@tone if you search it you will see a lot of us had it. I don’t remember when mine stopped. I did get a EKG and an echocardiogram and they were fine. Did yours just start?
Bout maybe month ago ...but seems it's getting more now ? Does it get worse before better ? What did yiu do ?
Hi all. I have some bad news to report. As of yesterday, I am having dizzy spells again. It started with my neck and shoulder muscles swelling up some. Then some bad headaches again. Then yesterday, the dizzy spell started. I am still dizzy today so far. I haven't had a dizzy spell since August of last year. I was hoping it was random, but it isn't. I did say I would come on here and update you guys if I had any relapses. I wish I had better news. I will keep you updated. My last shot was on April 19th, 2021. Almost a year ago. This is my first relapse since my symptoms resolved in August of 2021. I don't know what has triggered this. I am having some ear fullness and nose fullness a few days now. Maybe I am getting a cold or have come into contact with Covid again? Anyone else have a relapse after so long? I am concerned.
Hang in there, I too had a relapse after around month 2. Whatever this is messes with anxiety among other things. As mentioned in many places on the forum that if you let the anxiety spiral it will make the symptoms worse.
Just 2 questions, since this has been such a traumatic experience, could it possibly be PTSD? I don't any of us will forget this horrific experience. Just a thought.
Second question, even though you were over this, you can still get other ailments like sinus issues etc. Perhaps you are dizzy from either normal sinus issues or flu, corona or perhaps the anxiety from my 1st question.
Been following you for a while and your story amongst some others is what kept me strong in the dark times. You have no choice but to feel better for us 😂. Maybe another holiday or back massager will help. I bought one today. Keep on the updates. Hang in there. You are already recovered. Stay that way.
Thank you.
I think it was Covid.
I had it in March of 2020 but it was the first strain and I got severe headaches for a few months as lond covid symptoms after I recovered, but not the dizziness. That was only after the vaccine. I had dizzy episodes once in my life before this stuff. I had anemia really bad the October before Covid started, but the dizzy spells from the vaccine were much worse. The worse I had ever had. I didn't get them as bad during this relapse and I never tested positive. But every person I was around on a daily basis did. I really believe I had a bad possibly allergic reaction to the antibodies created by the vaccine. I don't know if it's possible, but it seems that way because I was dizzy again after exposure. Maybe the antibodies our bodies created in reaction to the vaccine and the ones they remember and release in reaction to an exposure are making some have an allergic reaction. I have been using my back massager. It really does help and I can tell by the soreness the next day that my muscles are very tensed up. Not solid hard and bulging like the first time. This time, the dizzy spells started and then dissipated. The first time once they started, they didn't stop ever for three months and two weeks, so I was very relieved that it was only a few times a day and it did stop after each time. I think some people just have a bad reaction to it. Covid and the vaccine. I had what I considered a mild case when I caught it, but I was terrified because it was the actual week lockdown was imposed here. My doctor gave me a zpac and prayers and there was no information. Long Covid was not even a thing known. I may have some PTSD from it, but I do seem to be much, much better. It is also sinus season and pollen is having a party everywhere, but I do think I had an exposure. One thing I can say is that I haven't caught it since I was vaccinated. I still would have rather known this could happen and for this long and not taken it at all, but I haven't caught it. So, for what that's worth.
I hope you are recovered or at least healing and seeing some improvement. I did not think I ever would. I had dark times too, and I was terrified. But, I'm still here, and I do feel better and I think I am getting a better grasp of the situation. You're still here too. Some days that was all I could hold on to. I have GAD anyways from my anemia and having to have hospitalization for that, which was not something I even thought could happen. I thought you eat some leafy salads and some red meat and it would cure anemia. Not so, for me anyways, and that is the first time anything ever messed with my brain. I didn't understand what neurological symptoms were or how scary they can be. That's why I keep checking back here and trying to give updates. Talking with other people who understand them really is the thing that helped the most. Sometimes just reading that other people are going through the same thing, especially with this.
I think we are going to have a whole generation of shell-shocked people. I worry about the kids and what all this craziness is doing to them mentally. Maybe it will make them stronger, more connected. I hope it doesn't scare them to death. I really hope the doctors start talking about what has been happening to folks like us and trying to address it. There are too many of us for this not to be acknowledged and looked at. Especially if they are giving this stuff to kids now.
Sorry, I ramble. Especially now that the brain fog has lifted to a much more manageable level. But, thank you for your post. I appreciate the kindness. I am what I consider recovered for the second time and this bout was no where near as bad as the first reaction, so maybe I won't relapse again. I hope. But I will definitely come here and post if I do. overall, it still lasted a long time, but wasn't as bad.
I hope all of you have a blessed day and don't lose hope if you are in the thick of it. Recovery is possible and you are still here, so go with that.
For one thing, the doctors are looking for known causes and diseases, when this Sars and this vaccine are novel. You likely don't have Lupus. I don't know that, I just know that we all have very similar presenting symptoms and doctors are trained to fit those into known causes and rule them out until they find an appropriate diagnoses. I am no doctor, but I don't think they are going to find what they are looking for. None of us had this stuff before the vaccine and now we all do or did. It's the vaccine, or a by product of the vaccine I think. And they aren't looking for brand new reactions. I don't think they are even finding a repeating pattern and grouping us together to find a common denominator. We all know what that is, but I know my doctor refused to even think it could be a long and sustained reaction to the vaccine. But, we all seem to have that in common, so I wouldn't worry about a known cause. Just IMO.
@tone I didn’t take anything really for it.
How are you doing? Any improvements ?
@tone today was an ok day but I only slept maybe 5 hours and have been up since 3 am, but I was able to lay in bed and rest til 7:30 which is unusual. On ok days I try to stay active and walk . Hope you are doing better. Not as anxious or restless today. How are you? I know the heart palpitations are concerning, when I would get them I would talk to myself and breathe as much as I could.
@tone today was an ok day but I only slept maybe 5 hours and have been up since 3 am, but I was able to lay in bed and rest til 7:30 which is unusual. On ok days I try to stay active and walk . Hope you are doing better. Not as anxious or restless today. How are you? I know the heart palpitations are concerning, when I would get them I would talk to myself and breathe as much as I could.
How are your GI issues ? And did yiu see a doctor about palpitations? And again how long and how bad did they get get?
@hisrichess hey! Glad to hear you are doing better!! How are your eye floaters? Have they disappeared?
hey there. haven’t been on my phone much due to obvious reasons. im on my 7th month now, entering my 8th. the floaters have lightened up but now im dealing with static-gritty-like visions whenever in dimly light or bright areas. also dealing with white flashes now.
pretty sure they are worsened now due to me getting tired of eating like a caveman and wanting some horrible chinese food, along with some hot chips.
Hi everyone, I wish you all well.
It's been a while since our update, because the lady I was researching for - we no longer speak. I asked her to post her experience and an update for you all - I cant be for certain but I imagine she didn't.
Her eventual diagnosis, after the covid vaccine (double jabbed) was encephalitis.
It took a few months, but she is now able to drive again and I imagine function as she could before - but not fully as of yet.
https://www.nhs.uk/conditions/encephalitis
I know of another lady who is pro-vaccine, double jabbed and has had a number of serious reactions from catching Covid (I believe). She uses a device to help her track her health - its not 100% accurate but she has found it valuable in helping her to monitor her progress during her recovery. She also listens to a Dr. on YouTube who's name I will post up for you - i've asked her to jog my memory!
https://www.garmin.com/en-GB/p/605739/pn/010-01995-01
my thoughts are with you all x
you will get through this x
breathing is much better now. They eyes are ok. Not too bad.
But the insomnia is horrible and the muscle twiching nights also.
@watis I’m glad the breathing and eyes are better, that’s good news. I agree the insomnia is horrible. I’m still suffering even with medicine . Still keep hoping and praying that we all get our sleep patterns back soon.
@tone I went to the doctor and she ordered a EKG and Echocardiogram and they both were normal. I know they can be scary but to put your mind at ease maybe talk to your doctor about them. Actually I’ve had 2 EKG one was at the hospital and it was fine too.
Anyone here have burning sensations over body that has resolved or recovered from ? If so how long ? And anything to relieve in meantime besides prescribed medication. Supplements, diet , fasting ? Or just time?
And were you tested for any type of neuropathy ? SFN or peripheral ,...etc