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Lucrezia
(@lucrezia861)
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Joined: 3 months ago
Posts: 5
 

@lmkk I'm glad they're getting better! Do you still have all the symptoms I listed or have some gone away with time? 

 


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KitKat
(@lmkk)
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Joined: 9 months ago
Posts: 435
 
Posted by: @lucrezia861

@lmkk I'm glad they're getting better! Do you still have all the symptoms I listed or have some gone away with time? 

 

I stil frequently get blue and purple dots in my vision. I get visual snow, vision wobbling (nystagmus), dry eyes. Symptoms are overall not as severe as 6 months ago. Eye pain has gone, black flashes are gone, after image and strange flashes of light in vision perimeter have gone. Eye floaters have gotten better but not gone away completely.


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KitKat
(@lmkk)
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Joined: 9 months ago
Posts: 435
 
Posted by: @tone
Posted by: @lmkk
Posted by: @medee

@lmkk Hi KitKat, how are you feeling these days overall. Has any symptoms gone away completely?

I remember you had nerve pain as well along with other symptoms. Has it gone away?

 

 

Hi there.

Thanks for asking about me. I'm much better nerve pain wise then I was 8-9 months ago. I do still have nerve tingling but it's not nearly as bad as it was initially and it's now mostly in my feet and not all over my whole body. I feel it's getting better very slowly with time. Some issues such as the tinnitus, headaches, dizziness and muscle tremors and twitching are gone I just have some lingering eye issues that I hope will also improve with time. How are you doing these days?

Has anything helped with your nerve pain ? When did it start to lessen? Did it get worse before it got better ? Was it debilitating  and was it all over or did it start in certain spot and move around. 

Glad you are having improvement.  Hope and pray it continues for you. 

My nerve pain did move around. Sometimes it's more in my hands, other times more in my feet, I used to have it in my face and mouth at times but that hasn't happened in a few months. 

The first few months were the most intense pain wise. The pins and needles was crazy like fire ants and it was all over my body. I have had many relapses sometimes they felt worse then the initial pain after the jab but it always calmed down as I got over any illnesses that tended to cause the relapses.

This last month overall has been the best month yet nerve pain wise. I don't want to jinx myself but I really feel like my nerves are getting into the final stages of recovery. I no longer have the intensity in my pins and needles it's more of a mild tingling. My nerves are definitely more sensitive to stimulants, inflammatory foods and the cold as well as hormone fluctuations and can easily be triggered into a flare up but when I manage my diet well my nerve pain is much much better and some days barely noticeable I have to lie down quietly and focus on it to feel it. This gives me hope that no major permanent damage has been done and that a near full recovery is possible with time. I say near recovery as I suspect I will now always be sensitive to things such as alcohol, caffeine, fatty foods etc and will have to continue to limit or avoid these to keep nerve issues at bay.


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Hopeitsover
(@s-m-a)
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Joined: 11 months ago
Posts: 62
 
Posted by: @watis

Hi All,

 

After my first 2 good days yesterday and the day before I have today an awful day. I feel like I am dying again and all symptoms and an incredible tiredness is also bringing me down.

Last night I did not get any sleep and then I am always super tired.

Is this normal that after 2 good days the next day you really feel like you are dying?

I have no idea what to do.

 

Hi. I found that having a few good days gave me hope. I few good days proved it was possible. And eventually, there were more good days than bad days. And then, just a few bad days. And then only a symptoms once in a while. You are recovering. Keep doing what you're doing and try to reduce stress. The feeling of doom, or that you're dying, I really believe is a symptom and getting control of that anxiety speeds along your recovery, but you are going to be fine. It just takes some time. 


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watiswat
(@watis)
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Joined: 4 months ago
Posts: 106
 

@s-m-a 

 

Many Thanks for your kind words!!!


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Philroy
(@philroy)
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Joined: 4 months ago
Posts: 40
 
Posted by: @ksharky13

@carym23 Thanks for the reply and info.  This theory is as good as any right about now. The medical community seems to be purposely avoiding this issue.  I would assume at some point they will have to come together to figure these things out because they are going to be facing (actually already are facing) thousands of very frustrated and angry patients if they can't start giving us some answers.  They should also be putting pressure on the CDC and Pfizer & Moderna to make these risk factors public so people can make informed choices.  I'm holding out a sliver of hope that we all recovery from this nightmare at some point.  It's hard to shake the thought that these mRNA vaccines could have completely changed our body and could wreak havoc on us for years.

I hope they invest some of the fortune they have earned selling billions of expensive vaccine shots in investigating the reasons for these neurological side effects and find a treatment for them or even a way to make future vaccines safer.  I know this has been done in record time and perhaps the good outweighs the bad but when your suffering from it that doesn't help much.  Would be good to hear that they all acknowledge that these side effects exista and that they are looking for solutions instead of trying to claim that there is no relation...


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Andie
(@curious-andy)
New Member
Joined: 2 months ago
Posts: 1
 

Hey everyone,

 

I've been browsing this forum for awhile in hopes there is an answer to the dizziness a lot of us have experienced.

I'm located in Canada and with the recent rollout of Novavax I'm wondering if anyone with mixed vaccinations has had these same side effects for their second dose after experiencing issues with an MRNA vaccine with dose 1. Not sure if this is an issue with the polyethylene glycol or the spike itself and hoping someone on here has some insight.

 

I received my 1st dose almost a year ago and after battling with horrible vertigo and dizziness and brain fog that lasted months I am reluctant to get another MRNA for 2nd dose.

Not sure what efficacy even looks like for me but any insight you guys might have would be amazing.

 


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Philroy
(@philroy)
Active Member
Joined: 4 months ago
Posts: 40
 
Posted by: @curious-andy

Hey everyone,

 

I've been browsing this forum for awhile in hopes there is an answer to the dizziness a lot of us have experienced.

I'm located in Canada and with the recent rollout of Novavax I'm wondering if anyone with mixed vaccinations has had these same side effects for their second dose after experiencing issues with an MRNA vaccine with dose 1. Not sure if this is an issue with the polyethylene glycol or the spike itself and hoping someone on here has some insight.

 

I received my 1st dose almost a year ago and after battling with horrible vertigo and dizziness and brain fog that lasted months I am reluctant to get another MRNA for 2nd dose.

Not sure what efficacy even looks like for me but any insight you guys might have would be amazing.

 

Hi, good of you to share your story.

I have had 3 shots of Pfizer and after first 2 I had some very minor erects which I wasn’t sure at the time was because of the Vaccine.

hiwever after the third jab 11 weeks ago my symptoms are a lot worse. I certainly would not have another MRNA shot unless they price they can sort out these effects.

I can only imagine what a 4th shot would do to me.

if you were so bad after 1 shot I personally wouldn’t advise having another one. You should ask a specialist first I think, but a proper vaccine specialist not a GP.

This vaccine technology is too new and the inventors don’t even know the answers yet.

 

 


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Tinnitus from Covid Vaccine
(@ksharky13)
Active Member
Joined: 4 months ago
Posts: 61
 
Posted by: @philroy
Posted by: @ksharky13

@carym23 Thanks for the reply and info.  This theory is as good as any right about now. The medical community seems to be purposely avoiding this issue.  I would assume at some point they will have to come together to figure these things out because they are going to be facing (actually already are facing) thousands of very frustrated and angry patients if they can't start giving us some answers.  They should also be putting pressure on the CDC and Pfizer & Moderna to make these risk factors public so people can make informed choices.  I'm holding out a sliver of hope that we all recovery from this nightmare at some point.  It's hard to shake the thought that these mRNA vaccines could have completely changed our body and could wreak havoc on us for years.

I hope they invest some of the fortune they have earned selling billions of expensive vaccine shots in investigating the reasons for these neurological side effects and find a treatment for them or even a way to make future vaccines safer.  I know this has been done in record time and perhaps the good outweighs the bad but when your suffering from it that doesn't help much.  Would be good to hear that they all acknowledge that these side effects exista and that they are looking for solutions instead of trying to claim that there is no relation...

The shark lawyers will come out as soon as they smell liability blood money in the waters.  Then they will hire high-priced scientists, et al, to make the case against the pharmas.  Unfortunately it will take years for that to happen.  The pharmas certainly aren't going to go looking for any causal liability.  As I type, after 4 months of tinnitus that I thought was starting to wane, the high-pitched nightmare is back today.  Hopefully just one of the many short-term relapses people seem to get as they go through the recovery process.  In the meantime, my electric guitar sits sadly in the corner as I'm afraid to play it lest I exacerbate the tinnitus even further snice I have no idea as to my body's sensitivity to noise is now.


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Philroy
(@philroy)
Active Member
Joined: 4 months ago
Posts: 40
 
Posted by: @ksharky13
Posted by: @philroy
Posted by: @ksharky13

@carym23 Thanks for the reply and info.  This theory is as good as any right about now. The medical community seems to be purposely avoiding this issue.  I would assume at some point they will have to come together to figure these things out because they are going to be facing (actually already are facing) thousands of very frustrated and angry patients if they can't start giving us some answers.  They should also be putting pressure on the CDC and Pfizer & Moderna to make these risk factors public so people can make informed choices.  I'm holding out a sliver of hope that we all recovery from this nightmare at some point.  It's hard to shake the thought that these mRNA vaccines could have completely changed our body and could wreak havoc on us for years.

I hope they invest some of the fortune they have earned selling billions of expensive vaccine shots in investigating the reasons for these neurological side effects and find a treatment for them or even a way to make future vaccines safer.  I know this has been done in record time and perhaps the good outweighs the bad but when your suffering from it that doesn't help much.  Would be good to hear that they all acknowledge that these side effects exista and that they are looking for solutions instead of trying to claim that there is no relation...

The shark lawyers will come out as soon as they smell liability blood money in the waters.  Then they will hire high-priced scientists, et al, to make the case against the pharmas.  Unfortunately it will take years for that to happen.  The pharmas certainly aren't going to go looking for any causal liability.  As I type, after 4 months of tinnitus that I thought was starting to wane, the high-pitched nightmare is back today.  Hopefully just one of the many short-term relapses people seem to get as they go through the recovery process.  In the meantime, my electric guitar sits sadly in the corner as I'm afraid to play it lest I exacerbate the tinnitus even further snice I have no idea as to my body's sensitivity to noise is now.

Most people seem to get a bit better then relapse a bit. It’s like 3 steps forward then 2 steps back.

I feel quite lucky so far in that my symptoms are not really painful but just uncomfortable with the constant worry about them getting worse or never going away.

ive only had a few minutes of tinnitus during the evenings. My main issue is tingling over the body and pins and needles and numbness in my feet.

i hope you get better soon and get your fender out again..best wishes 


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Alexaisonfire
(@alexaisonfire)
New Member
Joined: 2 months ago
Posts: 3
 

@curious-andy 

 

hi, I had a non MRNA vaccine and still had the same issues a lot of people described on this forum. I had AstraZeneca. I think this means it’s something in the spike protein across the four main vaccines  not sure how novavax works 

I had a very mild case of covid too and had mild symptoms of what I experienced post vaccine too


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healmeohlord
(@floryeo)
Very Active Member
Joined: 8 months ago
Posts: 180
 
Posted by: @lmkk
Posted by: @floryeo
Posted by: @lmkk
Posted by: @lucrezia861

@callie Photophobia, pressure behind the eyes, floaters, Vs, sometimes I see my heartbeat, flashes, afterimage... Strange headaches like a feeling of pressure, in the nose as well, head spinning, sometimes neck stiffness... I probably forgot some 😅 what about yours?

This is pretty much all the same eye symptoms I have experienced.

Hi kit, do u have double vision.

Am now 8 mths post v, and start to have double vision.

I did have double vision late last year. You should have an eye test for peace of mind and to see if you need glasses.

Hi Kit, have yr double vision gone away? How long did u experience double vision.

I have seen 5 eye dr, and all test are normal.

 


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alia
 alia
(@sunrise)
Very Active Member
Joined: 5 months ago
Posts: 125
 

I would like to share a link for a very good interview: “The Latest on Long Covid Research with Dr. Iwasaki”:

https://www.youtube.com/watch?v=CF4j-EVPlPU

At the 49th minute there is talk about a special study: “Yale LISTEN study”:

https://medicine.yale.edu/ycci/listen-study/

“The LISTEN researchers will analyze the data for insights about the health of people in the study, including those with long COVID and those with syndromes after vaccination.”


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Dee
 Dee
(@medee)
Very Active Member
Joined: 9 months ago
Posts: 650
 
Posted by: @lmkk
Posted by: @medee

@lmkk Hi KitKat, how are you feeling these days overall. Has any symptoms gone away completely?

I remember you had nerve pain as well along with other symptoms. Has it gone away?

 

 

Hi there.

Thanks for asking about me. I'm much better nerve pain wise then I was 8-9 months ago. I do still have nerve tingling but it's not nearly as bad as it was initially and it's now mostly in my feet and not all over my whole body. I feel it's getting better very slowly with time. Some issues such as the tinnitus, headaches, dizziness and muscle tremors and twitching are gone I just have some lingering eye issues that I hope will also improve with time. How are you doing these days?

I am nowhere close to feeling better yet. My huge mistake was taking medicines which has messed me up badly. 

My chest used to turn cold, now it has started turning hot as well. It's very uneasy and scary.

Glad that you're getting better. 


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Tone
 Tone
(@tone)
Very Active Member
Joined: 5 months ago
Posts: 231
 
Posted by: @medee
Posted by: @lmkk
Posted by: @medee

@lmkk Hi KitKat, how are you feeling these days overall. Has any symptoms gone away completely?

I remember you had nerve pain as well along with other symptoms. Has it gone away?

 

 

Hi there.

Thanks for asking about me. I'm much better nerve pain wise then I was 8-9 months ago. I do still have nerve tingling but it's not nearly as bad as it was initially and it's now mostly in my feet and not all over my whole body. I feel it's getting better very slowly with time. Some issues such as the tinnitus, headaches, dizziness and muscle tremors and twitching are gone I just have some lingering eye issues that I hope will also improve with time. How are you doing these days?

I am nowhere close to feeling better yet. My huge mistake was taking medicines which has messed me up badly. 

My chest used to turn cold, now it has started turning hot as well. It's very uneasy and scary.

Glad that you're getting better. 

Any improvements or recovery of symptoms?


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