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Patient Perspective

Patient Logs

Track Your Progress Keeping track of your symptoms, activities, what you eat and drink, and the medications you take can help you see trends that may aid your medical provider in determining a diagnosis and

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What Makes a Support Group Interesting?

Support groups offer people with vestibular disorders an opportunity to meet face-to-face with others who are experiencing similar challenges, as well as to hear presentations by health professionals on topics of interest. The Vestibular Disorders Association (VeDA) serves as a hub for, and offers assistance to, support groups around the world. VeDA recently surveyed the leaders of these groups in an effort to identify the characteristics of successful support groups and how VeDA might improve the assistance it provides to them.

Of the 57 surveys that were distributed to group leaders, 27 were completed and mailed back to VeDA. Although the structure of the survey does not support rigorous statistical analysis, the compiled responses are summarized here, providing some observations about the features and leadership strategies of thriving groups (long-running groups and/or those that meet regularly), as opposed to those that struggle to meet regularly and maintain interest levels.

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Living with a Vestibular Disorder

Struggling with the daily symptoms of a vestibular disorder can be disheartening. But there is hope. You can learn coping strategies that reduce symptoms and improve your quality of life. Many people describe this as adapting to their “new normal.” Our tips and tools come from vestibular patients, who have learned the hard way that small changes in your lifestyle can make a big difference in your physical, mental and emotional wellness.

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For Your Doctor Visit

Be Prepared Whether you have just started experiencing symptoms of a vestibular disorder or have already been diagnosed, to get the most out of your visits with your doctor it is helpful to assess and

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Disability Resources

You never thought it would happen. You thought you would work until retirement or beyond, but then along came your vestibular disorder. Now, focusing on a computer screen is a challenge, someone has to drive you to work, walking is a safety hazard, and your concentration is not what it used to be. All of these symptoms can interfere with your ability to do the material duties of your occupation, and can make an attempt to get through a workday exhausting and frustrating as you struggle to complete tasks that used to be easy for you. You see your doctor and she tells you the time has come for you to stop working due to your disability. Now what? How will you live without your income?

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