Posted by: @pfizerinjured

@nickpaul , thank you for responding.  What vestibular rehabilitation exercises do you do?  Could you possibly share please?

@pfizerinjured

Excuse the slow reply.  My vestibular physio gave me six core exercises.  1 & 2.  Keep eyes in position and move head, first 180 degrees side to side, then up and down.  3 & 4.  Keep head still and move eyeballs first side to side, then up and down.  5 & 6.  Focus eyes on a target at about eye level (e.g. a cross stuck on a wall), keep the eyes focused on the target while moving head, first side to side, then up and down.  I started the exercises lying down, then progressed through sitting, standing, standing with feet together, standing one foot in front of the other, standing on one leg, and walking.  I also bought a book called The Vertigo Treatment, A Simple Step By Step Guide.  Its author, Bobby Gibbs, posts about his experience of vestibular symptoms and the book somewhere else on this VeDA site.  (I have no affiliation with him or the book).  The exercises in the book are more or less the same exercises as I was given by my physio in principle, with some variations.  I can see some SLOW progress as I've done the exercises, I'm about 3.5 months into doing them, and about 7.5 months since vaccine and onset of dizzy (and other) symptoms.  It's going to take longer though.  I am becoming slightly more functional but still not able to get back to work.  I'm hoping for further progress with time. 

Of course, I don't know if the vestibular exercises would be right for your situation, but I hope the info might help. 

I was also investigated for POTS / Myocarditis / Cardio type vaccine reactions early on due to symptoms but Cardiologist ruled that out.  And I finally got to see an Immunologist a week ago who is going to do some tests for immune overactivity / autoimmunity.  At this stage though I think I'll probably end up with just the vestibular diagnosis I've already got.   

Well I’m 4 months post onset of tinnitus and I’m definitely having a relapse. I was getting better at about the 2.5 month mark but it’s now back to its original worst level. Seems like that’s the latter for people on here. Im getting resigned to the fact that tinnitus will be a permanent injury from these horrid vaccines. Not very many success stories on here about tinnitus being resolved. Maybe it takes more time for the cytokines (or whatever) get cleaned out of the body. Let’s all stick together and get through this as best we can. 

Posted by: @nickpaul

Posted by: @pfizerinjured

@nickpaul , thank you for responding.  What vestibular rehabilitation exercises do you do?  Could you possibly share please?

@pfizerinjured

Excuse the slow reply.  My vestibular physio gave me six core exercises.  1 & 2.  Keep eyes in position and move head, first 180 degrees side to side, then up and down.  3 & 4.  Keep head still and move eyeballs first side to side, then up and down.  5 & 6.  Focus eyes on a target at about eye level (e.g. a cross stuck on a wall), keep the eyes focused on the target while moving head, first side to side, then up and down.  I started the exercises lying down, then progressed through sitting, standing, standing with feet together, standing one foot in front of the other, standing on one leg, and walking.  I also bought a book called The Vertigo Treatment, A Simple Step By Step Guide.  Its author, Bobby Gibbs, posts about his experience of vestibular symptoms and the book somewhere else on this VeDA site.  (I have no affiliation with him or the book).  The exercises in the book are more or less the same exercises as I was given by my physio in principle, with some variations.  I can see some SLOW progress as I've done the exercises, I'm about 3.5 months into doing them, and about 7.5 months since vaccine and onset of dizzy (and other) symptoms.  It's going to take longer though.  I am becoming slightly more functional but still not able to get back to work.  I'm hoping for further progress with time. 

Of course, I don't know if the vestibular exercises would be right for your situation, but I hope the info might help. 

I was also investigated for POTS / Myocarditis / Cardio type vaccine reactions early on due to symptoms but Cardiologist ruled that out.  And I finally got to see an Immunologist a week ago who is going to do some tests for immune overactivity / autoimmunity.  At this stage though I think I'll probably end up with just the vestibular diagnosis I've already got.   

 

Thank you so much.  I appreciate you sharing.  I hope you fully recover very soon.

@floryeo Hi, yes actually I recently discovered that my visual vertigo was a key contributor. A little about me: I got the Pfizer vaccine in April 2021 and developed chronic vertigo three days after. I experience both an internal sensation of movement and external perception of objects moving side to side. After a long road I found an ophthalmologist who gave a name to my visual vertigo: oscillopscia. She informed me that one's vision and one's vestibular system work together as a team. She also said that the medical community has been seeing a lot of weird vertigo after the vaccine and Covid. Apparently it's common for patients to develop vestibular problems after what she called an acute vestibular event (i.e. whatever the vaccine caused). Doing visual therapy has improved my vertigo overall, although I still feel like I'm on a boat over a year later. She recommended I try "yoked prism glasses" in order to expand my peripheral vision. Sharing this info here in case it speaks to your experience. Diagnosing my visual vertigo was a key piece to the puzzle of recovery. 

New pre-print article worth a look. Tagged from Avindra Nath. If you don't know who he is, he is at US NIH and has been investigating post vax for some time. So this would be a publication US doctors would be more inclined to accept as true.

Seems the data supports. Interesting the super heavy skew to females, which I've heard elsewhere as well: this is vastly more a female vs. Male issue both in likelihood to contract and in severity. Also interesting on early treatment with steroids and longer term IVIG results.....

https://www.medrxiv.org/content/10.1101/2022.05.16.22274439v1

Posted by: @coco

Hello, for all of you who had covid in the last few months, how did it impact your symptoms in the long term ?

I currently have covid and I feel like my ear pressure and brain fog are back, but I hope they will go away when the virus is gone.

Thank you 

I had covid end of Jan early Feb. My jab symptoms intensified for about a week then subsided back down to a lesser degree pretty quickly. ( I'm suffering from peripheral neuropathy since my jab, it's better now then it was last year summer but still ongoing).

@ashleycuckler I haven't been on here, sorry for the late response! It does get better, I go through relapses, but I still have issues. I kind of thought everything would be gone by now but I have been getting terrible tightness in my head triggered by the smallest of stress. I have great days and then days like today I am in pain. I have neurological issues persisting still. I cannot feel anything when I drink. It feels like my brain receptors aren't working..things feel fuzzy. Im so sorry you are going through this, time shall pass and we shall heal!

Can someone give me some info or help me out? I've been vaccine injured since last June. I have recently been having neurological issues come up again. Doctors keep wanting me to take tests and I think it's a waste of money. I took cytokine back in September and obviously they were crazy and inflamed. My brain feels fuzzy, like my receptors are blocked/not working. I can't feel anything if I drink or vape ( I don't do these things every day, only socially but I don't even do it anymore because I don't feel anything) I need something to fix this, whether its a supplements, prescribed medicine, etc. I am tired of migraines, tightness around my head, advil, tylonel, etc makes it worse. my LDN doesn't seem to be doing anything for me anymore. 

To those with dizziness; Did you experience tingling in the face shortly after your vaccination (1-3 days after)? I know I did, and I think it is related to the constant feelings of unsteadiness that never let up since my vaccinations in July/August 2021.

1-2 days after my first Pfizer vaccination, I experienced weird facial tingling. My physician of course told me it was anxiety, but I have always been 100% sure it was not. The timing was impeccable.

My theory is that something in the vaccine, or a reaction the vaccine sparked, damaged my facial nerves in some way. The tingling is an indication of this. I think it is some kind of neuropathy that hinders the communication in the facial nerves and hence sets off feelings of unsteadiness and a lightheaded feeling in general. I believe cranial nerves are considered peripheral, so one would think those have some capacity to recover.

Does anyone know if there is a test for neuropathy? I did the whole battery of tests; MRI, Videonystagmogram, vHIT, blood tests (anemia, cardiac and others), hearing tests, neurological examination, ANA tests, d-dimer... But everything came back fine.

Anyone similar experiences?

@mike411 Thank you!

So does anyone else ever look into the mirror and wonder who is that person? Seriously this vaccine has completely changed me. But I keep hoping and praying that we will recover. Some of my symptoms are better and I haven’t gotten any new ones so I’m grateful. But honestly some days are difficult mentally and physically. We have to keep talking things through together because we are the only ones who truly understand. 

@lookingforanswers definitely felt that way today trying to drive home without having dizzy spells 

Posted by: @mike411

New pre-print article worth a look. Tagged from Avindra Nath. If you don't know who he is, he is at US NIH and has been investigating post vax for some time. So this would be a publication US doctors would be more inclined to accept as true.

Seems the data supports. Interesting the super heavy skew to females, which I've heard elsewhere as well: this is vastly more a female vs. Male issue both in likelihood to contract and in severity. Also interesting on early treatment with steroids and longer term IVIG results.....

https://www.medrxiv.org/content/10.1101/2022.05.16.22274439v1

 

Thank you for posting this. It is a start. At least they stated that: "Since all SARS-CoV-2 vaccines encode the spike protein, anti-spike protein immune responses may link post-COVID and post-vaccine syndromes."

Posted by: @yi03

Can someone give me some info or help me out? I've been vaccine injured since last June. I have recently been having neurological issues come up again. Doctors keep wanting me to take tests and I think it's a waste of money. I took cytokine back in September and obviously they were crazy and inflamed. My brain feels fuzzy, like my receptors are blocked/not working. I can't feel anything if I drink or vape ( I don't do these things every day, only socially but I don't even do it anymore because I don't feel anything) I need something to fix this, whether its a supplements, prescribed medicine, etc. I am tired of migraines, tightness around my head, advil, tylonel, etc makes it worse. my LDN doesn't seem to be doing anything for me anymore. 

assume by cytokines. you mean you had the IncellDX cytokine profile (14 cytokines) done? Generally, you at least need a good statin and low dose 81mg aspirin as a foundation and take for many months to maximize its potential. atorvastatin gets into brain and can help with many with neuro inflammation. so treats both symptoms and the root cause.

LDN works for some to symptom relief but it's doesn't permanently treat it just helps some keep going until body can overcome this. Depending on which cytokines were high, some do well on Fluvoxamine to help with brain fog, headaches, etc, while working to bring down several important cytokines. 

The tightness around head, migraines, etc. are very indicative of vasodilatation due to vascular inflammation and damage. vessels are expanding increasing pressure and blood plasma leaks out of tiny capillaries due to damage and creates more pressure. 

@ichi Hi, I just saw your 11 month update post. Is that how long you’ve had the insomnia for? I also have insomnia. Has it got any better over time? And what antihistamine are you taking?