me sleep, rest, do nothing. He listens to how I’ve been affected mentally, physically, emotionally, cognitively, even though it hurts him to know. He doesn’t make me talk when I don’t feel like explaining. He nurtures my positive attitude when most people would have gone insane by now. He defends me. He still finds me attractive. He gives me so many opportunities to laugh out loud! He tries to come up with solutions instead of adding to the problem. He is a true hero for constantly guiding our children through the ups and downs of my injury. He is a hero for the endless lessons he has taught and continues to teach our children about empathy, patience, understanding. He is a true hero for standing by me no matter what. I love my hero. 🦩 ” -Tiffany P.

“My hero 🦩 is my doctor. He worked with me for over a year, helping with dizziness, visual problems, and all things vestibular. His expertise, patience, and unwavering encouragement helped to rebuild my life.” -Diana C.

“My hero 🦩 has been with me every wobbly, spinny step of the way, I wouldn’t get through the bad spells without her.” -Sarah H.

“My husband is my hero, my safe place. I have been fighting with my body since I was 20 years old, always crying and asking why everything is happening to me, but he is always there to help me rise up and keep fighting. He makes me want to leave no matter how hard it would be. I’m grateful to have him as my hero. 🦩 ” -Wilkangelys D.

“For the last five years, my hero 🦩 has been my vestibular therapist, treating me with every newly developed and validated therapy. She is the quintessential practitioner – she continues to research new ideas, is always willing to discuss the best ideas for me personally. Above and beyond her professional capabilities, she is the kindest and most supportive person I have worked with. I have seen over 15 doctors for my disorder and continue to search for the answers that are elusive, but I am always heartened and uplifted when I see her. She makes sure I am on the right track and keeps me optimistic. She has been my hero!” -Janit G.

“The morning this all started my husband has never left my side. He has gone with me to appointments, encouraged me to continue seeking answers when the doctors couldn’t figure it out, gone above and beyond in taking care of me on my bad days, as well as the house and our son. He makes sure that I have all I need and protects me when others have upset me. Without his love and support, I probably would have given up a long time before I got answers. He is an amazing supporter for me emotionally, physically and mentally, a wonderful husband and father and a dedicated soldier and employee.” -Toye T.

“Before I started having vestibular issues, my husband and I weren’t doing so well. He has stepped up in so many ways to help me get through this. He has been a great emotional support and has encouraged me when I’m down, held me while I cried and made me laugh when things didn’t feel so funny. Mostly, I’d like to nominate him for re-arranging his schedule on a daily basis to get me back and forth to work and to appointments. He’s been a rock for our family and my own personal hero. 🦩 This experience has brought us closer and given us something bigger than ourselves to fight together.” -Carm D.

“My hero 🦩 has been helping me since the start of my vestibular issues. She was my personal trainer before my brain surgery that resulted in my hearing loss and hence my vestibular issues. She learned the therapy exercises to assist me, regain and manage my balance, and coached me throughout a very difficult time in my life, always encouraging me. She became a dear, close friend and I am grateful for her genuine interest in my health. She provides full of unconditional love. She is a shining star and most definitely my hero!” -Sandra R.

“Mi marido es mi héroe 🦩 , nunca me deja sola y siempre toma mi mano. Lo amo hasta el infinito y más allá!” -Andrea R.

“My hero 🦩 has worked tirelessly. He has much expertise, care and compassion regarding all types of balance conditions.” -Penny M.

“When I fell really ill with my vestibular disorder, my dad supported me in every way possible. He took me to my hospital appointments even if it meant he had to take time off work, took care of me when I was really sick, provided for me financially when I could no longer work and even paid a lot of money towards private treatment for me. I really don’t think I would have been able to get through it if it wasn’t for the support my dad gave me.” -Katie S.

“My husband has helped me walk around the house, did all the housework, gone with me to all my doctors, did all the bills, and worked 40 hours a week. He’s my rock!” -Febe M.

“Last December I became ill, and was diagnosed with Bell’s palsy and vestibular neuritis at the same time. Throughout the early time when I was diagnosed it was really hard for me and my wife. With two kids and only one income, my wife was my rock. I couldn’t drive, cook, give the kids baths, shovel the snow outside, or even work. My wife would drive me to appointments, go to work, come back home and cook dinner, give the kids their baths, prepare lunches for the next day. Almost a year later and I am getting better, but I can’t work long hours due to the dizziness. I am able to help my wife a lot more, but she had a tough year. She is a strong woman that has a huge heart. She is always helping others, and is such a generous person.” -Jonathan M.

“My kids are my heroes. 🦩 🦩 For the last three years they have driven me everywhere. They share the burden of getting me to and from work or anywhere else I need to go. I could not function without their help.” -Lisa F.

“My son was 16 when a vertigo attack brought on intense vestibular migraine symptoms a year and a half ago. He has been by my side encouraging and supporting me every day since. He’s picked up extra household chores, errands while managing his own homework and activities, helped me with so much that I could no longer do independently, supported me as I worked to retrain my brain to walk, take car rides, etc., and most of all through all of the rough days, he’s been able to make me laugh, always there with a hug and an ‘I love you’ and reminding me how far I’ve come. He’s my hero 🦩 and I am so grateful for him every day.” -Marybeth B.

“My husband is truly my hero. 🦩 We had only been married for four years when I developed Meniere’s disease. The goals we had set for our lives have had to be modified countless times since then. For 31 years since my diagnosis, he has helped me to believe in myself despite my physical limitations. He has been my champion, loving me, whether I was stuck on the couch for hours waiting for an attack to pass or sitting with me on the floor, gently stroking my hair until I was able to get up after a fall. He has helped me to feel that my life still has meaning and that I can make a difference even with the limiting effects of my disease. A hero doesn’t need to be someone who finds an amazing cure or creates a musical masterpiece. There are some truly gifted quiet heroes who improve the lives of others with their unwavering support, unconditional love, genuine encouragement and selflessness. I am blessed to live my life with that kind of hero who has stood beside me. I wish everyone who suffers from a vestibular disorder could have their own personal hero to light the way through the darkest of times. I feel truly blessed to have my very own hero, my love of a lifetime, my beacon, my anchor, my soulmate and extraordinary husband. I will be forever grateful.” -MaryAnn K.

“After nine months of unsuccessful and frustrating visits to numerous doctors for constant dizziness and rocking sensations, my doctor was the only person able to properly test, diagnose, and successfully treat me. A warm, caring, empathic professional and human being, he always took time to listen, answer questions, and provide comfort, support, reassurance, and education. Thanks to him, I got my life back and am forever grateful to him!” -Jody C-G.

“My physical therapist helped greatly identifying my main problems. She is very well informed of vestibular dysfunctions, and very willing to learn more. She is supportive and anxious to help me conquer my symptoms.” -Gary B.